I just started having burning pain in my back. I thought I might have shingles but never broke out. I had started plaquenil again but that's all I was taking, I still have it but not as intense. I...
I was told by the Dr who prescibed the plaquenil that the 2 drugs-biaxin & plaquenil work together to kill the Lyme. The theory is plaquenil changes the cellular PH: "Some antibiotics were better...
I took it w/biaxin & then added penicillin and I feel 80% better. I did feel like death when taking it all so I just stopped one day in the summer. I couldn't believe how much better I felt. I took...
I'm so sorry for you Sebreg. Another thought is accupuncture. I definitely was headed in that direction. I just couldn't afford it. I also wanted to do energy healing. I thought if they worked-great...
Thanks SailorKim, I was so tired last night I just realized I typed CDIP instead of CIPD! That's my Lyme kicking in...still confused and see things backwards....I'm so glad you didn't give up or give...
Hi Sebreg, I started a heavy dose of abx and had to stop because I had a severe allergic reaction which was not from the meds but I didn't know that at the time. I started them a few weeks later...
Hi SailorKim, It's so ironic that you may have CPID or MMN. I don't know if you remember my posts to you a while ago but I was telling you how my companion was diagnosed with ALS but in the end he...
My husband bought-"Why I can't get better"-one copy for us and he sent one to my primary. Every Dr. should be required to read it.........
This is very interesting as this is what I have been doing and I do feel better: http://www.google.com/prdhp?hl=en&tab=wf...
Hi Mister Mike-I saw a few posts from you about biaxin. It left a metal taste in my mouth and my stomach hurt so bad and I felt awful. Don't know if it was biaxin/plaquenil/penicillin but the combo...
There were days I felt so lost and hopeless but I hope those days are behind me. I am not 100% better but I am hopeful I will get there. I feel it's a combination of drugs and each person is...
I was diagnosed with Anaplasmosis in 2014 and a few months later with Lyme. I was treated on & off w/doxy for months which never really did much for me. I had IV rocephin for 1 month & oral cephin...
Hi IHL, I had one in September and I drove myself an hour to the hospital. had the picc line inserted, had a treatment and drove home. I won't say I wasn't nervous because I was but I was so sick...
I had one in September and took a shower the next day with no issues. I was allergic to most tapes and can't remember what I finally used but I did find one that was gentle on my arm. I had some sort...
I am from the area so feel free to send me an email....
Yes he is a very well known ILADS Dr. & thus the price tag. I want more from someone I pay that kind of money to. The drugs are common drugs. I paid for the prescription as I can't get it from my...
Traveler, I had posted about my companion being misdiagnosed with ALS a few months ago but then diagnosed with MMN and was very confident that is what he had. I do think he has MMN as it's been 20...
I did drive 3hrs to see a new doctor. I got 10 minutes of his time and 40 minutes w/an assistant who just retyped answers already filled out by me into a computer. My rash which I still have that...
Thank you Traveler! I'll probably go.....I don't want to lose the ground I seemed to have gained....
Me too. My mother had a TIA and was hospitalized but ok now. Hope your situation worked out ok... I am a little less swollen but broken out still. My pcp told me it could take 6-8 weeeks before it...
I went to my pcp and he is sure it's an allergic reaction to one of the abx. Today I am still swollen & look like I have a blotchy sunburn. It hurts more than it itches. I can't believe I am still...
Thanks, I agree after reading more. I have been taking Zertec in the day & 2-3 Benadryl at night since Friday. I don't even want to admit out loud that I started to feel a less Lyme sick in the past...
Traveler you are very on top off all of this. I am doing the above but also furiously reading. If benadryl and a topical excema lotion haven't touched it and I am getting worse, would you think it...
It's bad today. I will see my dr tomorrow but he really won't know much. The specialist who put me on the protocol in April has retired. I won't take prednisone. I have come to far in the past 7...
