I know first hand how frustrating this must be for your wife. I have gained about 50 pounds as well. I played pro beach volleyball and have been athletic and healthy all of my life. Even throughout...
Ive had them all my life due to allergies, didn't seem to worsen with Lyme and co infections. One thing that does help is antihistamine eye drops both inside and underneath the eye. There are over...
I'm really surprised to see so many people with dizziness, leg weakness and balance/gait issues. I really thought those symptoms were in the minority on this board. 1. Dizziness 2. Balance/Gait...
There's a lot of conflicting information on when to take this with other meds, does anyone else take it and could you share your schedule? Also, any side effects? I did a search and really didn't...
I've had this symptom twice now, the "flares" lasted a few weeks. It was by far the scariest symptom I've had since being diagnosed. I went to the ER the first time....the second time, I just tried...
My situation is similar to SailorKims.... I work in a very stressful and demanding industry in upper management, on some days...I could barely walk into my office but somehow I was determined to not...
Thanks everyone! I'll keep everyone up to date... ShutterGy, did you get the TGF-B1 test as well?...
So I've been treating aggressively for Lyme and babs since March 2014. Have good months and then REALLY bad spells. My symptoms at their worst, (last two months) leg weakness/paralysis (had 4 MRIs...
Frank, I did this when I got home that night. I couldn't sleep until I did. lol Thanks for your input Chris, can I ask - what were the symptoms you have/had that were typical of MS?...
Thanks all for your support guys, sometimes it just helps to vent. I've met opposition on my diagnosis before, mostly in the ER...I usually just wanted to "treat the symptoms" and wasn't looking for...
Well of course Rowing Mom, I understand that, I have a job, but fighting this disease is also a "job." It's clear from your daughter's experience that you've advocated for her, and it's wonderful...
I just posted this on the MS board, thought it would benefit here as well... Just to recap, I was diagnosed last March with a CDC positive western blot. I've been aggressively treating currently for...
Thanks for checking up on me Gretchen, to put it mildly....it was a disaster. It was the WORST experience I EVER had with a doctor. And I've dealt with a lot in my 45 years. To sum it up, she...
Thanks so much guys for your responses. They helped a lot. I'm getting ready to go for my appointment. Scared :(...
Hi, I posted back at the end of the year about some scary symptoms I was having. Mostly with extreme dizziness and leg weakness, to the point of paralysis. I was diagnosed with lyme (cdc positive)...
I use Xanax. Probably not the best thing, and I'm really careful when to use it when I absolutely need it, like when I feel like I'm going to have a heart attack from my anxiety. Runnergirl is right,...
Hi Jessica, So sorry you are dealing with these scary symptoms. This is my main symptom, and it seems to be worsening. Throughout my illness, my biggest complaint was dizziness and heaviness in the...
Hi Babana, I'm an HR Director for a Home Health/Home Care agency, and I know the frustration you must feel. There's a lot of red tape with home health services, especially for a home health aide....
Ive had this for the past 3-4 months. It finally seems to be subsiding....My LLMD wanted me to take colloidal silver drops, but I was too chicken to do that. :\...
The exact opposite has happened to me. Gained 40 pounds. I'm probably pre-diabetic at this point, have acquired high blood pressure. I've tried everything - even running 5 miles a day this past...
When I first started my pulsing, my dr had me off of all meds for one week a month. I was on major duty meds M-W and off Thursday-Sunday. This seemed to work really well at first, and even on the off...
I started treatment last March. Had some vast improvements initially, then it seemed like everything came crashing back down. I have had about 5 ER visits in the last 6 months. Had a lot of new scary...
Which tests did you get done? Just the TSH? Hopefully you had all thryoid tests done, including T4, Free T3, Reverse T3, etc. It depends on the dr. Most endo's I know, are very conservative and wont...
this happens to me a lot, its awful. Have you had your adrenals checked? I had mine tested about 6 months ago, and it seemed normal....but I'm not sure how quickly that can change with Lyme and co....
