Yes, I had a picc and was getting 2gm daily of ceftriaxone (rocephin) for 9 months....
Thank you! What is the name of the FB group?...
my son is 5 years old and has congential lyme and bart. He is not terribly sick, thank god, but he does show some symptoms. He was on abx for 3 months and was doing great. We got him off of them and...
YAY! I too am doing the BVT route. Could not be happier with my results....
Thanks for the replies. my husband also thinks we need to treat our child ASAP. Chapelle I wrote to your personal email, hope you don't mind. I just need to pick your brain a bit since you have gone...
I just discovered through blood test that my son also has lyme and bart. It is not a shock considering I had untreated lyme for about 8 years when I got pregnant with him. My LLMD also treats...
I think we might have the same LLMD...is he in Malibu?? My guy is VERY forgetful....
Hi everyone! I have been feeling great lately and I am down to just 100mg dox 2x a day! which is amazing considering the cocktail of abx I was on last summer. I am left with tingling. Its my very...
I got a message stating Girlie responded, but I cant see what she wrote?...
I have a strong suspicion my son has lyme. I have had it since 2002 (did not get diagnosed until 2014) and both of my children were born before I started treatment. Well now my older son has a huge...
I am going to my LLMD tomorrow, will see what he thinks. I will keep you all posted....
also found this: "Because FECO is extremely concentrated, it is recommended that a new patient start with a dose of oil about half the size of a grain of rice and wait up to 90 minutes to experience...
thanks for the replies. yeah, it was definitely Cannabis oil, but looking at the label for the oil it also has THC (a very high amount). I got it from a reputable source that supplies it for people...
I am an emotional roller coaster and my anxiety is back. A little background on me. I have been feeling fabulous for months, it's been about 2 weeks since I got my PICC line out. I am just on doxy...
I go back and forth. I really want to get these lines filled, but I am a little worried that since its foreign substance my immune system will go out of whack again. I am just starting to get things...
I have lost so much weight and I am slowly, VERY SLOWLY, gaining weight back. But unfortunately lyme & co. have taken its toll on my face. I have very deep lines and have wasting on my face (my...
Thanks Traveler!!! You are incredibly supportive and a real wealth of information :) Its out now! pretty easy, slipped right out. Now onward and upward...FULL RECOVERY mode...
wow, 16 months! How are you feeling now? Did you make a full recovery?...
I went to my LLMD yesterday and he said its time to pull it! After 9 months of this thing in my arm, its finally coming out. I am super excited but a bit nervous. MY doc still wants me on orals, I'm...
My LLMD gave me a cyst buster in cycles. I was on Rocephin for about a month before I started to take Tindamax. So every 2-3 months I would be on tindamax for 3-4 weeks. I am just finishing up my...
I thought 24 hours? But mine is always delivered with a cold pack and I immediately put it in the fridge. I would call the pharmacy and double check on that....
I knew you would provide some thoughtful information, Traveler! Thank you!...
Now that I am feeling good and hopefully coming to the end of abx treatment, I am starting to think about the future and recovering from Lyme. Is it common to have a relapse years after recovery? Any...
wow, thats a whole arsenal of abx :) lymepickle I, like you, saw improvement every time I finished a cycle of tindamax. Do you follow any specific protocol? or it all just abx right now? I feel like...
Thanks for the feedback everyone. LymePickle, what antibiotics were you on? Did you have a PICC line?...
I am going through this now! My acupuncturist attributes it to my abx use. Been on them for 8 months (daily rocephin, bactrim & doxy) It really does stink. I have the worst allergies of my life and I...
Lymepickle and bluebyyou, so would you guys say your like 95% better? Lyme pickle how long have you been on Abx? And how long have you felt better for? The reason I ask, I think I have had a good 3...
Thanks so much Traveler! So the chronic tonic is the only thing you used specifically for Lyme? Or is it just part of a larger protocol. because that sounds pretty easy, I really would like to move...
Thats what I was thinking too. I knocked down lyme big time, but all of that is not done with out consequence. 8 months of daily abx will definitely do something to the body. Even with all of my...
Yes, definitely want to do that. I will also continue with acupuncture - my TCM doctor already give me herbs/tea to help certain issues. That poses my next question, which protocol to do? Traveler...
I think I am ready to stop abx treatment. But how does one know when they are ready? I feel like my body is trying to tell me something, I have now developed allergies. Something i only had when I...
I don't see how just 6 doses would be enough to tell you if something is working. Maybe I am not understanding what your LLMD is trying to do? My LLMD says at a minimum he puts PICC lines in for 3...
Yes, I got migraines with aura after infusing rocephin. It can definitely be a herx....
I suggest juicing daily, apple cider vinegar, oil pulling. Things that are good for your liver, gallbladder and body as a whole. I also do Acupuncture and take a lot of herbs meant to protect. You...
Yes, I was given bactrim for bart by LLMD. It has definitely helped me....
Simela is right. you definitely want to make sure you are doing stuff to protect the organs, specifically the gallbladder and liver. Antibiotics kill lyme & Co but they can have some serious...
I have made almost a full recovery with the IV - I'd say I am at about 95% recovered. I have had it in for about 7 months and it wast until month 4 that I really saw a change. No more brain fog,...
I don't know what it is, but for the past week I have have the worst allergies of my life. Its like I am around a cat or something (I'm really allergic to them). Do you guys have any home remedies...
Do you have insurance? The reason I ask is because I am also in So. CAL and have a great LLMD in LA that takes insurance. I haven not had to pay more than my copay for my visits. I know there are a...
I have been on a whole arsenal of antibiotics since last August and have managed to keep yeast away. This is what I do: In the beginning I went to an almost all vegetarian diet and drank fresh green...
There is another one my doctor is considering putting me on, daptomycin. I have been on Rocephin 7 months and he wants to change me to another ABX to get any left over bugs. There was a study out of...
Carbomycin, I think that's what he said?...
So I have been feeing much better and normal these past few months. However, I was given a round of tindamax last month and some tingling came on pretty strong. I mentioned this to the doctor and he...
yes, but if you are on oral abx it could make you hyper-sensitive to the sun. But as far as a PICC line goes, you can definitely enjoy the beach. I do everything with mine - just don't get it wet. It...
Good to know! I do think Tindamax was the catalyst for the sparkles/tingling. I am going to up the detoxing and see if that makes a difference. I will keep you all posted!...
One more thing, do the Floaters ever go away? what can you do for them?...
Yes, time to up the detox! I have been pretty good with that, but when i started to feel better, I decreased the detox baths and only wear my foot patches 1x a week. Time to re-introduce hardcore...
Thanks Traveler! yes! would love a weight exchange program, I would love to take about 20 pounds from someone. I am tall and look scary skinny. Not a good look. I have also aged like 10 years in my...
I was diagnosed with Lyme, Bart and Babesia. These are some lingering symptoms: tingling on cheek, crawling feeling back of neck, floaters, crawling feeling outside of left ear (none of these are...
Thanks for the info, Traveler. I do not have a protocol picked out. I need to do some research. Any suggestions? which protocol did you follow? Not sure if my LLMD would be open to it. He is an ABX...