Yes, the shots are the peptide Thymosin Alpha from a compounding pharmacy. I inject 0.05 ml daily. I think I really started to see improvement before the injections though, so it really probably is...
Well, sorry about posting on this old thread. I’m not sure if the serrapeptase I got was a bad batch or what, but I found no difference when I was taking it vs. before. I know some supplements are...
I STILL haven’t gotten a chance to start the serrapeptase. I have too much going on to take the chance that I’ll herx! I’ll try to start soon. I hope things start to calm down soon!...
Hi MooseSafari, I want to let you know that it’ll be a few weeks before I start. I have so much going on right now and can’t afford a herx! However, I’m cautiously optimistic just because that’s my...
Traveler saved me when I literally thought I was dying! It was my first major herx. Lol!...
It is used for opening up biofilms...so you may get an increase in lyme symptoms... Thanks so much, Girlie! You know I love getting advice from you! You're welcome.... just doin' my job. I don't...
It is used for opening up biofilms...so you may get an increase in lyme symptoms...[/quote] Thanks so much, Girlie! You know I love getting advice from you! I’m going to wait until some of this...
I am so anxious to try this for chronic pain. My arthritis has hit a new level, so Advil isn’t even working at all at the moment. I’d rather try something natural than big pharma, so I ordered it....
Alyeska, I understand your thinking and share some of the same internal dialogue. But, don't underestimate the number of people who care about you, and, if they understood your condition and...
Thanks so much for your help and encouragement, Sara! Unfortunately, I just don’t feel ok with asking for financial help with my treatment with GoFundMe. It’s different when you’re young and starting...
Oh, good luck! I’m so happy to hear that your daughter is reading again for fun. What a huge win! I certainly hope you stop herxing soon and get to enjoy some benefits too. I can’t wait to hear more...
I'm probably repeating myself and a ton of others on here, but my brain fog lets me innocently think I'm not being annoying. Are you detoxing enough? Traveler has really been helping me with that. I...
I have the same thing with my head being tender. I really thought it was because I wasn't shampooing as often and because I put it up in a ponytail. Sometimes trying to sleep it's just so...
I'm with you. I'm having the worst time just sleeping. I finally made it to the grocery store, but my kids had to carry everything and push the cart. Then the youngest (teen boy) keeps asking my to...
I have the same things going on, especially with the shower. :shakehead: it's awful. Who knew what a luxury taking a shower every day was? I took it for granted. There are so many things I can't do...
I'm not sure there really is a connection. I think people were just listing celebs who had it and thought that it might be more prevalent in blue eyed people. It's kind of like how some people are...
Oh, it sounds like some things are looking up a little. I'm so happy for you! If we can just get through those really horrible times (for me usually when I'm exhausted and still can't sleep) remember...
I think we're just wondering about the genetic mutations that go with blue eyed genes and blood types. I've been sick as a dog with this for years and never recover quickly from things. I would...
Wow! So he's obviously noticed this already. You'd think others would be making this connection too. It really must be gene related! All of my kids have blue. I sure hope I didn't pass this to them...
This is great! It gives me a good brand to try, and I feel like I can jump right in with it since I've already been using it forever. Thanks so much!...
Thanks so much for this! I might as well try it since I like stevia anyway to take the place of sugar in my drinks. I've never noticed any difference in the way I feel when I use it. I have soooo...
I'm exactly the same way as you two it sounds! I'd much rather not take anything, but I do have it and take it if I'm particularly stressed or going somewhere that I know will be stressful... half...
Wet dreary days make my symptoms worse too. I wonder why?[/quote] Could we possibly have mold issues? I'm also dealing with candida right now. My mother used to feel worse on rainy days too, but I...
Interesting. Is O neg the universal donor one, or is that O+? Whichever is not universal is what I think I am. I used to know but, surprise! *brain fog!* Whichever one it is, no one would want my...
I'm seeing this a little late but wanted you to know that I was in exactly the same state you were at the exact same time. I wish I had seen this because I was a flat out mess. Full moon? Usually I...
That's what I keep telling myself. That soon there will be better treatments. I hope I can hang in there that long. I've been going down hill fast lately. I'm so glad I found all of you! I mean, I'm...
Debbie Gibson has brown I think....
Do you happen to know how they're using it? I feel like I've hit a plateau and can hardly participate in life at the moment. I've recently gone off abx and am being treated with fluconazole for...
Tano, how do you know all of this stuff? I had no idea Michael J Fox and Robin Williams had anything to do with Lyme until I just read this and googled them with Lyme disease. I feel like I just...
I have dark blue eyes....
So glad to hear you got the stuff done for your brother! The people in your life who "get it" really know how much effort you put in! Good luck getting to your appointments, and I hope you have a...
Oh, and I think you're so right about stress. My symptoms get so much worse when I worry about things or have a lot of stuff going on. We've had some bad stuff going on with a family member the past...
Even just SENDING a birthday card can be hard some days, so making one would be even worse. Would your brother understand if you tell him you have birthday things in the works for him and that...
Exactly! The CDC isn't helping. What I do find amazing now is that almost everyone I talk to about Lyme actually knows someone else who is having major medical problems with it, so at least there's...
dacarte3, thanks for the response. That makes sense. I'm just still chipping away after so many years and seem to get worse and worse. It's rainy here today, and I always feel worse on wet days, so...
Now I'm reading that it has only worked in lab environments and that it would only work in humans if our intestines absorb stevia or if we took it intravenously, and neither case works apparently....
A friend just sent me this about stevia curing Lyme. I haven't researched it beyond this article. Does anyone know more? I'm going to keep looking, but so many of you are so much better informed than...
18,000 dollars... I converted it from euros. There's a place I found in Arizona that treats with biophotons. I have to research it more. I herx if I take a really hot bath. I've never been over 103 F...
I don't feel that you were being insensitive. I think you reached your breaking point. I think A LOT of people have negative thoughts at one point in their lives or another when something absolutely...
Just heard back from St Georg Klinik about the hypertherapy costs. Approx. $18,000 for two weeks, but they recommend your sexual partner get treated too (one day detox, one day hyperthermia) for...
Your story is heartbreaking! I can't imagine what you're going through with your kids having it. It's bad enough dealing with it as an adult and not having people understand. My heart goes out to...
Just heard back from St. Georg Klinik. The two week basic Lyme treatment costs about $18,000. If you want a friend or family member to stay in the room with you, it's approx. $80 a night for them....
I love this post! Yep, faith, dogs, and a sense of humor are good. I also like to plan trips on TripAdvisor when I'm really feeling caged. Not that I'll ever be able to afford them or feel well...
I remember being that way a few years ago. I think that might be why people don't think Lyme is a real thing sometimes because we go from being well and happy to sick so suddenly, like we're faking...
I just saw this video and thought of you. I think it's at about 2:20 when they start talking about losing close friends and how your social circle changes....
I feel the same about social media. It just shows me all of the things I can't do. Honestly, this group has really opened my eyes. There is a whole world of us out here! I'm so glad I found all of...
I'm so happy to read this. You give me hope!...
This is exactly how I feel. I'm showing it to my husband and teenagers! Perfect....
This is great. Thanks for writing it....
I just want to say that I'm so grateful to have found all of you. So many of you are putting into words the thoughts in my head. No one, not even the people closest to us, can understand how...