Hi, I've been on rifamptin for Bart for a while now and, yes, my insomnia is worse. It kinda comes and goes but my anxiety levels have gotten much better since I began treatement. Bart is a stubborn...
Hi guys, Sorry I've been out of the loop for a while. I fractured my tibial plateau in April and have had to focus on recovering from that on top of Lyme. I recently had more blood work done and...
I'm following this thread! It's one of those things they don't tell you about with Lyme....
Hey sweetpeaisme, I had the same thing happen. I caught a bug a while back ago even though I was on three antibiotics and immune system support. My LLMD chuckled and said "Medication doesn't make you...
Hi, At my house we usually have oatmeal sweetened slightly with a little pure maple syrup or seasonal fruit with chopped almonds. A couple of eggs from our hens or a spinach omelet are other choices....
I agree. Most of my Lyme symptoms had gone...about 80% when my Bart symptoms reemerged. It's definitely like spinning plates!...
It gets better! My legs were so weak during my first few weeks of treatment that I could barely walk. I also had so much muscle pain in my legs that I had a limp for a while. It does pass! Be kind to...
Hi, Relapse can happen at any time. The important thing is to be aware of changes in your body. I was first diagnosed almost 25 years ago. Over the years, I had times of stress and would get sick. I...
Hi, One of the things you have to remember is that your anxiety is internal. No one else can really see what's happening or even realizes that you are having difficulties unless you tell them. I used...
The fatigue does get better but I still have some and have been on rifampin for a while....
Margaret, I have the exact thing you are talking about! I swear, the next time you are passing through we should meet for coffee. I live about 30 minutes from Chapel Hill. When I'm having a rough...
Hey Margaret, I'm pretty sure I see the same LLMD as you do. I think things are quickly coming to a head with her receptionist. I've had problems with her not faxing lab orders, not following up on...
I am positive for ANA. Going back for testing this week after 7 months of treatment....
I'm up to a scoop a day. My job has me going in and out of 32 public schools on a regular basis and I've managed to avoid the flu. I did catch an upper respiratory virus which lasted 3 days....
Hi, I live in the same area and found my LLMD through this message board. She is in Chapel Hill and is wonderful! Send me an email and I'll give you her contact info....
Hi, My husband used to do renovation work for a living including mold removal. We had the same problem in our bathroom. He used a 50% bleach and 50% water spray to kill the mold and then sealed the...
Hi! I was first diagnosed with Lyme 25 years ago. Back then my tests were "borderline" positive. I was in and out of hospitals for over a year before my diagnosis and treatment with three weeks of...
I have this too! It is by far the freakiest of my symptoms. I put my hands on my husband's neck to cool him off when we were picking blackberries this summer. I second the heated mattress pad. We...
Man..the things we go through in treatment! I have been there teragram! Magnesium and lots of water have been my go to. I did get super desperate and tried an over the counter laxative once. It's not...
I just finished up 6 months of taking 300 mg of Rifamptin twice a day. My LLMD had me take milk thistle the entire time and I had no ill side effects. She also had me do monthly safety labs to keep...
My LLMD has recommended Slippery Elm for tummy trouble related to antibiotics. I've had to take it the past few days and it's really helping. Just be sure to take it either 2 hours before or after...
I have been on Monolaurin for over a month now. The herx can be bad so start slow. I started with one pellet a day and gradually increased it over time. I'm now at 3/4 of a scoop in the morning. LLMD...
Thanks guys! It does. Some clearing of brain fog would be nice! I'm in my last 3 months (hopefully) of oral antibiotics and then will be shifting to herbal treatment if everything goes well. I d/c my...
Hi guys, Has anyone had Malarone prescribed for Lyme? I'm about 80% better and my LLMD is switching out my Rifamptin for it. How does it help Lyme? My sister had a bad reaction to an antimalarial...
Hi, I just started taking monolaurin a few weeks ago. My LLMD warned me about the possibility of herxing, so she started me on one pellet a day. I've gradually increased my dose to 10 pellets a day...
