I have Raynauds, for about 25 years now. Can be very painful when going from white-puple-red. Few hints: -extra clothes -avoid cold situations (I have hubby do the grocery shopping- too much in the...
My daughter takes Bactrim twice a day. I cut the tablet in half and give it to her in the am/pm. Her round pill has a score down the middle- where I cut it. My daughter is also on dorxy. I use a pill...
you may want to consider the culture test- Advanced lab...
btw- the 83-93 band has been + on every one of her results over the years. I always feel that when I no longer see that band, she will have kicked this awful disease. Just my wishful thinking....
The only time my daughter received a positive IgG, was 2 months after we stopped a combo of antibiotics due to elevated liver enzymes and some other abnormal labs. It was Nov 2011. In Dec of 2011, we...
I recall being told (not by dr) that band 31 or 34 (have it written down - can look it up) suggests its been at least 6 months to a year. Is that one of the bands? My daughter has had a positive...
Agree to look into PANDAS (PANS). My daughter has lyme, bart, and pandas. She had obvious handwriting issues during one of her flares as a child (b4 I knew about the lyme and thought we were just...
Here is what my daughter's llmd (Pediatric LLMD in CT) has written in a handout: IgM converts to IgG in about two months UNLESS there is a persisting infection driving a persisting IgM reaction. This...
Agree about the vets and pharmacists - really great!! I just cant understand why doctors cant be more open-minded. So sorry teragram. Regarding the c-diff relapses, I imagine you are taking...
The eight known Borrelia genus specific bands are 18, 23, 30, 31, 34 ,39, 83 ,93. 28, 41, 45, 58, 66 are non-specific cross-reacting antibodies. I have been told that 41 band usually is the first to...
Regarding the perimethrin - spraying your clothes, you can also send your clothes to Insect Shield "do-it-yourself" and they will treat it, which last 70 washes (lifetime of the item). I do this to...
My dd's LLMD runs the Bartonella Henselae Igg/Igm from Quest Diagnostics Nicholas Valencia, California. He also periodically orders it through Igenex. Galaxy lab suggests a triple draw, since...
Hi, I'm not a regular on this forum, but thought I would check in and saw your post. My daughter has been dealing with Lyme, PANDAS (PANS), and Bart for sometime now. Bartonella is very elusive and...
summer16- most days I give my daughter 250 billion cfu of probiotics daily. She's had c-diff in the past (b4 I found out about the lyme & bart) and with our new combination and high dose of...
Patty- can't comment on the Bactrim but wanted to mention that I give my daughter (age 11) Klaire Ther-biotic Detox probiotic every evening. It's very pricey, but it's my favorite probiotic. I also...
Carrie- how long have you been taking the Critical Care by Renew Life? I had so much gas/bloating when trying this product - I gave up on it. My daughter had c-diff in the past and she now takes...
Positive ANA is very unspecific. It can be infection, inflammation, or autoimmune driven. My daughter who has lyme & bart had a flair this past fall/winter which included labs & symptoms that...
My daughter has lyme, bartonella, pandas (strep) and has been on abx for quite some time. She recently received a positive culture for borrelia from Advanced labs after a year of treatment :( We give...
Thank you achievinggrace. So the only way to private message is through email? I will check into those links. Thx again :)...
Soulone2Lymie- was wondering if I could get the information as well. I am new here and still trying to get acclaimated. Not sure how to private message yet. Thanks a bunch....