I've read that a tetracycline like Doxycycline or Minocycline, along with Rifampin, has been used for difficult cases, as well as intravenous Doxy. I have an acute infection from it, having been bit...
When a cyst buster takes action, it can either eliminate the Lyme cyst or open it up to the susceptible spirochete form. Tindamax and Flagyl are said to actually kill the cyst form, while Mepron and...
Its probably hard to go to a Thanksgiving where you can't eat most of the stuff there anyway right? Its kind of like getting used to being diabetic I guess. I just made bacon and eggs, and made...
We're all in this together, working on getting better. I know how it is. Today I'm herxing so bad I had to stay home from Thankgiving dinner at my brother's. I started biofilm busting a week ago,...
I hear its great for liver detox. If you had any problems with candida or yeast before, you should probably take something like caprylic acid or grapefruit seed extract with it, ALA can cause candida...
One antibiotic used long term may not, unless its IV Rocephin, and even then I would reccommend at least a month of Zithromax or Biaxin with Flagyl or Tindamax after. Spirochete conversion to L-form...
This Lyme disease thing is crazy isn't it? Some days of herxing it feels like you can't get out of bed all day, and the days you are okay, some of the weird herx symptoms come out, and sometimes you...
"Tick-Borne Disease Research Accountability and Transparency Act" (AKA Lyme Transparency Act) will set up an investigative committee and a well rounded research group, including 7 representatives...
I was infected with Anaplasmosis from my most recent tick bite, and had cold hands and feet a lot, especially my feet, which I found is a common symptom of Anaplasmosis, which lowers the bodies white...
Its all down hill from here...you're waging the war against your inner inhabitating colonialists-lol-Hang in there, it'll get better. And help for everyone is on its way with the Lyme Transparency...
I've had my share of run-ins, mostly before I found my LLMD. I went nearly 2 years trying to find treatment, and ended up worsening my condition with steroids a couple times. 3 or 4 times during...
Thanks for the suggestion Margaret, that's a good idea. I read that extended courses of Doxy along with Rifampin could help a difficult case, but sometimes they don't, too. I'm sick of all these...
I just got back my test results from Igenex, and it looks like, according to the Babesia FISH assay, that we've treated it enough with A-Bab, artemisia, Zithromax, and Bactrim, that it isn't showing...
Are you still on ABX? It sounds like you'll need at least a few combos throughout your treatment to address a long lasting infection like that. You obviously have chronic lyme, and your cd-57 might...
Pain in the other joints from time to time doesn't seem as bad as the hip right? The really stiff popping neck is tough when it lasts for days or weeks too, but it was the hip joint pain and life...
I was like you, wanting to hit it hard and go at it when I started. I didn't know much about Omnicef, just that it wasn't giving me much of a Herx, which I thought meant it isn't working. When I...
I recently saw an interview that one of the top Lyme and co's docs, Dr. Horowitz, did at an Autoimmune conference, and he said that some of the spouses of the Lyme patients he treated wanted to get...
That really hit home for me, because I finally followed my doctors' orders and agreed to stay home from work to aid in my treatment a month ago, after almost 2-1/2 years of struggling with accepting...
The Biaxin will also help treat Bart, but you probably need something stronger for the knockout punch, like Houttuynia or Rifampin. Ceftin is probably a good complement to keeping Lyme at bay. I...
The C4A going down is a good sign. What is it at now? Mine was over 7,000 last time. My LLMD says you won't see a significant increase in the CD-57 until you have been treated into a good remission,...
This is probably the most horribly debilitating "non-specific" symptoms...Lyme fatigue. Its what I've gone through every flare up since my bull's eye rash, along with some other less annoying...
He also may not seem like he's supportive of your illness when he doesn't want to talk about it or hear about it because it hurts him to hear the bad things the one he loves so much is going through....
Another good thing about being healthy and physically fit is that we're the ones who notice the change in our health the easiest and know we've come in contact with and identify these tick-borne...
BTW-what was the onset of your illness like? Did you have a rash, an EM rash, no rash at all, multiple rashes? Did you notice a tick bite, or did you know that you had been exposed? Did you have the...
You're definitely not alone. Most of us have experienced something like that...the Lyme spirochete only reproduces every 22 to 36 days, very slow for an infective pathogen. Along with the wide array...
