I don't know if it can cause a high rheumatoid factor but my number was way up when I was originally testing negative for Lyme. I had migrating joint pain which then after almost 2 years of...
Hi Gkamom- my detox method of choice is coffee enemas. Unpleasant to think about and embarrassing to admit but they help me to feel better every time. :) Castor oil packs are also supposed to...
You are doing so many great things for your son. The diet and lifestyle pieces are huge for us. Our experience with my son was antibiotics for 5+ months. We had symptoms resolution after about 3...
Hi Mommaonamission- you are in good hands here. There are some incredibly knowledgable people on here and a number of them are also treating their children. My son is 4 and we are treating Lyme-Bart...
Hi Kyo07- I'm not sure about the length of time yet. I'm getting blood drawn every 2 weeks to check liver & kidneys and also to watch for anemia. Evidently anemia can be a significant side effect of...
I'm actually one of the patients in the trial - currently working up to the full protocol of Dapsone/Mino/Rifampin/Plaquenil/Malarone and pulsing Omnicef (M-W-Sat). It's a lot of meds and I'm nervous...
Yes, my family and I tested positive (Real Time Labs) for mycotoxins - Ochratoxin and Tricothecene. We had a documented severe mold exposure for just over a year. We originally treated the...
Hi Elizabeth H- I've had severe mold exposure too. Binders, liposomal glutathione, sauna and coffee enemas have helped me. It sounds crazy but I swear by the coffee enemas. It's not as bad as it...
Hi Buttercup- That is a shame about your doctor although it is all too common. I second (and third!) Rowingmom and Travelers advice. Don't waste precious energy on being angry or upset at the system...
Hi Buttercup- I'm so sorry for what you are going through. I also have a child with Lyme although my son was diagnosed when he was 3 yrs because a wise physician tested me and when she saw the...
Hi- my 4 yr old son is taking it. I guess you can say we 're "pulsing" it, sort of - I give it to him for 5-7 days around the full moons. He's taking the liquid version and I believe it's 3ml 2x per...
The solo pad must have come out after we got our sauna so I never considered it. That said, just reading about it on the website, my biggest question is the memory foam aspect. In general memory foam...
Oh and I hear you on the diet. I have a couple blogs that I go to when I'm looking for quick easy Dairy Free/Gluten Free meals. My favs are the Spunky Coconut and Wellness Mama. We just tried the...
I just got my Sunlighten up and running and so far I love it. It's made from Basswood which does not off-gas (according to the company). Supposedly The EMFs are also low but I have not personally...
Hi Charliebug- I'm so sorry for what you're going through. Recently cholestyramine is being prescribed for those of us with mold exposure. It is supposedly fantastic at binding to toxins and quickly...
Hi Chapelle- thinking of you and sending you hugs. I know you can do this. We are still fighting our fight here with myself, my husband and my (now) 4 yr old. It is hard - no doubt about it. However,...
Hi- my son is 40lbs and his dosing is as follows: 10 drops Burbur and 10 drops Parsley 2x per day. Banderol is 20 drops 3x per day, Samento 30 drops 3x per day and Houttunyia 10 drops 3x per day....
Hi Phineas- Im so sorry for what you're going through. I have been treating my 3 year old son for Lyme over the last year. It's so hard with the little ones to know what they're feeling. Have you...
Hi Utahgal- I'm just throwing stuff out there for you. In my situation, my pain has mostly resolved but I still have unrelenting extreme fatigue. Nothing has touched it - I've tried all sorts of...
When I tested positive after being sick for a while, my sons doctor immediately recommended to test my then 3 year old son. We did and he was positive. His symptoms were extremely mild and most...
Thanks for the follow up Myeezy! I guess that makes sense. I'm going to let my prescription run out in a couple weeks and then discuss with my doc in early Sept. Will see how I feel off of it for a...
Definitely curious....
Keep me posted. I'm not seeing my LLMD until early September and was going to try to stick it out until then....
Hi- I'm on Malarone and Clindamycin right now and have been for about 1.5 months. When I first started I had an increase in air hunger and chills/sweats. Now that's gone and the remaining pain I had...
I'm so glad to hear that you are busy with life after Lyme! Thanks for the update - gives the rest of us a little boost. :) Bravo to you for getting the word out. It's shocking to me still how little...
