I let him know and he said not to bother with it anymore, which was a relief. If he had suggested trying a lower dose I would've been rather torn on what to do. So I'm back to my previous med which...
I stopped the sulfazine and I have felt much better. A couple of minor fleeting headaches. I had a rash develop on the back of my hands, along my thumbs, but I also have really bad dry skin in the...
Ill have to double check it but I think its 1000mg 3x a day. I am (somehow) still overweight, despite the crohns, so maybe that's part of why I was prescribed so much....
This is good information, thank you both. Unfortunately for me on the migraine front I have already had a problem with migraines, and they have progressively gotten worse and worse since going on the...
Hello- I'm hoping for some insight on this. I'm cross-posting with the migraine forum. I fairly recently was switched to sulfazine because I've been having Crohn's-related joint pain/stiffness. The...
Hello- Wondering if anyone might have any insight on this. I'm cross-posting with the Crohn's forum, as this is a med I'm on for Crohn's and Crohn's-related joint problems. My migraines have been...
I don't recall coming across heat as a commonly listed migraine trigger, but I'm suspecting it's the case with me. My worst migraines strike during the night and I wake up drenched in sweat, the...
I don't think I can offer much except sympathy/empathy. My migraines can hit at any time, but my worst ones seem to happen around the same time as yours, usually about 4 or 5 am. My suspicion is that...
My arm actually feels bruised now. It seems otherwise back to normal, but when I press on it, that's when I notice. Not having it in my leg, but my leg wasn't bothering me as much as my arm before,...
I think my GI symptoms are a little better. I know from experience things can fluctuate...better for a couple of days, then worse again. The problems haven't been fixed yet...but hopefully this is...
So kindof a mixed bag of things. I heard back from my gastro's office yesterday that my symptoms warranted a sooner visit than the end of the month, if it was still going on. Today I heard from again...
No migraines :) A mild headache this morning, probably sinuses, and again this evening from sinuses and/or slight dehydration. Both cases easily remedied. I discovered tonight that, oddly enough,...
My migraines are almost entirely pain-based. I've had visual disturbances/auras only a few times. They can get pretty bad. I take magnesium supplements and topamax for prevention, which has helped,...
Oh, I should note that at least my work day ended well enough. I teach elementary music, and I used to enjoy it. It's concert season right now, which is high stress. The principal proposed pushing...
I'm definitely going to talk to my therapist about taking things a day at a time. Next appointment Wednesday, so not too long to go on that. I can usually be present in a moment if I have something...
Thanks for the replies. I'm so tired of trying to deal with things on my own. And as great as my friends are, some of them don't really get it. So already this is a nice change of pace. Sunday nights...
This is my first time posting on this particular board, but I've been on a couple of others. I've had depression for years, about half of my life at this point. It has come and gone. I've been having...
Another thing I remembered of note, I have some temperature sensitivities that I didn't used to have. I don't know if it'll point toward anything that I should be bringing up with one of my doctors....
Thanks for the explanation on the joint pain. I think mine probably comes from something else. Although I stumble a little more often than I used to, it's only something I've noticed, not a problem....
It's definitely helpful. I think a lot of what I have read doesn't really address so clearly the situation of not knowing what the problem is for months. The light sensitivity, the ringing in the...
My first suspicion with my symptoms was that the lyme hadn't been cleared up. I got treated twice, in fact, and did have improvement, but the first time it really didn't last. Second time I felt...
Also just thought to add, I've had an MRI because of the migraines, and it showed some spots...which while unusual for someone my age, is not unusual for someone with migraines, regardless of age....
I'm hoping I might be able to get some advice or some thoughts. I've been trying to find out what's been causing nearly 3 months solid of symptoms, but no luck so far...test after test from...
I hope I havent come off as stand-offish in my replies. I haven't myant to, but I think my frustration at my current situation must be showing. Sometimes I feel a little annoyed to go over the same...
I was treated twice for the Lyme. Doxy in May, and had the Herx reaction where I got worse for several days at first before improving. 30 day course. Then in July I was noticing symptoms again and...
I have been to a rheumatologist. There aren't many near me, but he had good reviews. He said Celebrex might help me, but would have to run that by my GI because of the Crohn's. Although I don't have...
I've wondered some about fibro, but I don't seem to have any of the tender points. I think one or two doctors have checked for some, but they haven't specified outright. I've tried to check on...
I got the idea that this might be a good place for me to look for help/support. I've been trying to find out what's been causing nearly 3 months solid of symptoms, but no luck so far...test after...
I know I've had Western Blot. The Lyme Dr did something else...not entirely sure what, but I think it was PCR. When I spoke with his office today and said my symptoms were worse he said definitely...
I've been having worsening symptoms over the past month that are mostly the same as what I was having when I was first diagnosed in the spring (and had a positive blood test back then). My GP was...
Recently had a few days of photophobia, bright lights causing eye pain, and soreness in and around my eyes. Thought it might've been a med reaction, but that didn't seem to be the case, got...
I think it was late December 2013 around Hagerstown, MD, state or national park around Anteitam Battlefield. Unusually warm weather, walking around in the woods with just a sweater on. It's possible...
I have Crohn's as well and also have a problem with migraines (weekly, often pretty severe), which I think is connected to Humira. I'm on Topamax for prevention, but it looks like that's something...
I'm new to Lyme, but I've had severe Crohn's disease for 2 years, which causes inflammation (colon in my case, but other digestive sensitivities, too). So, there may be some differences...I'd go more...
I was seen about the Lyme today, so I'm starting a new course of antibiotics. The tingling has decreased in the last day, and my hunch is that it was due to the increased topamax dose, and I've...
I had a doctor's appointment already scheduled about the return of the Lyme symptoms, so I figured I'd stick with it and see how it went. I honestly didn't expect to get a good response, more of a...
Just voicing some empathy... I've been having problems with spasms/tics when I'm tired, particularly when I first wake up and before I go to bed....
In retrospect, mild fatigue and joint aches. I basically thought I was having a bit of a sinus infection and some aches brought on by my Crohn's disease. It was a couple of months later that I...
Thanks :) I've come across a lot of people complaining about topamax, but even with the incomplete migraine prevention, I've been happy with the difference it made, and it seemed like the the side...
Thanks. I had a look at the "New to Lyme?" thread, but I'll go have a closer look at the detox section. I've been doing a lot of research in general, and a friend of mine had a bad case of Lyme with...
I've been on Topamax for 3 months, 25 mg 2x/day to prevent my migraines. They had become weekly or more, sometimes wouldn't respond to sumatriptan, even a butabitol-caffeine-codeine-acetaminophen...
Hello, I just signed up because I've been looking for some support with my various conditions. It's been a lot to deal with lately. I got treated for Lyme, was feeling better, but the symptoms have...