Thank you Traveler and PeteZa!...
:mad: So it's been quite some time since I've posted here, while I have kept up with threads, I just haven't had much time to reply. So much going on. Until October, I had been completely symptom...
Hi there, I'm in CT as well, I have a great ND and LLMD as well, although I'm not sure either of them are in the area you're looking for. Woodstock would be about a 45 min drive to my LLMD, and maybe...
I believe that you are symptomatic all the time, but the flares are worse. At least that's how it is with me. Unfortunately that cycle coincides with my menstrual cycle as well, or so it seems, and...
desperate4dx, I'm so happy you had a good experience. Could I email you for the names of the 2 docs in CT that he gave you?...
sueg, Yep, I do believe it's Lyme, it's one of my biggest complaints, some times I can't hold a pen or pencil to write, it hurts so bad. Not sure what I can do to relieve it, be open to suggestions....
Hello and welcome, That's the cocktail that I'm on. I was switched from Bactrim to Rifampin just recently. And I have to say it's working beautifully. I don't have many side effects, if any at all...
I haven't seen many, however, a friend found 5 on her dog.... The one I did find, was on a blade of grass, I set the lil *&%^ on fire!...
teragram, I'm very sorry that you're going through all of this. It's OK to be panicky and anxious, you've got a huge decision in front of you. I think sometimes for Lymies, normal, every day kinds of...
Thanks for the response... I thought darker colored clothing attracted the sun? My doc has always told me light colored, loose fitting clothes. Anyways, I'm not sure I follow your last paragraph, my...
Does having Lyme and co make us extra sensitive to the sun? I know that certain meds can cause problems with prolonged exposure, and that Bactrim is one of them. I spoke with my LLMD last month and...
What LymePickle said.... Lyme is no joke, the sooner you start treatment, the better off you are....
soscared, I'm very sorry that you're feeling this way. Please feel free to email me if you want to chat....
Hi Caralily, Welcome to the forum! You should check out the New To Lyme, Start Here threads, they are very informative and helpful. I would definitely see an LLMD. I'm in CT too... where are you? If...
Maine, I've got similar issues, though I'm attributing them to seasonal allergies as I drove through a cloud of pollen on Mother's day... BOOOO! You should def get checked out if you've got the fever...
I see mine every other month, and we have a phone call appt on the months that I don't go to see him. I see my LLND, whenever I feel necessary but at least once a month. She is very accommodating....
Same as summer! I swear I was shaking my head at the title of your post, but I'm dying here! Too funny! Definitely needs to be shared....
I was on this cocktail for 3 months. Herx, Herx, Herx! Finally I was told to detox and started a new mixture. I have to admit, that while on the mixtures of these meds I felt like crap, afterwards, I...
Wildlife, I'd love to attend an event. How do you find out if there is one in your state? I'm in CT, you'd think we'd have them all over the place!...
I tried a lot of things and nothing helped. My LLND tested my thyroid, and it was on the very low end of normal. My LLMD prescribed Armour Thyroid, and since taking that regularly, I've noticed a big...
Thank you so much for sharing! I needed this today as well. Congratulations on the new baby! God Bless....
mommy, drinking, or having a few drinks was one of the first things that made me realize something wasn't right. In fact, when I talked to my LLND about it, that's what led her to believe I had Lyme....
Yes, I have this off and on. It's miserable. Sometimes I feel like I'm sunburned all over, other times it's certain spots of my body. I haven't found that much relieves it....
My prayers are with everyone in Arkansas! Such devastation....
Freebird, Are you able to walk? Last night I couldn't... it was horrifying, I couldn't even stand up in the shower, my husband had to dry me off and get me dressed. I was better when I got up this...
For a while now I thought I was doing much better, my fatigue has improved tremendously since adding Armour Thyroid to my cocktail. My pain level was about an 8, had decreased to about a 4. Things...
