Tumeric capsules made all the difference for me! Welcome to the Herx Club. :/...
My hubby and his brother both have this issue and do not have Lyme. Is there other symptoms, or just looking into the sweating? There is a thread at the top with the list. A bullet list for lyme...
I have mainly neuro and foot pain and am starting to suspect batonella too. Most of those symptoms have become much worse on Doxy. I'm loosing my mind! Adding grapefruit Seed Extract as the buster...
I know so many people with Alzheimers. .. Many lived on the East Coast in the 80's/90's. It makes me so sad and sick with what is likely Bart Rage....
Girlie, I am right there with you! Bit June 2013, just starting treatment. Keep on it! I started at 100 mg twice a day and just upped and herx ed more. You can start low and build up. Doxy is some...
Light sensetvity Pain behind eyes Double vision - like suddenly I can't focus them Eyelid twitches...
Just in case my doc drops me when I tell him I suspect Bartonella. I am worried about lapsing in treatment. Thanks in advance. I have the name of a doc in LA. But I am on Vegas with family in SD I...
I started on 100 mg 2x daily and upped to 300 mg daily. I take two then one later and switch. So two doses of 200 and then two doses of 100 over a two day period. It can be rough on the tummy,...
First thing in the morning, I take my probiotic drink and start drinking lemon water. I generally don't eat breakfast, but maybe a small snack about an hour after the probiotics. Two hours later, I...
I thought about doing that at one point... Just lying and saying there was a tick and a rash to a new doc. Sad, but true....
All this talk of walking... I just realized I went to Disneyland 3 months post infection. No wonder I kept saying my favorite ride was the bench! I remember also having to go back to the room for...
I was unfortunate enough to stand in an ant hill during the trip to TX where I contracted Lyme. The bites blistered like pimples at it was super gross and painful.I wonder to this day if it was...
I started doxy last Sunday. Herx started the next day and lasted until Friday. Epsom salt baths, detox tea with milk thisle and ginger, tumeric capsules, and probiotics. It's a juggle to get the...
Saw my doc yesterday and the first thing out of his mouth was that we'll probably have to do a 2 week IV treatment. Then he asked how the week went. I recapped each symptom and he said, "That's Lyme,...
To clarify - do lid the brain scans which were all clear 6 months out from infection, but stopped there....
My neurologist said the Summer Flu symptoms were the deciding diagnostic factor. As you said, other neuro diseases don't usually start like that. She ordered the brain scans and then wanted to do a...
Anyone here use ceftriaxone or doxy through a PICC? Anyone think I'm crazy for "wanting" to go this route?...
Sorry to hear of your brain pain. I haven't had the specific feelings, but I get a lot of weird sensations in my brain itself and in the brain cavity. I do have the movie retention issue, though....
7 out of 10 brains with Alzheimers listed as cause of death had Lyme in their brain.... With no Lyme diagnosis....
I agree! The word horrific is honest, and it's not at all easy to go through. We come here to complain because we can. And we know we will be met with understanding and compassion. No one here is...
I will keep that in mind, for sure. My GP has seen me through some tough stuff already. He knows me well enough to know that I do my research. This will not be the first time I walk in with a stack...
"Usually only to die" - you made me seriously LOL outside at 2 am with that one! I am here because of feeling terrible on amoxicillin. It's being used as part of my diagnostic now. I am now on...
Hubby says his personal Lyme Brain favorite is when I ask a question, get an answer, and 30 seconds later ask the same question again. Usually to the tune of: "What day is it?" "Sunday."Oh....
1 year out "undiagnosed" neuro lyme and pushing for treatment after a suspected herx on amoxicillin in early June. Started 100 mg doxy twice daily last Sunday and had a rough week full of random...
From what I understand, a herx is specifically from the toxic effect of the dying bacteria. So, it doesn't really matter if it's the immune system, the drugs, the herbsals, or chicken soup - if it's...
I just stated taking tumeric capsules this week and it has already made a huge difference in my joint pain. Major, noticeable difference. The doxy was really kicking my butt. Thanks to the...
I also confuse off and on frequently and have recently been banned from cooking on our gas stove unsupervised for that very reason....
I get that completely! The main spatial issue for me is going to set things on a counter or table and missing completely. Between just plain dropping things I'm holding for no reason and dropping...
The majority of my symptoms are neuro and can be so scarey and frustrating. One of my continuing symptoms is time loss. I can stare off for 2 hours and it feels like 5 minutes passed. I have a lot of...
I'm in Vegas! There is NOTHING here....
Thanks for the advice! I'm seeing my doc on Monday and bringing in pages of research he should read. I went ahead with my normal regimen for today but plan on taking two at once until I see him...
Crap....
I get that completely. After finding out what can happen if I don't get answers and treatment, it was the thought of being my best for her that got me back on track. <3...
Not meaning to hijack a thread here... Hello dawnn -glad you are on top of it early for sure! If I am 1 year out with neuro and have been given 100 mg 2x a day, should I be taking 200 1x instead?...
Last night after three days in bed, my daughter came to me and cried. She is a very emotionally intelligent 6 year old and has the makings of a future healer. Previous to Lyme I suffered from a major...
Just read a tidbit in another thread and my doc gave me a hefty shot of antibiotic, antihistamine, and a steroid anti-inflammatory before giving me 30 days of doxy following an assumed herx on...
For me, sometimes it feels like there is a cloud where my brain was. Which is weirdest because I can feel where my brain was/is. Sometimes, it feels like that cloud is trying to push out of the top...
I'm in Vegas. Don't think there's anyone here. My closest place to stay would be San Diego for an LLMD. That I could do, not sure about afford....
Thank you! The amoxicillin herx was bad, but luckily I am prepared for the doxy. From teas to herbal capsules to the salt baths, lemon water and probiotics, I am hanging in. I am on day 3 in bed,...
LOL This took me 2 hours to write. Sorry for the long read. It's hard to get thoughts out....
I don't know where to start, so I guess the beginning is best. This week last year, I went to a family reunion/vacation in the Houston TX area. I am a born and raised Las Vegas Native, so Texas has...