Hi, I had already started grad school when I was re-diagnosed. I had Lyme when was 15 and thought I was cured. Surprise! At the age of 43, I don't want to stop going to school. I'm afraid I wouldn't...
Hey, So sorry got bogged down with the end of the semester in grad school and am just checking in now. Yes, I see Dr. F in Chapel Hill. I live within 45 minutes of her office which is really nice! I...
I knew my life had changed when poos became a hot topic of conversation!! My LLMD suggested I use magnesium when I have occasional problems. I stay on a really good probiotic. It's about $17/month...
So funny...I'm sitting in front of the fireplace now with two pairs of socks and wool lined slippers on. I get super cold hands and feet occasionally, so much so that they ache. We have an electric...
We have a little homestead with a large veggie garden. I couldn't give up gardening! We use organic methods and all natural bug spray. We also have guineas that patrol our land. They eat up to 10,000...
My LLMD recommended it and I'm ordering it tonight from Amazon. She said begin taking a very small dose and work up to a full scoop. She doesn't want me to take a flu shot since my immune system is...
I'm currently on Rifamptin. I take it every day, no pulsing. It has really helped my symptoms. My feet no longer hurt and some the sensations I experience which can only be described as "raw nerve...
I see her too! She's done a fantastic job with my case and has a ton of knowledge. I love how she combines conventional with herbal treatment....
I had pain in my feet and tested negative for Bart about two months after I began treatment for Lyme. My LLMD went ahead and began treatment for Bart based upon my symptoms. Let me tell you, my foot...
I had peeling skin on my hands and feet which has subsided with treating Lyme's and co-infections. My LLMD said it often accompanies autoimmune disorders and is not uncommon with Lyme....
Hey guys, What resources have you found for inexpensive gluten free products? I have to share that I went shopping at Aldi this week and they have a ton of GF products that cost about 1/2 of what I...
I hear ya! I've been on antibiotics since June and I've had stomach issues the past few days. I've developed a strong gag reflex so it's no fun when I take my medicine. Now my appetite is weak and I...
My joints have started popping since Lyme as well. My knees, shoulder and elbows do it all the time. Thanks Georgia Hunter for the info!...
My LLMD just recommended I start methylfolate and said it can even be found at Whole Foods. I haven't gone shopping there yet but plan to next week....
Hi Marchcat, I did the exact same thing when I was diagnosed at age 15. They were throwing so many antibiotics into my system blindly that it completely tore apart my stomach. I remember my shoulder...
Thanks guys! Like I said, I've really enjoyed having a few days of being the old me after who really knows how long of being ill. My hubby is all smiles and our fur and feather babies got some much...
Hey guys, Have to share a quick update. I had heard that after a few months of treatment including medications, supplements and diet change that I would should start to feel better. I'm excited to...
Hi, I had the same thing happen. I was diagnosed and treated 25 years ago when my symptoms returned including arthritis like symptoms in my hands and legs. Please get to a LLMD. My GP tested me for...
Hey guys, Just checking in to see if anyone else has swelling of the hands as a symptom. It's mostly in my knuckles on my left hand and comes and goes. I have noticed increases swelling when I eat...
Twenty five years ago I had at least six different specialists at some of the best medical hospitals in the United States confused. I spent a year in and out of the hospital before my little hometown...
I had the same sensation right after I started antibiotics. It lasted for about five to six weeks but I'm eight weeks into treatment and it is gone. Definitely step up your detox routines. The detox...
Don't sweat it. I got asked the same question several times prior to my diagnosis and treatment. I was retaining a lot of fluid due to the systemic inflammation I had. Turns out my kidneys and liver...
Hi guys, I saw this and am so excited I had to share. I loved, loved, loved my Artisan Bread in Five Minutes a Day cookbook prior to being diagnosed with Lyme. Just saw that a gluten free version is...
No worries Traveler! I honestly took no offense. I know you are an awesome resource for folks on this board and have read enough of your posts to know the help that you give to a lot of people. Not a...
Going gluten free, sugar free, dairy free and sweetner free has helped me a lot. Following a low inflammation diet helps to determine what your body is reacting to that leads to swelling and pain....