Wilcox, Hi and welcome to the forum! I hope that you have taken time to read the New to Lyme Threads, they are very informative. We cannot give out our doctor's names so you'll have to email someone...
yep... i keep track of this, though i don't have to. My pain and fatigue is so much worse during this time, started building up yesterday, I'm not even sure I can finish the day at work today....
I wish there was a like button! Love this! I don't love that you're suffering, but I love that you are determined to write a success story! Do we all get a copy? Some days are so tough, it feels like...
Yes, I have this problem, and it started since beginning treatment. It's quite annoying! I've never liked having anyone in the kitchen helping me, but now I have no choice. I cannot open bags, jars...
Tbrown, How long have you been on the Mino? It's known for dizziness as a side effect. If you've been on it for quite some time, it might not be that. Are you detoxing? Make sure you're detoxing!...
I almost just cried (i've been having a hard time controlling this lately! Good for you Traveler! You are such an inspiration and have such a wealth of knowledge. You'll be missed. I wasn't here that...
Garden, This is great! I will start emailing when I get home. Thank you very much for sharing! - Laura...
MarieLS, I was going to mention the same thing. I almost always have a sore/irritated throat, and I know it's from postnasal drip. I try to make sure that I drink extra fluids when it happens,...
Louise, Hi, sorry to hear that you're feeling the same, and sorry that I missed your thread! I could have just jumped on there. My LLMD doesn't suspect Bart, but I'll talk to him this afternoon. Can...
I always use CVS, I've never been questions and no one has ever commented. It isn't their right to know the diagnosis or what you're being treated for. If they make you feel uncomfortable then...
Thanks for the response. I was wondering if it was a herx.... then again being a woman, it's hard to tell if it's Lyme, PMS, hormones, whatever... It's just never lasted this long before. It's...
Hi there Elleon, I too stopped my abx for awhile, I was just feeling so worn down that I couldn't stand it. I have a phone call scheduled this afternoon with my LLMD and plan on talking with him....
Revive, My husband and I were talking about this last night. He hasn't been tested, but has some symptoms, he had the rash and was treated, but admittedly didn't take all of his doxy when 1st...
Hello everyone, Just wondering if anyone noticed depression worsening after starting treatment? I know that we're coming off of a long dreary winter, my Vitamin D has been low, so it's I've been...
Jasmine, Are you seeing a Lyme Literate doctor? When I first began treatment, my western blot was considered negative for Lyme, I had a total of 2 positive bands on the IgG and 1 on the IgM. I had...
I agree with Marie on this one for the most part. Though, I found a private group "Lymies Lyme Disease Support Group" There is no arguing or fighting or rudeness that I've seen yet....
Drew, Most of us have been sick for a really long time, and most of that time was undiagnosed. It's believed that I've had Lyme since I was 15, which means I've been sick for 23 years, finally...
Healing, Thanks for the reply. I've believe the current stresses are making me anxious and depressed. I say this because prior to this situation. (A really long story involving my husband's crazy ex...
soscared, I'm so sorry to hear that you are feeling this way. I have these days too, sometimes many days in a row. I think the depression might be part of Lyme, or just a side affect of chronic...
Anyone have any suggestions on natural/herbal remedies for anxiety? On top of having Lyme, I'm going through some pretty stressful crap in my personal life. Normally I can handle the stresses of...
cppoly, I'm getting there, I think... Our doc has made some changes in my treatment, going after the co-infections. I hope that you like him, and that things are going good for you too!...
Lyme babe, I am on tindamax, azithromycin, plaquenil, Bactrim for abx. Supplements are magnesium, vit d, multi vitamin, probiotic, Japanese knotweed, cats claw, and artemisinin, I also take medcaps...
Aww bluebyyou, that's great to hear! It's definitely inspriational! I can't wait to have the energy to do some exercise again, even if it's just light stuff. So happy for you!...
Elleon, I almost start gagging looking at the bottles. I know I need what's in them, but OMG. I need to find a way over this hurdle. I'm just a huge mess in general lately *sigh*...