I totally understand, Sarah - hopefully my response didn't come off as rude. Possibly come up with a treatment plan that is more effective than what I've already tried, and give me a more objective...
Thanks for your comments Sarah and Traveler. But it looks like they're at least a little better than that. That webpage seems to be criticizing the CDC/ISDA. E.g.: ---- I don't really think using the...
Traveler - that policy for using names publicly makes sense, will keep it in mind next time. I guess I wanted testing from these guys b/c they're a dedicated Lyme research arm of a very well...
After a year+ wait (they're apparently backed up), I finally got an appointment for testing and a customized treatment plan from Columbia University's Lyme and Tick-Borne Disease Research Center....
Yep, my MD is a lyme specialist. Unfortunately, it looks like my insurance (BCBS) won't cover for over a month - but I don't think that was a factor in his treatment plan (he didn't really talk about...
I just called the infusion company, and they said the prescription they had (dated after the one i have) was for every day for 1 month. And the one that I has is probably the doctor's dosing/schedule...
P - Yikes, I'm glad you mentioned that. I have been taking it every since I started. I wrote down what the doctor told me, and he gave me specific break periods for the oral antibiotics (e.g., 5 days...
I am herxing to the point that I can't really handle it (especially the extreme headaches when trying to deal with work, which is very mentally intensive). Will it set me back very far to take a 2...
Thanks, Traveler. I have Jarrow Formulas Milk Thistle, Standardized silymarin extract 30:1, 150mg per tablet. It says to take 1 per day, or as directed by your dr. Do you think I should be taking...
Thanks for the tips. I've been pretty bad with gluten and really bad with sugar - but I'm changing that now (just got some stevia, which I understand is lyme friendly). I also got some milk thistle,...
Thanks P. How long do they usually last? I'm taking probiotics - but I don't think my dr. mentioned anything about antifungals....
I finished 8 days of IV rocephin, and woke up this morning feeling like I had a horrible hangover (dehydrated, bad headache, etc) and horrible flu (feverish, dizzy, weak, chills, sensitive skin). Is...
I emailed my Lyme Dr. about this issue, and interestingly, he said said he was aware of the debate but still wants me to take it. Unfortunately, I got the message second hand through his...
I've read that getting rid of biofilm is important for full treatment, since it protects the Lyme from antibiotics (not sure if its the same with babesia and bartonella, which I also have). I'm going...
Thanks tickbite - that's a lot better of a price than I heard from the infusion company i'm going to be using....
Thanks for all the replies everyone. I have Empire BlueCross BlueShield, and I'm pretty sure their policy is to deny, for lyme, anything more than 1 month of IV antibiotics treatment. I was...
Thanks for the replies everyone. I'm going to hold off on the CoQ10 for now....
Thanks Margaret. The wants to do the IV Rocephin longer term - the problem is my insurance only covers a month, and from what I heard, it's really expensive without it ($1300 / month range)....
P - thanks for all that information (which I'm still processing). I haven't really done anything to detox - I think I read charcoal tablets are good - but I didn't want to introduce something that...
My Lyme Dr. directed me to take both CoQ10 and Mepron (among a bunch of other things) - but I've seen a lot of literature indicating that you shouldn't take CoQ10 at the same time as Mepron. Does...
Thanks, that's helpful to know. Do you know what happens when you stop (or are you planning on taking the IV Rocephin indefinitely)? Do you revert back, or keep some of the positive changes?...
Hi cccmama - when, if at all, did you feel your IV Rocephin making a difference? My insurance only covers 4 weeks, and its really expensive without it - so I'm still undecided whether I will continue...
Hmm, it looks like a port is a bit different from a Hickman line (though they're both inserted in the chest, as opposed to the arm with a PICC line). I'm seeing a Lyme specialist - Dr. Raxlen in...
I need to get either a PICC or Hickman line for IV Rocephin therapy (insurance is only covering one month; I'm not yet sure if i'll continue after that b/c of costs, but I might). Does anyone have...
This forum has been really great, and thanks again to everyone that's already answered my other questions. This disease and treatment are incredibly complicated. Sorry for the long post, but just the...
Thanks for the replies. I was diagnosed with Lyme in 2006 when I finally went to the doctor for bloodwork regarding my chronic fatigue. However, I've had this horrible fatigue for as long as I can...
Just saw my first real Lyme Dr yesterday (Dr. R in Manhattan) and he prescribed the treatment plan below (which doesn't include all the extra supplements he told me to get). That's a lot of drugs...
Thanks so much Sarah - I made my email public, and am going to send you an email right now....
Hello, I'm new to the forums (and to treating my long time disease) and would appreciate any referrals for Lyme doctors in NYC (preferably Manhattan) that participate in Blue Cross Blue Shield (or,...