Before I used difflucan, which wiped it out in a few days, I found this home remedy, sounds crazy, but it did work, however it makes your mouth a bit numb. 1/2 teaspoon milk of magnesia with 1/2...
Had MRIs done yesterday after scary leg paralysis a few weeks ago, was thinking MS, tumor, ALS...What a great Christmas present, they called this morning with results and everything checked out fine....
Good luck and good vibes sent your way! Hope you get some peace from your visit!...
Thanks Maui. They didn't say I had to fast so I'm not sure if they'll just inject. I just cant wait to get this over with...
I had some temporary leg paralysis a few weeks ago. I've dealt with a lot with Lyme over the years, almost got used to the symptoms, but this scared me like nothing else. Its indescribable the...
I'm getting 2 tomorrow. How do they administer the contrast?...
Thanks Bad Mojo, that helps a lot!...
Have you had your adrenals checked? A lot of people experience adrenaline rushes first thing in the morning. Maybe that could be contributing to it?...
Moofty, Can you enable your email so I can ask you a few questions? Thanks so much!...
I was diagnosed with Lyme in 3/14. Been treating pretty aggressively. Some of the "lingering" symptoms were dizziness (more so balance issues/like feeling drunk walking on a boat) and a right heavy...
I am going thru this very thing myself now. Dizziness was one of my main symptoms since beginning treatment almost a year ago, and I've had some periods when it went away, but now it's back. I...
Hi All, Thanks for your well wishes and thoughts, I really appreciated that. My PCP did a lot of neuro/cognitive tests with me, and based on the ER visit and a comprehensive review of my symptoms,...
About two weeks ago, I started experiencing weird weakness in my lower legs. Almost felt like a "wave" of complete and utter weakness. I was at work when it first happened, and luckily it went away....
Breaking Bad. I just started my 6th time watching the whole series. I get lost in it. Another bonus, it really made me take pause, with how I choose to deal with my disease. Ala Walter White...
I was taking Biaxin, Omnicef and Flagyl for about 6 months. Saw some improvements at first, but then I just didn't feel like I was making any improvements. I saw my LLMD last month, and he clinically...
for me, it was/is anxiety. I started Mepron 2 weeks ago that has helped tremendously. The other Lyme symptoms that didn't seem to improve that much with 6 months of antibiotics - dizziness...lead leg...
Welcome Tennisgal. I live in Pittsburgh. Please enable your email, and I'll send you my LLMD info....
Just curious, when most doctors say the thyroid is "Fine" it really may not be, according to updated standards.... Do you know what her readings were? Did she JUST get the tsh? Or other thyroid...
What I find most prevalent for me is that I forget things that were just told to me like minutes before. I"ll be in a meeting, reviewing stats, details, etc...and 2 minutes later I forget it all. I...
Thanks all! I started today. I chased it with a spoon of almond butter. Wasn't bad at all. I'm supposed to do one teaspoon twice a day, but I'm just going to start at once a day for the next few...
LLMD suspects I now have babs, and wants me to continue with biaxin, remove omnicef, only use flagyl at the end of the week - at the end of the month, and add mepron and artimisinin daily M-F I was...
I get this a lot too. It was pretty bad at the beginning of treatment. I had a few good months, and now recently it came back...not as bad. It's really disconcerting. Feels like my heart, went to the...
I was doing really well up until August with my treatment, then started getting some of the old symptoms again. Dizziness, heavy leg....but the one issue that seemed to go away was intense heart...
I can totally relate. Going to sleep at night used to cause me enormous anxiety, for fear I wouldn't wake up. I think if it makes you feel better mentally, then go. You're not going for Lyme persay,...
I was diagnosed in March. Started treatment in April with Biaxin, Omnicef, and Flagyl, along with A-L drops, Naturethroid, (sluggish thyroid) and a ton of different supplements. In April, I was...
You put the drops in water, in a glass...not a plastic cup. Do not put it in juice, just water. Wait for about 30 seconds, then keep it in your mouth about 1 minute. You want to wait at least 20...