I was on doxycycline 100mg twice daily that my PCP gave me for approx 10 days and had no change. Then my LLMD upped it to 200mg twice daily and I started noticing symptom improvement after about 7-8...
Thanks Girlie and Traveler. Yep, now I'm officially in the club! Yay me. :eyes: Anyhoo, I do have my next LLMD appointment on Monday so we'll see what the plan is. I'm just nervous I guess. Though...
I am really curious about my results and wondered if anyone on here can provide some insight... Based on some research I've done online about the Western Blot and the various bands, I think that...
Thanks for the responses Girlie and Roxie. I do accept the diagnosis, but I am worried about the future. From all I have read, if I don't kill ALL the little bugs in my body in ALL of their different...
Hey y'all, After 3 weeks of waiting I finally got my IgG and IgM Western Blot results from Igenex. I spoke to my LLMD and he said that even though the results are not postive per Igenex or CDC, he is...
Thanks for the responses. We clean the toilet regularly (every 7-10 days) and this just started happening about a couple weeks ago. I just thought it was weird that it coincided with my ab treatment....
Agree with Razzle 110%! In my humble opinion, your FMD obviously does not know enough about these tests. At the very least he should've referred you to a specialist for further...
Ok. This is going to be a weird and maybe gross question, but here it goes anyways... Lately, in the last week or two, I have noticed that my toilet is dirtier than usual. Specifically, there appears...
Hey y'all, Having a crappy day. Wanted to ask about something... I've read about similar issues before but has anyone felt like concentrating is painful or next to impossible some days? Last night I...
Cool article. Thanks for posting!...
Well if the T shots didn't do anything then its definitely not low-T. I agree with Girlie about the WB test so it is good you already have an LLMD appointment. As far as the depression thing goes,...
Sorry to hear that Akkami. Hang in there. I know its hard dealing with doctors who seem to be uncaring, but maybe they are just totally stumped and are trying to get more info before calling back? I...
Hi Lymetime, Sorry to hear about your troubles. What other symptoms do you have? Low testosterone could be the sole reason for the symptoms you've listed, especially at your age. However, even if the...
I'm interested in a response as well GH since I've experienced the popping joints and joints popping out of place in addition to the headaches and insomnia....
Thank you all for your comments! I truly appreciate it....
Hi kyev, Your post totally resonates with me! I've had the heart symptoms for over a month now in addition to the other "classic" LD symptoms which I've had for 2 months now. There are times when I'm...
I myself cannot resist OJ. Especially fresh squeezed. I used to always ask for the large glass when going out to breakfast and I would always get at least one refill (LOL). Anyhoo, when my LLMD said...
Hi Utahgal, Welcome to the forum! First off, I would encourage you to read the entire "New to Lyme..." thread at the top of the forum. As far as pricing goes those sound awfully high. I am assuming...
Hi MissWic, I am sorry you are going through this right now. The only idea that comes to mind is to induct him into Lyme University by educating him as much as possible on the disease. Does he go to...
Hi Mandi Jayne, Welcome to the forum! If you haven't already its a good idea to start at the "New to Lyme.." post at the top of the forum. I just had the Igenex IgG and IgM Western Blot tests ordered...
Hey LymeLightNow, I am SO SORRY you had to go through all of that crap to get an accurate diagnosis. I'm not a betting man, but if I were I would bet that your Igenex results come back positive for...
Since the topic hasn't come up for a while (that I have seen anyway), does anyone have any personal experience with LD being an STD? I know it's not a popular question, but for those of us with a...
Thanks run26.2. Glad to hear you've got a new plan of action for your ABs. It's hard for non-runners to understand a running obsession, right? They think, "I'd be SOOO glad to have an excuse like...
I second Traveler on that one! I had my wife with me for my first LLMD appointment and we both remembered totally different things (though, I am the one with bugs in my brains, so not sure if my...
Hi run26.2, I would have to agree with achievinggrace. From your posts and what you've done I am guessing you are a Type A personality, which is great, but Lyme is the one thing that MAKES you slow...
