No problem! I know how common neck pain is and I'm sure there are so many causes, but the blood flow theory was not something I had come across until recently and I think makes a lot of sense. I hope...
Oh I forgot to say, another clue that your neck pain might be of the "coat hanger" variety and related to dysautonomia, is if it improves with exercise and/or lying down....
Hi everyone, Wanted to share my little light bulb moment with you all, in case it helps anyone. If you get neck pain consistently after you eat, consider that it might be due to dysautonomia. I...
Updating - after I realized that maybe this worsening could have had something to do with my osteopath appointment releasing things from the neck and hips (because I have had a detox reaction after...
Thanks Garzie, your words were reassuring and I appreciate it. I'm on pretty low dose methylene blue, regular dose of clarithro, plus oregano but yeah hoping that it doesn't mean I'm fully back to...
Yeah I'm figuring that out. I'm mostly just frustrated because if this is how bad I feel off abx, how will I get off them? I don't want to be on them much longer and had planned to stop because I was...
I don't even know what my question is, I guess just curious if it's normal to feel pretty bad after stopping antibiotics for a bit. My doctor didn't renew my refills for rifampin. She didn't want me...
Yup! I had the left side of my body go very suddenly weak/tingly. My arm is still residually weak, 3 years after that incident, but doing better....
Yeah no it wasn't the DIM - I specified that the supplement has concentrated sulphuraphane - I was taking "DIM + Detox" by pure encapsulations. I should have been more clear....
Just thought I'd update: Spoke to my LLMD today and at first she said that this didn't sound like a typical reaction, or if it was it was extremely strong and unusual. She thought it sounded like...
Does anyone here take DIM (Diindolylmethane) for detox and had a strong reaction to it? I took pure encapsulations DIM+Detox supplement for the first time today. It says to take with food and I...
Yes I'm on cromolyn sodium, have been on it for about two years now. It's great! But it doesn't prevent me from reacting to everything, even in combo with quercetin and antihistamines. It has...
Yeah, they have definitely worked some for me but I started to plateau recently which is why we are changing it up. Hoping to switch to rifabutin perhaps in the near future but seeing how MB goes...
Also, good to know about low dose methylene blue. My LLND said she has been preferring the low dose and seeing people get improvement but my LLMD was going with the more standard dose of 25mg twice a...
Hi Quin and Garzie - thanks for your helpful replies. I should have mentioned, I'm definitely on other treatment! Been on rifampin and clarithromycin at full dose since December, as well as Oregano...
Hi everyone! Just recently posted about my great pain relief from osteopathic manipulation and I'm now back to being in pain all the time - but I think if I hadn't changed my regimen, I'd be okay, so...
I don't post too regularly, but I think I may have posted about my neck pain in the past. One of my worst symptoms and up until recently I put it down to the infections (bart in particular) and...
Glad you're feeling better, Girlie! I was just going to chime in that if you are treating mast cell at all, that should really help during, as well as after, covid. Quercetin, vitamin c, even...
So I used to read about people reacting to 1 drop of herbs and think, that's absurd how is that even detectable by the body? I was on herbs for over a year and took like a droppers full of each one...
Those look kind of like the hives that I get - I typically only get one or two but they are little raised dots and very very itchy. Could be a mast cell response, in my opinion....
This is mostly just a rant. I'm not looking for advice on what diet to follow, I don't want to hear anymore about what's supposedly best or what I should try. I'm just confused and sad and maybe...
Okay so it's been just about 2 weeks since I started lumbrokinase. The first day I had what I described above, nightmare/sleep paralysis/increased tingling, and then it eased off a bit and I actually...
Thanks Dude! I will keep this updated for sure....
Dude - thanks. I wouldn't go near hot yoga with a 10 foot pole, but like I said the warm (especially for yin) is really great for pain. Yin yoga is closer to meditation than it is to yoga, you sit in...
Just wanted to share that I recently discovered warm infrared yoga. It's heated to 30 degrees, whereas hot yoga is heated to about 38 or sometimes into the 40's (sorry friends who are on imperial, I...