He is out of town but I sent him pics & a text. He said take a 3 day break and benadryl. I am more worried about how swollen I am. I was wondering if it was a herx. I actually started to fell a...
I have been on biaxin & plaquenil for almost 7 weeks and 2 days ago I broke out in a rash everywhere on my body except my face. It both itches & hurts. I am allowed to take 3 day breaks from my...
I had anaplasma as did my dog last April. I took doxy for months and all my blood work shows that the anaplasma is gone but I still have a high Lyme infection. It's a serious infection and I don't...
For me it is. I lost my wallet & my phone. Spent the last day looking all over for them. I don't remember from the morning to the night..........I can't figure out simple things anymore. I am lost a...
Thanks. I was just curious if anyone else had knowledge about the western blot being able to tell how long one was infected with Lyme. Of all the months I have been reading about Lyme and testing, I...
I tested positive for anaplasmosis and negative for Lyme with a Western Blot Test, A few months later I was given a C6 Peptide test and it was positive. I just saw a specialist and he said he could...
My first symptoms were dizziness and severe confusion. I felt so lost and out of it. I had anaplasmosis from my bloodwork and later diagnosed with Lyme but my first western blot was negative and a...
I did one month of IV rocephin in September after 6 months of doxy with no results. I didn't like having the picc line put in. It was uncomfortable but once in I was fine with it. I did it in the...
Astroman, I am 59 and worry every day if I am going to get through a work day and what is going to happen to me financially if I can't work. I was supposed to travel out of the country and I had to...
Sydney, Your symptoms sound more like it's in your muscles but reading your symptoms, I have seen all those appear in threads over the past few months. Someone I know has RA as a symptom but is also...
I am 59 and always worked 2 jobs-one waitressing. I always said I could run circles around anyone I worked with! My first symptoms were dizziness/wooziness/nasousness/extreme...
I take adderrall. It has certainly helped me focus....
I can definitely relate. I felt sick for 4 months with symptoms that would come & go but finally got so sick I went to a clinic and was diagnosed with anaplasmosis. Three months later I was diagnosed...
Utahgirl, I am interested in the name of the Dr in Albany. I sent you an email but it bounced back. Thank you!...
When I was diagnosed I was out of work and thankful as I was so sick. I had an IV picc line in Sept. for 30 days and was feeling so good that I applied for a job & started 2 days after they removed...
I read a very interesting article last night about a dr who believes that all MS, ALS, Parkinson's & Alzheimer disease are actually caused by bacteria from Lyme and 90 MS diagnosed patients who were...
When I was out of work last year and had Obama care which was medicaid in NY I actually had a lot more services available to me and no questions at all about my treatment nor the picc line I had. I...
Hi Margaret, I feel so bad for you because I at least have family & a companion when I feel so sick. I don't know anyone in NC but can you maybe get help through your insurance-someone to come in and...
Shingles?...
I asked for thyroid testing last month-my pcp said the tests were costly & refused. I've gained 20lbs in 3 months& have chills & always dizzy/wozzy......hoping the specialist I go to will test me it....
Why can't someone start a class action suit against the companies that put out tests that have such a poor accuracy rate. The reason so many of us are sick is that we had a negative test and went...
BDL-The first symptom I had last Jan was dizzy/wooziness & disorientation. I thought it was vertigo, then it got worse with many other symptoms. Diagnosed with anaplasma & then Lyme. I am dizzy &...
No one understands that feeling unless they're sick. I feel the same. I get to a point in the day and then I can't function. I can barely drive home. My brain hurts, I'm exhausted and I can barely...
A new and improved Lyme test http://sheamedical.com/america-needs-to-step-up-lyme-disease-testing...
He has written papers & given lectures on Lyme and suggested a course of treatment to the ILADS. He is a well known expert on Lyme disease. He accepts insurance.....a huge thing for me!...
I HAVE to get better. I really believe there is a way to get better. Years ago I was interested in alternative ways to cure ailments and subscribed to a newsletter about natural cures. The book was...