I agree. Mold exposure and especially current exposure can do a real number on anyone and especially if you have a history of Lyme and chronic illness. I am really sorry that you are dealing with all...
Yes I did, thank you both :)...
Hi destiny I just wanted to say that, to me, your original post did not at all sound weak and pathetic. I think that the way you were feeling and what you wrote is not at all surprising given what...
Thanks! I think that my email should be visible now...
Looking for a doctor who has significant experience with both tickborne diseases and MCAS — any suggestions? (Experience with gut health, POTS and someone who has general sharpness would be good too)...
Saraeli - I am still quite sensitive and reactive as far as MCAS goes. So it’s definitely an area that could use some more support. I’ll look into retraining the limbic system and lymphatic...
I’ve been slowly navigating my way through the MCAS wormhole (ie, the challenge of identifying all those triggers and the fact that there are soooooooooooooo many ingredients to sort through in...
Thanks everyone for the responses and feedback. It’s helpful to know more about this. IV is definitely not my first choice of treatment and in some ways I feel like I’ve been putting it off for years...
Did you get any insurance coverage for the port? If I end up doing IV that would be my hope — to use a port over the picc line...
When you were on IV therapy was it with multiple antibiotics? Or, do you remember the protocol you were on?...
I’m not sure that I have any good solutions to recommend but I do remember a night back in 2015 when my light sensitivity was at its worst (but I didn’t know it at the time) and I was driving across...
Do MDs have the privileges to prescribe IV over state lines? Has anyone done this or experienced this? I’ve had a hard time finding an answer to this question. Also, what experiences have people had...
Thanks Garzie for the article and everyone for writing on this. Since some of you were commenting on dapsone dosing I wanted to include the following: 50 mg dapsone daily on a lifelong basis with...
OK, good to know. It definitely looks promising. And I see there’s a lot of older posts about D-limonene as well. I hope I can tolerate it with the histamine intolerance ( Citrus and all), probably...
Thank you for all the questions and recommendations — My acid reflex gets almost instantly better once off of oral antibiotics though I have also made some changes to things like : eating and diet,...
I am dealing with acid reflux from oral antibiotics (again!) and think I need to drop 2/3 of my protocol to give my gut a break. I’m looking into herbs again… did Buhner herbs in the past but had...
I don’t know anything about those skin issues resulting from Disulfiram use (sounds really awful though) but I did have to suspend disulfiram early because of peripheral neuropathy. My doc had me up...
Yes that video is helpful, especially combined with what others have said in this thread. Thanks for posting it again here....
I’ve also been wondering about this — the difference between normal stretch marks and Bartonella streaks/ striae/rash (or whatever they’re called) Like you Traveler, I am about as pale as they come...
Curious what experiences people have had with pulsing antibiotics for Lyme. Has anyone done a protocol similar to what Dr. SP has done with oral antibiotics and being off everything for periods of 2...
Thank you Girlie. And thank you both for the recommendations. Girlie— are there any treatments that you’ve done with Dr. J that have been especially helpful? Just curious. And has anyone here been a...
Hi all — I’ve been dealing with an awful case of Lyme and Babesia for close to a decade. I’ve worked with several different ILADS doctors over the years and have tried many treatments — both...
Thanks! And for probiotics I am taking HLC intensive formula and saccharomyces boulardii....
Hi all, I am new here and looking for recommendations for Lyme specialists in Maine. Bangor is the closest city that I live near but would be grateful for any and all suggestions. I only got...