I think I was infected while hiking in Lake Tahoe in June by a nymph tick, but am not positive as I never actually saw the tick. I've seen pics of embedded nymph tics and it looks like they get...
Hi flint01, Just want to make sure you saw the other thread and that you know how to go about finding an LLMD or LLND in your area. You actually have a few options to find one local to you: 1. Start...
Hi Gurifis, Welcome! I'm no expert but I think the tick has to be on and feeding from you in order to transmit the bacteria. Was there a spot of blood where the tick was flicked off your skin?...
Hey jfree, I too have herniated discs (3) in my low back and the LD definitely caused an increase in pain. I've had these back issues (ruptured discs, disc herniation, central canal stenosis, facet...
Thank you for this post (or renewing it or whatever its called)!!! I have had several not so subtle hints from my body that my blood was thickening, but wasn't paying attention or putting the puzzle...
Hey Girlie, While I have not been sick for nearly as long as most on this site, I to have issues staying positive. It is EXTREMLY difficult going from a VERY active lifestyle to a sedentary/sick one....
I've been experiencing this in just the past few days but it has mainly involved the joints. On Tuesday it was my right knee and yesterday it was my left wrist. The many and varied symptoms of Lyme &...
Does anyone know why my knee would just "pop" out of place like that? Seems like a weird thing to happen, especially when I was just sitting on the couch with my legs up on an ottoman....
Ok the joints popping thing is freaking me out because I have just started to experience this in the last few days. And yesterday I was sitting on the couch with my feet up watching Life of Pi with...
Hi Megan! I live near Sacramento and know of an LLMD in the City of Sacramento near Arden Fair Mall (not sure if you know the area). Anyhoo, Traveler also has the doctor's name (he's the only LLMD in...
I relate to Girlie's comments. Sometimes I wrote a response and then deleted because I thought I was either unqualified or just didn't have the right thing to say. Now I know better. Thanks Traveler!...
Thanks Traveler... There's something the LLMD said during my appt on Monday that I was hesitant to bring up because I just don't know how likely it really is as I have not read anything similar in...
Sorry Lymecrazed. I should have emphasized that I have not had this for nearly as long as most on this site, but from what I have learned that little Bb bacteria can "drill" itself into any tissue in...
Hi Lymecrazed, First, I am so very sorry you and your family have to go through this. It sure sounds like hell and scary as hell to have your daughter so sick. For me, while I feel light headed and...
At the LLMD office yesterday the FedEx guy carried out 7 Igenex kits while I was in the lobby. Plus the doc said they used to get results within 7-10 business days and they've been taking up to 3...
Yep. I can pretty much guarantee that I will NEVER do that again. I had some toast with my last dose and my stomach seemed to handle it without issue. Another lesson learned. And here I thought I had...
Thanks Traveler. Not sure why the doctors insist on taking it on an empty stomach. It was quite the experience. Don't think I'll be doing that again. I know I shouldn't take it with dairy but what do...
Thanks for the comments! I appreciate it. Just barfed on my way to work this morning. Not sure if it's due to the antibiotics or something else, but barfing in the middle of bumper-to-bumper traffic...
So, I just had my first LLMD visit and I was impressed. He was very thorough in his review and is fairly certain I have Lyme Disease (boo). He ordered the Western Blot from Igenex which will be sent...
I'll ask my new LLMD on Monday to see if he knows anything or if any of his other LD patients experience it. He might be able to provide a reason what causes it and why it manifests in those tiny...
Stiles, It definitely sounds like yours are a whole lot worse than mine. They have started to clear already so my case is definitely of the come and go variety....
Oh, and don't forget to go through the entire "New to Lyme..." Thread at the top of the forum list....
Welcome to the forum Janet! In order to find an LLMD (Lyme Literate Medical Doctor) in your area just start a new thread titled "LLMD needed in (your city & state)" and you will be asked to email...
I just posted back to you on the other thread, but I will definitely let you know once I find out what this thing is. Though, everyone I talk to, including family and friends who have experience with...
Hey Stiles, I will definitely email you later. About how long ago do you think you were bit? My best guess for me (due to a weird bite and subsequent rash, but never saw an actual tick and rash was...