Has anyone tried this and received a good outcome?...
Anyone know which clinic CarlG is at? I also called Sponaugle and they are crazy expensive! Not to mention say that it takes a mon of 9 weeks there to improve!!! Would love any feedback on clinics...
Simela1, thank you for this info! I literally found out I was pregnant right after my LLMD diagnosed me which is he reason for the high does of amox I think. She was talking about adding in mepron...
Simela, were you only on amox during pregnancy or other abx as well? 3000 mg? Also, how did your ob handle it- did you get any pushback?...
Lymedisease1, there are actually a few lyme drs in San Francisco. I was in the Bay Area this summer where I strongly Believe I contracted it (in woodside area). I went to an integrative health...
Girlie, thanks for the help! Unfortunately I am too symptomatic to go without any kind of treatment for the next nine months. For myself, the two little ones I already have, and of course for the...
My LLMD tested me for it and put me on a simple zpack. I'm worried now that I should have been on something extensive? She alluded to it being something that was not too difficult to treat...
Was just wondering if anyone had any good experiences at The Hansa center? I just started amox a few weeks ago but I'm newly pregnant with my third child and so hesitant to be on a series of abx...
Thank you all for this wonderful information! I've been really stressed bc I have so many mold symptoms and lyme symptoms that I don't know how to decipher which is which. I have a call in with my...
Do you Know whether you might have mycoplasma? One of my major symptoms have been vulvar and cervical pain with constant infections and I tested pos for mycoplasma. Maybe something to ask your dr...
Does anyone have any info re lyme and pregnancy? I got a positive Ispot test and of course while I'm waiting for a treatment plant with my LLMD I learn that I am almost six weeks pregnant. I'm...
Springsjean, wondering if you had constant tremors? I too find that taking restoril at night relaxes me (doesn't necessarily put me out) but it helps with the tremors. How long did you have to be on...
Just wondering if anyone has had experience with this test? I tested positive for the ispot (low amount) but positive also for mycoplasma and coxsachie (sp). Anyone else?...
IHL, I don't know enough about rimapfin but I do know zithro is one of the ones my LLMD uses for Bart. How are the side effects of rimapfin?...
I had an appt with my LLMD last week. She strongly feels that I have a mold toxicity and Bart. I have the mthfr homozygous gene which is why she felt that all my body needed was a trigger (Bart) to...
Happyjo, how long have you Been taking ambien? Totally agree with you on the need to take something to sleep. It's awful. I was getting heart palps before the restoril unfortunately. :( I think the...
Got it! Thanks traveler...
Question- if you test high for cortisol is there any kind of treatment? Anyone have suggestions?...
Okay well not to complicate matters more but how do we determine early lyme vs late lyme? Esp if tests are all inconclusive?...
DazedPete, that's exactly what I thought. His reasoning is that if you are treated with medication for an extended period of time, you heal but once that medication is taken away then you get sick...
I'm going to see an LLMD on Monday but the integraruve med dr I've been seeing nearby believes in a six week antibiotic treatment in conjunction with hyperbaric oxygen to kill off lyme. Has anyone...
Traveler, that was an excellent idea! You just saved me $600!!...
Happyjo, I'm on restoril and I find that helps too. Seems like benzos are a necessary evil at this point, huh? How long did it take for the abx to help with that symptom?...
I have spent a fortune already on trying to get to the bottom of everything- bloodwork, alternative docs, primary igenex work, etc. My igenex came back ind for some strains and WB positive for strain...
I had bloodwork done for my adrenals- that part was covered through insurance. I've heard mixed reviews about the saliva test and it is hefty at $280. Anyone have experience with either? Waiting in...
Does anyone else have this? I have the tremors so bad that when I try to nap I feel like I can barely fall asleep and then I wake up feeling like my heart is bearing out of my chest and shaking. This...
Prairiemomma, I know exactly what kind of procedure you are talking about because I had a cystoscopy done too! It sucks! Except at least your doc acknowledged that you had inflammation- mins says,...
I have had really bad muscle twitching and went to see a holistic doctor who does iv fusions with vitamins incl magnesium and b vites. It's well worth the money as the mag and cites go directly to...
IHL, do you have co infections? Do you find that it's worse at certain times of the day? I find that mine is more painful in the evening. Tremors are the worst then as well as the am when I get up...
Anyone experience any bladder burning/ interstitial cystitis like pain with lyme or coinf? I feel like the brunt of my infections have started in the bladder/pelvic area...
Urgent care should absolutely do a pelvic exam. They are trained to do that and look for things like ovarian cysts, etc....
One of my main issues has been insomnia. After not sleeping for months on melatonin or 5htp, an alternative dr prescribed Klonopin. It helped for a little while in combo with melatonin (even then I...
Can you share the adrenal support info when you get it? Thank you so much! The fact that she was able to heal on herbals alone really gives me a lot of hope...
Did anyone test positive for active Epstein Barr while on the quest to determine whether or not you have lyme? My epstein Barr came out positive for active infection, still waiting on hsv6 and...
Sueg, I'm still in the process of testing but the first symptoms I had were feeling like I had a UTI with negative tests and then recurrent bacterial and yeast infections, over and over again. Do you...
Because some people have been exposed to Lyme yet it is "inactive" couldn't this mean that their partner could have been the one to transmit it initially? In other words, if my husband contracted it...
Springjean, I take magnesium citrate. Is there another type you would recommend? I take about 1200 mg a day...
I have major insomnia- I can fall asleep at night with melatonin but wake only a few hours into it and have to take more. Then I'm up by 5ish and can't get back. When I try to nap during the day I...
Am just curious as to how those of you who have treated long term with abx are handling candida? I have candida overgrowth and I swear if I take a weeks worth of abx I contract yeast. Would love some...
Hi! I did see the link- unfortunately they aren't LLMDs :( or at least I know one of them isn't- he's the infectious disease dr I went to see yesterday. And he definitely doesn't believe in prolonged...
Hi, I looked into one of the drs who is three hours away and lyme literate. They sent me a million forms to fill out (as expected) but one of them said that I must have a PCP who is willing to work...
Thank you Katebirch! If only my dr would give me antibiotics freely I would absolutely start them now. They think I'm nuts. The doxy would be something def good to ask the Integrative Med dr for on...
Thank you, Katebirch. According to the ILADS site the closest LLMD is three hours away but I was told that an Int Med dr near me does testing for Lyme. I hope they're right bc I'm literally so...
Today I had a brain MRI for the neuro symptoms I've been having along with an appt with an Infectious Disease dr. He definitely is not on board with the extended ABX treatments for Lyme but agreed to...
I believe that God gives his hardest battles to His strongest soldiers. I've been sick for five months and still have yet to reach a diagnosis. My sister told me that if God were to give this to...
Thank you! This is helpful! I wanted to avoid having to go to multiple doctors as their testing fees and consults are so expensive!...
Hi all, After doing searching on the association websites along with help from some of you fine people I received several names of LLMDs. They are all a minimum of three hours away. I did some more...
Hisgrace, thank you so so much for this helpful information!!! I'm going to look into contacting them right after results of my MRI as well as more igenex testing. This is so helpful...
Pirouette, that was so helpful! Thank you! Maybe this will help the new integrative med dr I'm seeing on fri get off to a good start. I almost had to laugh when you suggested my dr work with a...
Yes and thank you Dancing Bear! Igenex igm result: neg 18 kDa + **23-25 - 28 - 30 - **31 - **34 - **39 IND **41 ++ 45 - 58 - 66 - **83-93 IND Igg western blot: 18- **23-25 - 28 - 30 - **31 - **34 -...