Hi Ricky- yes my LLMD uses ABab too. My symptoms have become fairly pronounced so he wanted to "hit it hard". I'm assuming after a few months he'll start in with the herbals. That seems to be his...
Yes, I asked that too. He is basically experimenting with me for a few months (with my consent). He's trying other pulsing protocols with other patients then will take a look at everything in the...
My LLMD is trying this out with a group of his patients. I am one who agreed to try for a couple months. He has me 1 week on Omnicef and Azithromycin and 1 week off. On the off week I focus on...
Hi Alyrose- I'm sorry that you're not seeing more progress! I know all too well how frustrating that is unfortunately. Dr H is my doc and I see both him and his NP - all his patients see both. I see...
Good luck Utahgal. My little guy did great on Cefdinir. We later added in Azithromycin and that was the combo that kicked it. He had some herxes but nothing too bad. We ramped up with one antibiotic...
My sons doc wants us to try Enula. It's part of the Cowden protocol. Don't know anything about it yet as I haven't researched it since we're not trying it until probably next month. But thought I...
Just use an address outside of NY. If you have a family member or friends address. You can still use a NY address for the billing address and it's ok. The address of the place where you have the...
Good info Garden Peace. I was astounded when I starting researching the ingredients in this so-called healthy alternative. Now I make mine for our family. I do it several times per week and it takes...
Lymefight- I'm right there with you. We live right up against a large nature preserve with trails through a beautiful meadow and the woods. My son loves it all beyond anything and I'm a total wreck....
Hi Lymefight- my son uses HLC high potency (pharmax brand) and Klaire Labs Therbiotic Complete. I'm sure some of the other Moms have some other brands as well - these are the ones that have worked...
Hi Lymefight- I'm so sorry that you are dealing with this. My son who is 3 tested positive for Lyme and Bartonella. Unfortunately we didn't ever see a bite - and I was checking him so we believe he...
Hi Margaret- you'll have to call to check but when I became a patient, they had a waiting list for the whole practice - not sure you can just go to JF. If you can get in , I highly recommend both -...
Yes, both my parents are seeing Dr R. After a few appts, my mother likes him and trusts him. It's very clear to us that he knows Lyme well. It's too early to say yet whether he will be able to help...
Great question Dancingbear! Lyme has helped me wake up!! Before Lyme and illness I didn't pay attention to my body or have the first clue about food. When we all got sick (my husband, son and I), I...
Hi Sarah- I've had "fun" with nausea as well. I always reached for Traditional Medicinals Peppermint tea. It helped a bit. I hope it passes quickly for you....
When I look back, things weren't "normal" from the start. I have no idea if that was because he was infected from birth or not though. As a baby, he had colic, didn't sleep more than 2 hours at a...
I also respectfully disagree with your doctor. I was in a similar situation to you - started showing symptoms shortly after giving birth to my son and during the period I was breast feeding. My...
Yes! Thank you Traveler and Mister Mike. I needed to hear both those quotes today. :)...
I'm on Mino. I started at 50mgs 2x per day and worked up to 100mgs 2x per day now. Have been on Mino and Septra for about 2 months. When I first started Mino, I got bad stomach pain and intestinal...
Hi RunnerGirl- both my parents are seeing the doctor that Girlie mentioned. We are unclear whether my parents have Lyme or other issues (though we all suspect Lyme). Anyway, Dr R is working with them...
Hi Sarah- Wow! What a story - your persistence is paying off finally! Thank you for posting. I'm sending you an email - I have an offline question for you. :)...
Ha ha! Mister Mike - I detest drinking coffee too - always have - and was completely horrified when one of my docs suggested them. However, once you try it, it's just not that bad. And good heavens,...
Hi Girlie- One of the things I've been doing for mold detox is coffee enemas. I'm definitely detoxing - have watched my mycotoxin levels steadily drop over the last year (according to Real Time...
Unfortunately no stories for you but I'm definitely interested to hear if you get over the insomnia and have any relief from LDN. My LLMD prescribed it for me and I have a bottle sitting here at...
Ah! I'm glad you found the tick and knew what to do! We haven't been to Montauk yet this season but truth be told I'm terrified. I know it's going to be a bad year for those buggers. We have teasel...