Little Bear (LB) -- thanks so much! i haven't been tested for mold, metals, candida. Not sure how i could be? Bluelyme -- i did IV rocephin recently for 8 months and 4 years ago as well. it did help...
Hey guys... I've been actively fighting Lyme for 5 years now and have developed dysautonomia. I keep passing out and having seizure like activity happening. Anyone else have these symptoms?? If so,...
tickbite666 - I am allergic to EVERY tape/adhesive/everything. I have had an all gauze bandage but somehow ended up getting a rash and on it's way to infection.. so the Dr. pulled it and I am getting...
Hi, I just had my picc line removed this morning. And I have to get another one placed this week. My doctor said I could shower immediately but I am just nervous. Has anyone taken a shower right...
tickbite666 - how did you find out that a fibrous material grew around your line? did it hurt? I've had mine for about a month now. Hoping i can do some light exercise soon. No clue how long i will...
tickbite666 -- thanks for the info! I'm afraid to exercise bc i don't want to irritate anything. How long did you have a picc for?...
Thank you Traveler!...
Hi Alexa! I am in CT and I see an LLMD. I would be happy to share his info with you!! Need to figure out how I can send you a direct email......
I have a picc line in my right arm and I've been doing treatment for about three weeks now. I am curious if anyone exercises with their PICC line in?? Can you run at all?? I am hopeful I will be able...
Thank you all for the info! *Traveler (Forum Moderator) I would love if you could send me some info. How can I send you an email?? Sorry I am still new to this... *Lovemychildren & Lymeinthecuckoonut...
Hey everyone -- does anyone know a Lyme literate psychiatrist's in the NY or CT area?? Or even a psychiatrist who just knows about living with Chronic Illnesses???? Any info would help .. thanks so...
Hi, How often are you doing bicillin? I had them weekly and noticed it definitely helped and staying consistent helped also. Definitely check with your doc to see what they recommend....
I have chest pains allllllllll the time! Between my Babesia and my Costochondritis it is very hard to manage. I use heat for the costochondritis. Mepron helps with the babesia. Still have lots of...
i have had something similar in the past and still occasionally do. Epsom salt baths helped me. Start with just a few minutes and not a lot of salt then work your way up to a little more time and...
Sounds like myoclonic jerk movements. I suffer from myoclonic seizures....can't control movements. Not fun. I might recommend seeing an LLMD Neurologist. hard to find but worth it....
I would DEF get your eyes checked. My Lyme began in my eyes 2.5 years ago and I had no clue what was going on until I saw my eye doc. I have that part of my Lyme under control for the most part. but...
Hi -- I did Bicillin shots and only did them once a week. After about 2.5 into the 3rd week I started herxing really bad. I had a lot of night terrors, night sweats and tons of herxing. I did these...
Hi Green, I have Chronic Lyme, Bart and Babesia for 2.5 years.... About two years ago I did 1 month of IV Rocephin (Ceftriaxone.) It really helped me a lot but at the time I didn't know how severe my...
Thank you so much for the info. I used to do Epsom salt with peroxide 3x a week. But I started back at work full time and haven't found time to put it back into my sched. I am def going to get back...
Yes I have talked to my LLMD. He thinks they have developed from the Lyme and wants me to see a Neuro who specialized in lyme too...
Thanks so much for the advice? What should I do for detoxing??? I used to do the sauna a lot which seemed to help but when I feel crummy, my LLMD said it might make things worse so I haven't been...
I had/have horrible anxiety. (Have Lyme, babesia and bart for 2.5 years.) I noticed changing up the meds helps a little or Ativan can also help. Also ...one of the hardest parts (for me anyways) was...
I have way more pms and cramping well ahead of time also...never used to have this problem. My cycle has become incredibly short -- 2-3 days max. :/...
Has anyone had any seizures happen after their diagnosis with Lyme disease???? I have been treating Lyme, bartonella & babesia for 2.5 years. I have recently had Myoclonic seizures and might be...
I am doing 1 injection per day...it's 1 gram. I was going to do 2 grams but it would need to be split up into two syringes and my body can't handle that much. The 1 gram seems to be working for me...
Rocephin & Ceftriaxone is the same medication. The pharmacy just uses one as the generic same. I've done the shots for almost a month daily. They are definitely helping me. Have you found any...
I have Lyme Disease & the co-infection Babesia. I have also developed Costochondritis. (inflammation of the cartilage that connects a rib to the breastbone) Does anyone else with Babesia also have...
Does anyone have experience with Rocephin IM treatments for Lyme disease??? I did the IV two years ago which worked for me but this time I am trying IM...daily injections. Curious if anyone has had...
I used to get serious headaches as well with bartonella. I tried a whole bunch of medications and herbal remedies. The only thing which found me relief was that my doctor prescribed me Gabapentin...