This is so encouraging to hear from each of you. I take your advice and encouragement to heart and appreciate it very much. She has had several MRI's, CT scans, EMG's and other tests to rule out...
Thank you to both of you for responding. It makes me feel better just knowing we are not in this alone. She is with a LLMD doctor who is very helpful and hopeful for her. Forgive me for not knowing...
I'm wondering if anyone with lyme disease on here has experienced complete speech loss. My mom was first diagnosed with ALS (bulbar presentation). After a few years she really did not progress as a...
She is "drinking" water with lemon several times a day, doing foot soaks and skin brushing. She cannot take baths because she is on a feeding tube and has her PICC line in. Mostly the feeding tube...
I posted earlier this week and just need some reassurance that what my mom is experiencing is normal. She has been on IV meds for eight or nine weeks now. She was diagnosed early October. She had...
Dear Pirouette, This makes me feel much better. Everything I have read says that it is possible for this to happen but her Lyme doctor didn't think so. She is seeing a lyme specialist that has...
I am new to this blog and writing on behalf of my mom. She was diagnosed with ALS in 2013 but did not progress like a "typical" ALS patient as her doctors kept telling us. I researched and decided...