My heart breaks for you....I myself have been thru my own share of lack of compassion from plenty of office visits from whom are supposed to be professionals!! We look up to them to help us and yet...
Agreed...I have blamed myself for so many reasons why my kids 14 & 16 just aren't living the fun teenage life....I used to be the mom that would bring them everywhere and anywhere....and now I feel...
Aww hun...im not CDC positive on alot of levels either...but I'm Lillymfighta level and most days that's a living hell...The CDC hasn't had Lyme...but they have to draw a level somewhere I guess? And...
If it eases your mind any hun...all your symptoms you have ....happen to me...and I have Lyme and babesia...the aching and pain in the arm has gotten worse while trying to hold something as simple as...
Thank you both so much :)...
Can anyone tell me what an ANA 1:80 speckled would mean as apposed to a 1:80 homogeneous result.... I guess however any explanation how ANA levels work would be helpful....I apologize for posting...
One of those things I can't seem to grasp....no matter how much I research.....anyone want to help it sink in.... Mine started out as 1:80 speckled..... Now its at 1:80 homogeneous.... Everytime I...
Just now seeing this as well... Sorry :( ouch! Hope pain has lessened and I hope you Can pee! I know...im so blunt...just so open with my words 😲 As you should be as open and honest when they ask...
Gotcha! I have babesia duncani....its evil! This is day one off meds...just nervous what to expect ...how to feel.......
I'm being treated for babesia achievinggrace by my LLMD..but I've only been doing this for about 6 months...im definitely covered in bruises...I know that's a sign of anemia as well...I guess I'm...
My worst has been the past 8 weeks....bed ridden....weakness all over..migraines..air hunger...fatigue...nausea...scalp very hot...body cold...low body temp...still fighting this...theres other...
Its happening more often....whether I go downstairs or walk a shorts distance maybe 10 feet....my body gets so weak and fatigued...I can't take another step...its as tho my legs paralyze...I can't...
Well if it isn't another day that's "normal" for us Lymies! :yeah: Doing the dance my friends. For us...Normal is....pain in every ounce of our being...parts of our body that we didn't even know we...
Thank you Mister Mike :) I will check that out as well!! Thanks a bunch !...
Thank you for your input teragram...I appreciate it so much... I definitely do get super hot on fire all the time...its brutal... I will look into Artemisia :)...
I used to sweat all the time...I am on alot of other meds for body pain...otherwise I would not make it thru a day...I also had spinal fusion of my neck 3 years ago...that I what triggered my Lyme...
I guess you could say I learned really fast...that getting upset,snippy or angry put me into a tailspin for a flare....eventually I started to put two and two together....that everytime I got worked...
I am right on the line with the numbers...thats why I ask.... I am being treated with malarone by my LLMD... Oh gosh my symptoms...I could go on forever....but I will give you A good idea....full...
You are welcome 😊...
:( So heartbreaking and just not right....Im so sorry and sad to read that...
Hehe no offense taken mauihawaii :) I bet that Hawaii weather is beautiful right about now...Im frozen to the core with my below normal body temp...it plunges all to often.......btw...ever seen...
Same here...phooey!! My BBQ grill is sad haha :)...
I had that crazy eye twitch for two months straight....drove me batty!! My chiro/neurologist told me my body was over stimulated....well yes...I'm an emotional Lyme basket case... We are digging out...
Teehee Mauihawaii....This LilLymFighta is a squawkin Mainah...lol :)...
Does anyone remember what their babesia level results were...if so...do you mind sharing? I wonder how much of a difference in level makes in the symptoms...I just feel terribly ill......
Whoa ! Whoa! Whoa! My chickadees....how many Mainahs in this post with long sad faces :((( This breaks my heart! I have to completely agree tho...Lyme talks out of turn...is no fun....a wicked...
Ginger...the only thing in this situation that you don't have a choice about and that is controlling you....is the Lyme! Everything else is in your control...its your body...your life....you have to...
Understood...I am holding back on alot of treatment because I do not have money for it....People should not have to lose everything because of this disease. Its a very upsetting topic for me and I'm...
I tested negative for bartonella...but...I too mash my words together...cant speak a full sentence without losing my train of thought mid way thru..was always a great speller...will go back and spell...
Omg! I'm not crazy...3 years of all over excruciating body pain...I can't even begin to tell ya everything im on to tolerate a day....and I'm in bed more days than out lately...lyme treatment started...
I am honestly not sure right now... I had neck surgery 4 years ago.. Herniated disc.....returned back to work....one year later...repeat surgery...needed to have neck surgery again and have those...
Unfortunately I have not been able to plan anything in several years...have lost pretty much all of my friends and have learned to count my blessings for what I do have and try my hardest to keep a...
Before being diagnosed..I could almost time them like clock work...every fourth weekend...would hit me like a ton of bricks in the beginning....if it ever changed...it was at week 2 and week 4....but...
Mascoe1...please don't give up...if any knows your body...it is yourself...and I'm sure there are many Lyme fighters including myself that could defend the fact that 3 weeks is sooo not long enough...
Take a deep breath....you can't blame yourself...I've had Lyme and babesia now for I dont know how long...suffering for 3 years....had first neck surgery 4 years ago...second neck surgery this time a...
Hey speyfisher...I like the positivity...I agree with the take 20 steps today...take 22 tomorrow...only thing with that....is...each time...I push myself a little more...the longer period of time it...
Amen Pirouette...some of my docs that I saw make me sad that they still see patients every day ... Sorry that all my sentences mash together...thats how they are in my head...how they come out of my...
That doesn't sound off the wall at all...that was spoken of and then got pushed aside some how some way in the works...I know I cannot wear nickel or something of sorts in certain jewelry...I break...
I'm new on this site and I read as many posts as a possibly could in hopes of trying to find that I wasn't crazy...well we all know...we will always did find a way to convince ourselves...we still...
I have had Lyme and babesia for 3 years and been on malarone for babesia for several months...which I can completely understand not tolerating it...doc even just upped my dose. I have been bed bound...