I have been on Celebrex for a few years now (even before Lyme diagnosis). It has kept my inflammation and pain levels down fairly well. About a month ago, I went off of it (long story I won't bore...
The "New to Lyme" thread at the top of this Forum offers some great resources for finding drs, but I have found it easier to just connect directly to other people in the area via joining your state's...
I spoke with my dr. about these things, and he said the majority of it all was a herx. I stopped all antibiotics for two days while taking benedryl and the headaches/stiff neck/sinus pressure/teeth...
Pirouette-- Is Difulcan an anti-fungal in those regards? I think of it mostly for my stomach, but maybe it goes system-wide. Even with the risks involved, I have chosen to go the antibiotic route...
Looking back, I wish I had paid for the IGENX Western Blot and then had taken those results straight to a qualified LLMD. Side note: You have to research the LLMD you want to see and check their...
My LLMDs response was to prescribe an ADHD medication. I take one in the morning and one at lunch (or 4 hrs later). So far, it has been helping me reset my sleep cycle almost back to normal, and my...
Teragram (and anyone else)...when you uses your saline mixture, did anything break free? I keep doing sprays and rinses and steam in the face (Lyme brain forgot what it is called), but my sinuses are...
Spoke to LLMD's nurse who said it was mostly a herx (although I still think my sinuses are inflamed, too). She said to take two days off the meds and take Benadryl instead. Then ramp back up. Ugh....
I did not know this. That could explain why I was able to have strep throat twice the summer with no high fever. My temp normally runs in the 97 range, but I think it was 98 during the strep. I guess...
My LLMD wants me to order Tri-Fortify Orange (Liposomal Glutathione & Vitamin C) from Researched Nutritionals to help with detoxing. The only problem is that it is $100 per bottle, and I am already...
I rarely see any other doctors bc they give me the "humph" when I tell them I have Lyme. My pharmacist seems to be the only one that is understanding. Other than increasing my detoxing, any other...
I'm trying not to go to the ER bc of insurance issues, but I will go if it gets any worse. I'm definitely going to call my dr. in the morning. I just looked up Lyme meningitis online. I'm not running...
I'm not 100% sure, but I think it was in UT when I was hiking/camping/fishing in the Zion and Bryce Canyon area. That Summer of 2005, I was taken to a hospital by my boss (bc I was too sick to drive...
I had a positive ANA and high SED rate when my rhuemy thought my symptoms were an autoimmune disease. That was in 2009 when I would have been 4 years undiagnosed. I now think it was from the Lyme...
Per an LLMD, I have recently started taking Ceftin, Azythromycin, Adderal, Malarone and Difulcan to treat all of the different Lyme issues. Now I am having severe headaches and sinus pressure in my...
Not sure if I spelled that correctly. I am sitting at dr. office with my mom begging for her to be tested for Lyme, and the dr. finally agreed to do a Tiger test. WTH is that?!? I asked if it was a...
Sorry you feel so bad. I have a hard time believing 7 months from alcohol, but I would think the Lyme got crazy drunk with you and are now acting out. I'm definitely that way with alcohol and any...
I have a friend that recommended Biotin, too. She has lupus and was told to take that for hair loss. I'll ask about the zinc. I don't think I have a zinc deficiency. I do have a B12 defficiency and...
Ever since I started iv rosephin, my hair has been falling out. I normally shed in the spring, but this is ridiculous. I can feel that it is thinner and see the clumps left in the bath after I wash...
I have tinnitus that got worse when I started antibiotics. Now it has gone from a monotone ringing to cricket sounds. I have neuro Lyme but not Babesia (or at least I was negative for Babesia). It's...
Sorry you are in this situation. My student loan company allows deferments. There was a form I had to fill out, but that was it. Call them and see if they can do that for you. The interest will still...
Any Lymies in Louisiana that would be willing to email me their stories? How did you get a dr. to even test you for Lyme? My mother lives there and has asked all of her doctors, and no one will test...
I meant to add that I have a list of LLMDs compiled from various sources when I started searching; I just don't know which one is best....
