Your post caught my attention, I have really similar symptoms. I have seen improvement in all my symptoms except for the muscle and tendon pain, and the nerve tingling. Nothing seems to touch it. I...
I guess I'm kind of a weird case, but I made gains in a lot of areas towards the beginning of getting sick without being on antibiotics at all. Then when I started getting treated, I continued to...
Hello fellow lyme friends, I have a question regarding treatment. So far, I have been on 4 different kinds of antibiotics over the course of 5 4 months and so far I have not seen improvement or...
That's interesting, I've been thinking of trying to eat better for a while now. I guess I've always ate well, but not lyme-diet well. It's not legal where I live, but I could soon have access to it...
Marijuana makes everything more "intense" for a lot of people, especially your senses. This is usually awesome, but throw pain in there and it quickly goes downhill. Although I have access to good...
I used to love smoking recreationally, and still do when I can. However, it has the opposite effect for me - makes my pain way more intense. Maybe it's body chemistry or something, but I have to stay...
Wow, so I actually think it may be post - nasal drip. I feel like I have stuff running down my throat, and I keep having to clear it. It's definitely not just a cold, I don't have any nose...
Wow, like tingling and stuff? Numbness? Yeah my doctor has me taking Liposomal Glutithione, and it's called Tri-Fortify Orange. It's supposed to be super readily absorbed and help with nerve repair....
Hello, One of the symptoms that popped up during the first couple months I got blasted with lyme symptoms was nerve damage in my left arm. Basically, if I stretched my arm out past like 45 degrees, i...
Definitely. It wasn't bad enough to where I was dropping things and stuff, but I noticed that it seemed harder to grip and control a pen, computer mouse, keyboard, etc. It took a couple months for it...
Thanks for the input everyone. I do have bartonella and I'm taking Rifampin, so maybe it is a side effect from the infection. I'm not sure i'd go so far as to call it a "herx", at least not for me...
So I've been diagnosed with lyme and bartonella and have been treating for 2.5 months under an LLMD. It's been a riot. Recently, I've started having a sore throat pop out of nowhere and stick around...
not that I've seen really. Healclick.com is better imo, and I use that site as well as chat with people on the lyme sub on Reddit. As an added bonus, users on both places are usually younger, so I...
Yeah I've heard the same as well. I've definitely got some kind of fibromyalgia going on with my lyme, so I'm betting I'll be treating for a long time before I get well. I'm not sure how long I've...
Thanks for the input everyone. One of the things that scared me the most coming in was seeing how long everyone was sick, and I wasn't sure if that meant people were treating that long or they were...
I've noticed many people posting about how they've been sick for a REALLY long time (4+ years). Does this mean you've been taking antibiotics this long, or that you've gone untreated this long? I...
Just want to add - I see the doctor (MD) that I'm pretty sure Garden Peace is referring you too. He's a fantastic doctor!...
Chappelle, My meds were switched entirely when I started seeing my new LLMD. I'm now on Rifampin and Biaxin. I agree, 90% is great - but the remaining 10% of my symptoms are the most debiliating and...
Let's see, I'm taking Biaxin and Rifampin at the moment. I was on Rifampin and Minocycline last month. The pain was one of the first symptoms I got....
It's mind blowing when you think of how much of your life you've lost. I started treatment based on the positive Igenex test in late November. Unfortunately, my first doctor was not as experienced in...
Has anyone had lyme or co-infections give them constant pain behind the knees/down calves? I don't have joint pain at all, but my muscles and especially the tendons on the back of my knees really...
That's a tough one.. I know I had a big red bump spring up on the back of my leg last year in July. I think that was my tick bite, but it's hard to say. Didn't have a rash near it or anything....
Another lyme question.. Basically, I'm wondering if lyme pain can be symmetrical? Not all, but the majority of my symptoms have been the same on both sides of my body. This goes for pain intensity...
I hear you on that one. I've been dealing with chronic pain and other issues since day 1, and that was 6 months ago. I've been on abx with minimal results for 3.5 months now. The first 2 months I was...
That does sound like it could be it, Garden Peace. I've hypothesized that perhaps I'm in a constant state of herx, and the bugs down there are always active, and toxins or maybe biofilms just...
So I'm wondering if anyone is familiar with this; its been my body's MO for a couple months now. I wake up in the morning feeling okay (usually). Have some pain in my legs, which is my primary...
yeah this sounds just like what happened to me! I had a huge and sudden onset of all kinds of symptoms, and soon after I saw my fingernails were looking whack as well. I was terrified at first,...
Hey! I did for about 2 weeks when I first got sick. It went away after that and hasn't come back since. hopefully it works out that way for you too....
So of course, lyme disease, at least for me, is an invisible illness. The only exception is that I've got some stuff going on with my fingernails. When I originally became sick, I noticed red bands...
@lmm22 - Yeah, cheers to being young and having your life f'd over by this! And it's true, I think legitimate fibro involves the pain points and overall body tenderness, and I really don't have that...
@Deejavu - Yeah, thats exactly how I feel about detoxing! I just get the impression that it's more a placebo than anything. But, I thought your detox post was very well written and I decided to take...
I definitely think he may be onto something with the bart. I do have the foot soreness that seems to be one of the more popular symptoms for it, but it doesn't happen often and usually not severe....
Has anyone out there never experienced a herx on antibiotics, but still improved on them? I've taken a variety of treatments (doxycycline, rifampin, minocycline, and some herbs) but I've never felt...
Thanks for the input everyone. I talked to my LLMD about possible fibromyalgia, and he seems to think it is a symptom of the Lyme disease. My leg pain is definitely chronic because it's there all...
23/male. I would personally argue that you're not lucky at any age getting lyme... but better sooner than later for sure! I totally get where you're coming from though. I always wondered why everyone...
Some back story: 23 years old, came down with debilitating symptoms out of nowhere last september. 2 months in, diagnosed with lyme disease by first doctor based on a positive Igenex blood test. Took...