Sorry!! Yes that is the correct link, thanks for letting me know :) I changed it above. Here it is again: https://joeyphoenixblog.wordpress.com/author/joeyphoenix21/ ...
This is chapter 2 of my blog. It tells my story of healing and dealing with chronic lyme. https://joeyphoenixblog.wordpress.com/author/joeyphoenix21/ ...
Awesome, thanks!!...
Thanks Happyjo, well I don't have any legitimate proof that my neuropathy is permanent but it has been severe for two years now despite 8 months of IVIG. I am looking into seeing a doctor to try LDN...
Thanks KYo07 for the support!! I am looking into a few treatments; ketamine and lidocaine infusions. I have a good feeling about this :)...
Hi Janet, Thanks for reading! Unfortunately, those types of procedures are not for small fiber neuropathy, they are for larger nerves. Thank you so much for the support though :)...
Healingwell has helped me so much since the beginning, I wanted to share and say thank you to everyone on this site who has helped me along the way :) After 2 1/2 years of battling lyme disease I...
I'm sure she is! All the best Annette :)...
Thanks for sharing Peteza :) Hope your daughter is doing well! This will actually be my second picc line. The first time around I did 28 days of IV Rocephin and I was symptom free. Should have kept...
Happy Thanksgiving Traveler :)...
Hey everyone :) Wondering for those of you who have had a picc line: how long did you treat with IV antibiotics? Been on orals for two years, made tons of progress but llmd agrees it's time to try IV...
Thanks for the advice Traveler, I will definitely look into carecredit! At this point the spinal cord stimulator is my only hope for pain relief. I understand the surgery and recovery will be rough...
Thanks Traveler! Every time I come out of the woodwork, you are there to make me feel better :) You know, I am going through an extremely stressful time right now, my girlfriend has asked me to leave...
Hey everyone :) Once in a while I come on here to vent a bit and ask some questions. I'm usually just seeking reassurance I suppose. For the most part, after about 2 years of treatment (antibiotics,...
Hi there, Was wondering if anyone here has had a spinal cord stimulator implanted. I have severe burning neuropathy in my legs and feet. I also suffer from thermal allodynia (temperature changes...
Anyone on here with psoriasis ever take plaquenil? I have mild psoriasis and will be starting plaquenil even though it is contraindicated. It can cause a flare up with people with existing psoriasis....
Thanks everyone for the replies!! I have a new treatment plan which includes Babesia treatment as my llmd agreed that an asymptomatic form of babesia is a definite possibility and I have nothing to...
Thank you for the replies jrpsf and cd3764 :) I have not tried low dose naltrexone, but it is definitely a consideration. I'm on some opiates now which cannot be taken with LDN but maybe in the...
Hey everyone, It's been a while since my last post, feeling frustrated and didn't know where else to turn. I've received so much support here in the past I felt inclined to return to vent a bit. Long...
Still having the headaches, unfortunately...They are so weird and scary, hopefully they go away soon :( cd3764 thanks for the support, hopefully you continue to feel better!! jrpsf thank you for the...
I am detoxing in my infrared sauna every day amongst other things... The llmd Mentioned it could be a herx. If so, I haven't herxed like this in 9 months. The lyme has been under control for a long...
I've been treating for a year and recently started Augmentin. Over the past couple of weeks I ramped up to 1000mg of Augmentin, 2 pills twice a day. As I got to the max dose I started getting severe...
Hi Vickie :) Thank you very much for the reply. I appreciate you taking the time to write so much useful information for me. I am seeing a neurologist in CT next month who specializes in neurological...
Hi there :) This is my first post in "Chronic Pain", I come from the "Lyme Disease" forum. Does anyone out there have small fiber neuropathy that they got under control? I have had severe burning...
Thanks guys!! That would explain why my burning has gotten worse and worse the longer I treat with antibiotics. I am going to completely ramp up my detoxing routing starting with a binder and diet to...
Sorry to hear you guys are having the same issue even though it's comforting in a way to know I'm not alone. I've seen two neorologists and tried many things including neurontin, lyrica, cymbalta,...
I have it with bed sheets too!...
For the past year wearing pants has been really painful. It's getting to the point where it's unbearable. It feels like burning, pricking, pins and needles. Almost feels like lesions or that I have...
Wow thanks for the info! Glad you're doing better!! :)...
Hahah me too!...
Thanks traveler! The fun never ends ;)...
Oops I do thanks! So, you've been there?...
Thanks for the reply tickbite :) Luckily my cramps have calmed down quite a bit. I've scaled back on my antibiotics and started drinking lemon juice and cider vinegar before meals. I think it was low...
Looking into getting a second opinion? Has anyone been here?...
Thanks Sarah, I am :)...
Thanks everyone for the replies :) I'm thinking it might be low stomach acid. I did a test this morning with baking soda and water to see how long it takes to burp. Going to try apple cider vinegar...
My llmd recommended IV antibiotics which I'm on the fence about. When I asked her about "natural remedies" she said no. The problem is, I don't know how much better I am because I don't know if my...
After 8 months of antibiotics I started getting really bad cramps in my lower abdomen and burping a lot/feeling full. I've tried: Prilosec otc Zantac Tums Metamucil More probiotics Apple cider...
Thanks Traveler!! Sorry to hear you're dealing with another infection! Sending healing vibes your way for a speedy recovery :) Louise thanks so much for passing that along! So kind of you to take...
Thanks Louise! I am in Mass actually :) I wonder who that neurologist was? I saw a neurologist last week in Boston and he wouldn't perform a skin biopsy on me to figure out if it was SFN and said...
Thanks Elmesanoya and Traveler! This did seem to surface around the time I started to treat bart with rifampin. Has not gone away with the rifampin treatment at all. I'm switching to bactrim now. My...
I've been on antibiotics for 8 months now and my newest symptom is burning/cold/tingling feet. I never felt this prior to or during treatment until the past few weeks. It's constant, from the moment...
Long story short: I started rifampin for bart (clinical diagnosis) 3 months ago because of severe burning in my legs increasing with lyme treatment. I was given neurontin 1200mg/day which has not...
I've been drinking lemon water every day for 7 months now and recently my stomach is not happy. I've been getting heartburn and stomach cramps. Is there something else that's less harsh? Any reply is...
Congratulations to you lyme runner and bluebyyou! Wishing you continued health :)...
Thanks traveler, as usual :)...
Thanks Sickiam :) Glad you're doing better!!...
Thank you Inspiredby3 :) Detox baths definitely help, I agree!...
So sorry Lousie74!! Wishing you relief soon :)...
I've had burning in my thighs and legs now for 8 months. It was getting better during the first few months of treatment, but as soon as I increased my antibiotics it got much worse. My llmd now...