Just updating that I skipped my dose the next day, but have taken one capsule every day since (after reading that CanadaRNA suggests doing so to bring down viscosity), and have not had the same...
Hi Dude, Yes I am using boluoke. I was aware of it being a part of multiple LLMD's protocol, balked at the cost and put it off for as long as possible. I just graduated university and haven't been...
Thanks both - yes I've been at my full dose of rifampin and clarithromycin for a couple of months now, started in september and got to full dose in december. Also using ADP oregano in terms of...
Hi everyone - I hope you are having low-symptom days! I started lumbrokinase yesterday, and last night I had a nightmare where I woke up with sleep paralysis, and now this morning I have really...
I know this is an old thread and not sure I'm answering the newer question from SamBernie, but just to add to this conversation - I read recently that bromelain can be used to break down biofilms....
Garzie - yeah it seems to be fairly lined up with when I take my herbs, not exactly clockwork but almost, which makes me think it's not a herx. My general thought has been MCAS, but it's not...
Also, it's a given that I will talk to my llmd about this. I am just curious if others have been in a similar situation or have experience/advice to offer....
Hey everyone - Sorry if this is a repeat, I might have posted about this prior to the holidays but I'm more sure of what's going on now. Looking for opinions. I was on herbs for over a year with no...
interesting! Yeah that's definitely what I've been noticing. I was on herbs for over a year with one or two very small herxes, then nothing and zero improvement. I am truly baffled by people who can...
You mean like combos between herbs and abx? Cause yeah that's why I'm doing both for sure....
Just thought I would update this. I stopped the japanese knotweed and for the most part my symptoms went away...so I guess I found the culprit! I still had a bit of increased reactivity for a day or...
Yeah I have tried anti-fungals (nystatin, fluconazole, and herbals) which did nothing, but I have not tried TUDCA, I'll look into it thanks!...
I'm not sure if sharing names of doctors is against the rules of this forum...but I'll just leave this link here: https://www.pannaturopathic.com/ Sorry mods if not allowed....
Thanks saraeli, I have tested for mold and my levels were decent, but I did a number of months with binders anyway and noticed nothing so I don't know if it's a huge issue for me...but always good to...
I generally do only introduce one thing at a time but I've been on all these medications before. For example I had to stop JK for a little bit because my naturopath ran out of it so I was on about a...
Oh I also forgot that I added japanese knotweed back in to my protocol two days ago, which also kind of coincides with these symptoms....so many moving parts, it's hard to keep track of it all :'(...
Garzie - I do take LDN but I've been at the same dosage for months. However, I did just increase my liothyronine (t3) and was wondering if that could have something to do with it. Also, I wonder if...
Hi again everyone, I have been posting a lot as it seems every day there's a new and mysterious thing that I feel uncertain about! I've been on clarithromycin about 2.5 months, added in rifampin a...
I would describe my knee pain as what I imagine joint pain would be in a large joint...I only get joint pain in the small joints of my fingers so it's hard to describe or compare it. But it feels...
I noticed he said that too. Based on the forums it seems like a good chunk of folks don't necessarily respond to that treatment or relapse because they haven't done the rifabutin portion, so I'm...
Sounds like it could be. I have seen folks use bactrim for bart so it seems like it has action against it. Have you been treating for bart?...
Hi mercurycea, not sure if you know of Dr. C who is on the lower mainland, but in Richmond. I've heard great things. He's an naturopath who is lyme literate - and lucky for us in BC naturopaths can...
Ohh interesting okay. I was just rewatching some of that lecture last night but I think I started half way through, I'll take a listen to the whole thing. Thanks! Your explanation does make sense....
Yeah I've also heard that he says expect a worsening of "deep tissue pain" after 1-2 weeks of treatment, which is almost bang on when I started experiencing this. Except I don't know what deep tissue...
Thanks everyone for sharing. Yeah as I've been taking it a bit longer, I'm definitely noticing a flare up about 1/2 hr to 1hr after I take it, so it's definitely causing my joint pain. I've also had...