As with all Lyme testing, even the 31 epitope test is not absolute. I tested four times with Igenex over about eight years. I had the 31 IND on my third test, so paid extra for the epitope. It was...
Girlie, you are so fortunate to have your GP on board. It would make things infinitely easier. Pretty sure that Canadian doctors have bought the line that our testing is "gold standard" even though...
I am Canadian also. I tested negative 1 time on Canadian test and 3 times on Igenex between 2006 and 2011, but with what I now know to be significant bands and IND. I was also on various antibiotics...
You're most welcome! I don't often post, but absolutely had to bring that article to your attention. I can't imagine adding all those potential side effects to all the other "Lyme effects" we already...
Hi Girlie. There was an article in the Edmonton Journal yesterday about mefloquine and I am not sure how that differs from the mefloquinine you mentioned. So just in case it's the same thing, you...
Alimom, I COMPLETELY understand how mind-boggling it is to find that someone else has these very weird Lyme symptoms. And our commonalities are apparently even bigger than I could have imagined. I...
Hi Alimom. I don't have any suggestions on detoxing, and I don't post much, but I wanted to let you know that you and I seem to share the exact symptoms and I have never come across anyone else with...
So sorry to hear that you continue to feel terrible. I have no suggestions on what will make things better, but it is obvious from your posts that you are a strong person with a great attitude to...
Hi astroman. I came across a post that might be the one you were looking for. I don't know how to link to the thread, but it was called ANSWERS by Pirouette. Currently on page 1....
No, Girlie, you're not the only one. I know I should want the information because I seem to be detox challenged, but I don't know how I would handle a list of issues. Bigger basket case than usual, I...
Hi Girlie. No problem about the name. Much bigger things to fret about these days. I am working with an ND who did an ILADS internship with the Dr. H., but still struggling with the inability of NDs...
I'm in Alberta....
That is fantastic news, Girlie. As a fellow Canadian, I cheer your victory - having your GP's support is huge! My GP still doesn't believe my IFA and CDC positives since they were done at a US lab -...
I've read that consuming broth really helps speed up healing. There was a thread here earlier today with a recipe that sounded delicious. Edit: should have said bone broth...
Hi Sayyadina. I recalled something I had read about meat allergies and tick borne illness. I wanted to share it to let you know that your peculiar problem may not be so peculiar considering you have...
I have no words of wisdom on how to get through this very difficult time. I am so sorry for your loss and my thoughts are with you and your family....
Elisa test in 2006 - negative (Canadian lab) Igenex in 2007, 2008, 2009 - negative Igenex in 2014 - IFA positive and IGM CDC positive Persistence paid off. Now to get well. *edit to add IFA positive...
Hi, Girlie. I am Canadian (beer commercial but too perfect to resist). We are actually neighbours, sort of. I'm in central Alberta....
She actually wrote a book called Rain on a Distant Roof about her journey with Lyme. Although I read it, of course I can't remember if she mentions her herbal protocol....
Forgot to say that IFA was also positive this time....
Lyme Pickle, I tested through Igenex 3 times from 2007 to 2009. Despite heavy abx treatment based on clinical diagnosis (different combinations of mino, doxy, biaxin, ceftin, flagyl, and tinadazole),...
I came across this today on Twitter, and it's too important not to share. This class of drugs is scary! http://lymediseaseguide.org/nerve-damage-risk-doubled-with-common-antibiotics ...
Hi. I don't post much, but wanted to chime in with the link to a basic and free app that can be used to track symptoms and see a graph of your progress. I have no connection to the app at all, it was...
Girlie - I totally get what you're saying about questioning what we're dealing with. It's kind of like the saying about weather in Alberta "if you don't like it, give it five minutes and it will...
Your concern about the optic neuritis is certainly understandable! I have read absolutely everything I can about MS versus Lyme. This all started with left side trunk and leg numbness after a trip to...
Optic neuritis did clear, but not perfectly. Still some minor residual effects - difficult to track things that cross my vision quickly, but eye pain left and didn't return. Worried about every...
Hi Akkami. I have brain lesions on MRI such that docs here want to diagnose MS. However, I also just tested positive through Igenex (IFA positive, and CDC IGM positive 31+++, 39+, 41++, 83-93++ )....
Girlie, to my way of thinking if you paid to have the tests done, they are yours! I can't see how the ND could refuse to give them to you. Maybe a call to Igenex to see whether they would send you...
I haven't actually heard much (it would help if I left the house), but my local ND knows her and mentioned that she had done the ILADS training. Her ability to prescribe is VERY appealing. Do you...
Hi NinaBoo and thanks for the info. I think I know which one you mean, but I had heard she was on or going on mat leave. Didn't want to start and have to find new ND halfway through treatment (for...
Thanks for the link. I'll check it out - it would be so much closer!...
I'm another Albertan. Diagnosed by Dr. M (LLMD) from Hope BC in 2007 shortly before he retired. Under-treated due to difficulty finding another physician. Relapsed (or just gotten worse with passing...
It will all work out. Try not to lose sleep over it tonight....
I think you're correct that an ND or MD has to sign the request. And not to scare you, but I have been waiting since Apr 2 for Igenex test kits to arrive in AB. Phoned them after 3 weeks to see what...
New here but not to Lyme, sadly. I believe that whoever draws the blood needs to do something with it, but if you go to the Igenex website, you can confirm requirements there. It would be tragic to...