Thanks for the heads up Revive! I watched it last night at 1 in the morning just in case I couldn't catch it today. My LLMD had me read his book and it helped me start to understand the complexity of...
I apologize, but I've read so much researching this thing I can't remember where I read about the research, but my guess is that they will get more money from a life-long patient by treating their...
Sorry to hear that. My wife doesn't understand what I'm going through and doesn't want to hear about it, although she has been supportive in my seeking the treatment I need. Your fiancee should be...
Hang in there, I know its tough to wait on stuff like this. My LLMD says it is 4 weeks for the co-infections panel, and I still have more than a week to wait. I had the clinical diagnosis of Lyme...
He's been checked and tested negative, but the some of the worst Lyme cases can return negative antibody results. He needs Igenex to test him, and then he needs to lobby the Senate to pass the Lyme...
My LLMD has me doing 3 shots of 2G Rocephin a week, and then oral the rest of the week. You get the benefits of the powerful dose, and oral Rocephin (Omnicef) with Bactrim for the other days, along...
Jackie-I'm thinking about asking my LLMD about switching from Flagyl to Tindamax after all I've heard...Did you take it every day, and with any other ABX?...
With all those swollen lymph nodes in her legs it sounds like Bartonella, especially with all the neuro issues. Lyme is probably there too, but the Bart sounds pretty bad. I had one lump in my arm...
Thanks Margaret. I think that's good news. Maybe the Flagyl has done its job on the cyst forms, and its just the Herxing dying down. I don't know if I should start the tinctures back through the...
During my worst Herxes I get nauseous all day, but don't throw up. The good news is that it sounds like the ABX are working. You probably need to add some more detox methods in, like some liquid...
My LLMD says that Rocephin does a great job, but it won't guarantee a remission by itself. Many times, its done all it can do after 4 weeks, because it will kill off a lot of Bb, but at a certain...
Yeah, its crazy...I had gone through a bad Bart Herx about a week ago, and one day was yelling louder than I had in years. I figured it was cuz I was feeling so bad until I heard about the Bart rage...
i've been using the NT Factor by Researched Nutritionals for a little over 6 weeks now, and I have noticed that my fatigue symptoms aren't as bad on most days, unless I'm going through a real bad...
Mine say to let them sit in water for a minute, but I don't know if that's to deactivate the alcohol. I didn't realize that I couldn't have alcohol with the Flagyl for the first couple months I was...
Traveler-Thanks for all the great advice on here, your positive outlook and inspirational messages are a truly a blessing. IHL-I never threw up while I've been sick, but during my worst Herxes I've...
My only Igm band was 23 (41 is all spirochetes), and my LLMD said this definitely means there is an active Bb infection. I also had Igg 30 and 41, which indicates prior infection was recurring. I was...
Jen-That same thing happens to me and IS very alarming, but thankfully its been happening less since I started treatment. Mine happens more often right before I fall asleep....
Before I found an LLMD, I went to an ER because I was having chest pains and a bout of extreme fatigue so bad I could barely walk and slept 18 hours a day. When I told them I had Lyme, and knew it...
Kate-I would think that if your body doesn't have a natural intolerance to gluten, and your only problem is Lyme's love of sugars, then its not going to be any worse for you to eat during treatment...
Did you ask what the name of this parasite is he's talking about? 200 mg of doxy is nowhere close to being able to reach the bactericidal TROUGH level to kill Lyme, only possibly make them all into...
I was really bad about my Lyme diet until I had another flare-up of the Lyme 6 months into antibiotic treatment. I realized that this flare-up came a day after I had celebrated my birthday with...
It should help. Along with my ABX, I'm taking NT Factor for Mitochondrial Support and Probiotics, DHA Fish Oil, Grapefruit Seed Extract pills, Vitamin E, Vitamin C, Vitamin D3 drops, DHEA,...
A good herbal can produce a herx, but I wouldn't expect it to be too bad after 1.5 yrs. of ABX....
A good combo of herbs and supplements can help antibiotic treatment. I've heard good things about Teasel Root, Coconut Oil, and Vitamin D3 is essential for most people dealing with Lyme and co's....
I've used small amounts (10 drops 2x/ day) of the Byron White formula for Lyme, A-L Complex, and the A-Bab for Babesia, in conjunction with ABX, and only herxed a little. The A-Babs caused a little...