Exhausted...Where are you from ? Did you get bit in KY? I am close by...just curious!...
I have neuropathy on my tongue in my ears and my feet and hands. It was BAD in the beginning and is why I sought out help! After a year of treatment it comes and goes in small amounts but nothing...
The birth of my daughter! I came home with hip pain that I thought was related to birth....although it didn't hurt while delivering. A few weeks later I had burning feet, inner ears and tongue! My...
Did your results ever come in? I had been sick since the birth of my daughter. Two years later I got tested: IgM **34 IND **39 IND **41 ++ 66 + IgG **31 IND **41 ++ 58 + My llmd thought I was...
I consider myself in remission. I feel 98% better with just a few twitches left. My question is about the nerves and how they work. I notice I still do have some burning/numbness that comes and...
I am happy to say I have been off of abx for two months now and have been feeling wonderful! Back to working out and acting like a mom of four should be ;-) I started to notice I was getting a little...
Anyone else?...
Cyst buster...flagyl was horrible!...
I am to start this protocol soon and I wondered if anyone else has had good experiences with it. I tried flagyl and it went straight to my nerves!!! That scared me and now I am hesitant to start...
Thanks guys! I took rifampin very very slow. One day I upped the dose and broke out in fever and sweats! I still feel like full dose is too much but I want to kill the bugs! I am determined not to go...
I have been in treatment for 9 months now and rifampin/zith combo for about 3 months. Why would I all of the sudden be anxious? I feel better in SO many ways and then this crops up. Before I started...
Has anyone had a negative result, pursed treatment and got better? I just wonder if maybe it isn't lyme but some other crazy bacteria? Has anyone else thought this? I still haven't told anyone that I...
I was over all negative but I had IND 31,34,39 and 41+ I am treating and feeling better!...
Just wanted to let you know I was in the same boat! I think I got bit early on in pregnancy - I thought it was a spider bite. My pregnancy was somewhat uncomplicated. The only thing that was...
Just bringing back an old question of mine. Anyone else out there with IND bands and a 'negative' test result? I would love to hear more stories!...
I second what everyone else has said. I have spent so much money and time on symptoms that keep cropping up when all along I should have been treating lyme and seeing an LLMD. With every symptom...
Seems like that's all I have been reading. =( I need to start it but I am scared to death! I would like to hear if anyone out there didn't have the horrible side effects with Rifampin. Also, how...
No, not yet. I really didnt think I had babiesia...oh this disease is so complicated!...
I have been feeling So much better on Zithromax and then BAM! Now I have chills without fever. I feel them mostly after I have been outside or have been sweating. What's up? Am I becoming toxic?? Any...
I just had some labs drawn and noticed that my eGFR should be 60 or greater. Mine came in at a 59. I know that is only one point below normal, but should I be worried or chalk it up to just another...
Just curious as to how many of you have breathing issues. My started soon after I started taking Ceftin. I'm not sure if it's a herx or a manifestation of a co infection coming out! Its not like I'm...
Hey Shadow! Did you find out if you truly have Lyme even without positive CDC igenex test?...
I wish we could private message in this forum, but I was reading some of your old posts and feel like we have A LOT of the same things going on minus the pancreatic issues. How are you now? Did you...
Is your daughter better after treatment?...
Hi everyone - I recently had the Igenex testing done and here are my results: IgG **31 IND **41 ++ 58 + IgM **34 IND **39 IND **41 ++ 66 + Igenex/CDC negative ;( What do you all think? I am so...