The last couple weeks every once in a while i have been having a new symptom. i recently changed antibiotics. While falling asleep my body jolts awake and is really scary. I just tried taking a nap...
bump...
you can use ILADS physician referral website: http://ilads.org/ilads_media/physician-referral/ i know of a couple LLMD's in nyc but they are very expensive. email me if you want their info....
If you haven't already it may be worth trying to contact the columbia lyme & tick borne disease research center (they specialize in psychiatric lyme although do not treat) and psychiatrist Robert...
Jemsek (i use his name bc he is one of the drs that advertises their specialty & is all over the news etc) is supposedly one of the best but long wait for apt. He is in DC. i called in Sept and first...
Hi catchscooter, i am so sorry you are going through this. I have extreme anxiety and depression that comes and goes and when it comes i feel like i am going insane and losing touch w/ reality. for...
Thank you! I really appreciate the positivity! This dr also has patients come back every 4 wks....
Hi all, i just got back from my apt with one of the well known llmd's and have mixed feelings. I have been out of work now 3 months (treatment fort 1 1/2 years) and spoke to my boss afterwards who...
Awesome, thanks for the link. If you have an iPhone (or maybe even for other platforms) there is a great app called "Find Me Gluten Free" which is basically the same as the website but uses your gps...
Thank you Razzle! Reading the website it is very complicated and her protocols include frequent multiple testing which I don't know how anyone could afford. The two tests she recommends under step 2...
thanks all for the info! i am very confused though after doing some research online on sites like mthfr.net. It seems that there are protocols designed for those with C677T mutation but no definite...
I have Been seeing dr S in Howell nj. I have not found any llmds in nj, ny, or pa who take insurance. Dr S is by far the cheapest I have heard of and he pretty much follows ilads guidelines. He...
I just received my mthfr test results and it says I am homozygous for A1298C- 2 copies of this variant but it did not detect C677T. What does this mean for my lyme and babesia treatment (and possible...
Awesome, thanks Traveler!...
He will not do mold either... does anyone know how I can get tested for this?...
Lymebabe, My llmd agreed to order testing for thyroid levels, heavy metals, and MTHFR but will not order for HLA or adrenal levels. Do you know how i can have these tested without a dr order? Thanks...
email me if you are still looking. i currently see a dr in Howell NJ (central) and know of others....
i figured it out. if you go to my profile my email is listed. thanks!...
How do I do that?...
This is all so true for all of us in some way. My wife and I want to have a baby but that continues to be pushed back. I can barely take care of myself I can't imagine how you all with kids do it!...
Anyone have experience with this doctor?...
Does anyone have any experience with this office? If so please let me know. I am thinking about making an apt. with her and I would love your feedback....
i take trifortify orange Liposomal glutathione for detoxing once per day. Is that good for the MTHFR?...
Lymebabe, can all those be tested in a blood test by an llmd? or do you need to go to a genetics specialist? Reba2000, i feel your pain and fear. I am in the beginning of my legal career and had to...
my llmd has me on 2 pills per day 3 weeks on 1 week off cycle. This is supposedly to keep the babesiosis parasites from getting used to the med. I started the art. while on antibiotics so it was...
you can request llmd referral's from ILAD's at: http://ilads.org/ilads_media/physician-referral and from Lyme Disease Association: http://www.lymediseaseassociation.org/index.php/doctors Good luck!...
Sayyadina, I am sorry to hear you are going through this. I had a period of severe anger where a random comment from someone would set me off. Try to remember that this too shall pass. Hang in there!...
LymeBabe, thanks for that info. I will def look into that and ask my llmd to test me if he has not already....
Wow, I am overcome with gratitude at all the responses this post has received! I did not really think anyone would even read my long post. It is giving me great encouragement and joy especially...
Has anyone out there had positive results w/ malarone? and if so how long and dosage?...
I am currently taking malarone 3 per day, bactrim 2x per day, artemenisin 2x day, and sida acute (Buehner herb). i have been on malarone for approx 2 1/2 months. The herxing i have had with this has...
I am on his waiting list and was emailed the below info from his office: initial consultation appointment is $1200 or $1600 depending on who you see Followups are from $195 to $350 I do not believe...
Thank you for your comment pictureofhealth! We def are not alone. All we can do is keep chugging along! MS in PA: so sorry to hear you are going through this. The whole thing is so confusing and I am...
I am angry, I am sad, I am so damn frustrated but I am starting to accept the situation realizing I cannot change the moment. I am 31 years-old and have had lyme and babesiosis since the age of 5 but...