Hi BabyJLu, Have your current drs run any tests? Did you find a tick or rash? I live in Atlanta area and have been seeing a dr that treats Lyme (but only under certain circumstances). She is not an...
I just saw in one of your earlier posts where you also have degenerative disc disease. That can cause the leg weakness, as well. I have a few bad discs, too, but the weakness has definitely gotten...
I am in 5th week of abx for Lyme and have extreme leg weakness. I can barely stand on my own and have pain if I am on my legs too long. I have other neurological symptoms from Lyme and just assumed...
I have contacted all of the recommended websites and google/yahoo groups that say they are Lyme support groups in GA; however, no one will respond to me. Maybe they all have Lyme and can't respond....
P.S. I've read a lot of the LLMD articles regarding no false positives and watched the film, Under Our Skin. I am on the list to get the Cure Unknown book from the library (next in line actually). I...
I posted this on another Lyme Forum as well but would like many opinions on this. I know most of us on this Forum are pro-Lyme diagnosis when symptoms are present, but for arguments sake: How do drs...
First off, I am glad I researched what MTHFR means. For the longest, I thought this was a derogatory code word for an ignorant doctor or how poorly one was feeling when they didn't want to curse. Now...
Good ideas, BarnGurl!!...
I'm sorry you feel so crappy. I looked back at your earlier posts, and in my "non-medical" opinion, it sure sounds like Lyme. I have all the same symptoms you do. Is your PCP the same GP that said...
I am still trying to wrap my head around having RMSF for years without the rash or immediate danger of death. I was able to obtain a copy of my RMSF test results today. The IGM was extremely high -...
Inspiredby3, I feel your pain...literally. I have taken a combination of Celebrex in morning and Lyrica at night for a few years now bc the rheumatologist said my leg pain and joint swelling was...
Traveller, can you explain what 30,000 to 50,000 units per day means? I'm still figuring all of this out, too, and the probiotics that were recommended to me just say 1 billion CFUs on the label (and...
Thank you for the info. I've been searching online but am not seeing much about the chronic form that didn't once start out as the acute one. Maybe I had it one time without spots and thought I had a...
What symptoms did you have? How long before they found it?...
My co-infection panel came back today positive for RMSF. Is this even possible? Are there ever false positives? I have been sick for several years with aches, pains, brain problems, etc, but I have...
Thanks for the responses. Verg: after the rosephin, did they try you on anything else that seemed to have worked? I will say that today was my first iv treatment with picc line in, and man, it has...
Any advice from iv rocephin users? I started 1gram iv rosephin Friday for Lyme and have been utterly exhausted since. Someone said sleep means I'm healing, so I guess it is good I take 4 hour naps....
Although I am seeing a lot of bad reviews of Dr. k's practice online. Bummer :-(...
Is there a Dr. B in Asheville that anyone is familiar with? This name was given to me by an organization recently. Was also given a Dr. K in Tennnesee by the same group....
I posted this on another Forum, too. I may just be in pity party mode, so apologies in advance. I am feeling worst of all today. My body aches all over and my bones feel like they want to break....
I was able to get my new tests results back earlier than expected and am now very confused. I had posted earlier that I had the following reactive bands from my first test: 66 IGG 41 IGG 41 IGM 23...
I've never had psoriasis before; but I looked at pictures, and it might very well be a mild form of the pustular ones. I took pictures of it at various stages and will show them to the dr when I see...
Kathleenta, that is exactly what they look like! They are on the top of my right hand, and I just noticed one coming up on my left hand's index finger. No other bumps on my body. I've taken pictures,...
Thanks, everyone. I looked at that site and then googled sites on Lyme bumps, Lyme rashes, flea bites and bed bugs just to be sure. Nothing resembles. If any new bumps pop up, I'm going to my GP,...
They are reddish and look more like pimples. They started out looking like they were fluid filled, but I wasn't about to pop one. The ones that are going away are now just raised patches, although...
Also, the joints on that hand hurt worse than the ones on my left. I especially noticed it when operating my mouse just now....
I started 200mg of minocycline a week ago, and in addition to some nasty side effects, I have these blister-like bumps on my right hand. They started the same time I started the abx. I thought they...