Thank you for the replies, I have not left my husband we are both homeless because we can't afford my medication and rent. I have a serious problem with **** because it tells me I am not enough for...
Well here goes, my teeth are killing me, I have Lyme with a bart coinfection and I'm homeless. My life is slowly going down the toilet and I really don't have the strength to fight it anymore. I am...
Thanks everyone for your concern, I will be going to my clinic tomorrow morning and i'll keep you informed, thanks again....
Thank you Traveler and Razzle, The blood is quite light in color and I'm in a bit of discomfort low down, I don't feel constipated though - I don't think I can afford an LLMD right now but I'll go...
Barbra, I have had nothing but bad experiences at the hands of MA ID Drs., one refused to test me for bart because I don't own a cat and another completely refused to acknowledge the existence of...
I have no dignity left and I'm rapidly losing the will to live, it is one goddamn symptom after the other, flooding me faster than I can come to terms with each one of them - about a month ago I...
A nice gentle bump. :yeah:...
I did something really really funny last week but I forgot what it was. I guess you just had to be there....lol...
Yeah, I get it often, I need to wear reading glasses but I get strong ghost images with or without them on and both near and far - this happens with both eyes even when one is covered up so it is not...
In a galaxy far far away, there was a beautiful planet, planet Jane, it was famous for its vitality and it's lust for life; unfortunately the planet got invaded by the evil Spyrochetes who didn't...
I had been having curious symptoms for years but always put them down to menstrual issues or early signs of ageing; it was a sharp burning tearing kind of pain though, that really had me running...
As promised, I have managed to secure a space where people in or around Boston can meet and support one another in real life. It will be secular in nature in spite of the fact that the room is in a...
Sorry, no advice but big hugs to you and your daughter....
I am not sure. I am only on the Cowden Protocol (day 38) so I'm really not sure what I'm targeting. I tested positive for Lyme but negative for all co-infections except for bart which they didn't...
Looking back I had been experiencing symptoms for years but the one that really made me sit up and take notice was a painful burning sensation in my left ovarian region; I was convinced it was the...
It's driving me insane - with or without my reading glasses, near or far, it makes no difference - double vision in both eyes. I have heard that this is predominantly a bart symptom, is this right? I...
Thanks Traveler, I will pass on what they say. I have always wondered why people aren't prescribed doses based on their size rather than their age. The only exception I can think of is anaesthetic....
Thanks to Lyme disease I now weigh over 220lbs, to treat my sickness I am using the Cowden protocol in exactly the same dosages as a patient would who is half my weight. Would it be dangerous if us...
It infuriates me too, it's like they're doubting what we're feeling, what we're thinking, even doubting our sanity. We are still sick because their medication didn't work not because we like spending...
Sorry, I can never get that url thing to work for me. If someone else can post it properly, please do....
For many years I thought it was the medical term for a fear of heights but today I learned otherwise - it is much more complicated than that. For quite a while I have been troubled by a combination...
Sorry she is going through this. Are her feet and shins in any pain?...
Sleep jerks? Is that what we're calling our husbands these days?.......lol Seriously though, yes I've had them but usually as I'm falling asleep. Never had one in the morning unless I'm heavily...
I am not one to suggest that you sadomasochistically push through no matter how dangerous or uncomfortable it is but my approach is to suffer and get it over with - others prefer a gentler...
I say, "who the hell are you?"...
Don't worry DM, hubby got a job as a maintenance man, we sleep in an abandoned corner of the building where he works so at least we are warm and dry....
Welcome aboard K*bone.... We were diagnosed in the same week and I live in Massachusetts too. Don't worry about what people think just do whatever you have to do to be well....
Traveler, you are my guru, I'm going the natural route too. Akkami, I am nearly one month into the Cowden protocol, it's a bit too soon to tell but some of my more minor symptoms have gone. I'm...
Hello DM, it amazes me how we cope with the financial burdens this disease places upon us too, it is tough on most of us; I make no secret of the fact that Lyme disease has robbed my hubby and I of...
I don't think much of mornings either - that initial couple of minutes as I regain consciousness, wondering what condition the body I inhabit will be in, wondering what joys this disease bring to me...
Thank you so much for the replies - they seem to confirm what I believed to be true - no matter how bad the herxing when treatment starts, nothing is as bad as the not knowing....
http://youtu.be/AzCYZowfCN0 Is it easier like this? Well they do say that laughter is the best medicine....
Hitler Learns Lyme Disease Can Be Cured With Anti…: http://youtu.be/AzCYZowfCN0 Make sure you have the subtitles on. :turn:...
At what point in your battle with Lyme do you feel things were at their absolute worst? Was it before you were diagnosed, at the beginning of treatment or some time later? I would love to know when I...
Alexander, thinking of you and hoping things get better soon. My husband and I had to choose between rent or medication - we chose the medication, consequentially this disease has made (and keeps) us...
Girlie I am on day 24 of the Cowden Protocol. My headache eases but it never goes away, constant tremors etc etc....
I don't know, I still can't tell if I'm herxing, getting worse or majorly symptomatic, I just feel crap and scared all the time....
Great news but what took them so long? They must believe that hypochondria is the most prolific disease out there....
Thank you so much for this link - I am so sick of having headaches, even when my headaches go I am still aware of a residual pain that never seems to subside. Hopefully the information here might...
Oh bless you, I have been there too, in all four limbs with tinnitus, a recurring ice pick headache and numerous other symptoms that were just as scary all running at the same time. There is nothing...
My healthcare covers ER visits only so it's as basic as you can get. We have already had to choose between renting a home or paying for medical costs and medication. We chose the medicine (Cowden...
Yes, thank you....
Please could you message me too. I live in Boston and need an LLMD. Thanks....
I have read that they charge anything from a pint at the bar to $500 for a brief telephone consultation. I'm guessing it's somewhere in between....
Oh Marie, whenever I get a response like this I always feel really torn, part of me thinks, "great! Someone else knows how I feel." The other part thinks "oh s**t! Someone else knows how I feel. I...
It is pervasive, always in the same spot (right temple) and it makes my eye water, twitch and my ear ache and feel hot. This has been a regular thing for about 10 months, in fact it was one of my...
Girlie, wouldn't it be great if you could teach them some empathy? You could get your money back, get a retest, then accidentally send your money to eBay....
Eight years ago I met my hubby online and eventually came to America to see if our physical chemistry would match our online chemistry - it did and after a bit of too and froing I settled here and we...
You're not being a baby, you are a scared, worried and overwhelmed woman who needs support - many of us have had the same or similar symptoms and we have had to teach ourselves the old mantra, "this...
Spacecadet... you seem to be very well armed with all you will need, I can't suggest much more... except this. Whenever you see a doctor about a worrying symptom NEVER mention you have Lyme because...