DaveNJ..... I emailed you....
I do both rife and bee venom therapy. Abx did nothing for me! Not even IV abx. Herbs were useless and a big waste of my time and money. I do have several symptoms that have improved. Some still...
I use the GB 4000 with MOPA and love it!...
Haha. The sniff test! Lol. I'm not sure either. Guess I will get a test done....
How can you tell the difference between diarrhea and c diff?...
With the exception of anxiety flares, I haven't herxed either side I started treatment a year ago. What were your herd symptoms?? How long into clindy did they start? How long before they blew over?...
I have horrible arm and leg weakness....
I saw yor post on the FB group! Such great news that you are able to do ok under all that stress. Happy to hear that your son is on the mend. Thank you for directing me to that wonderful group! They...
I did join the FB BVT group that was suggested. Seems like a good place to start. I also ordered her book....
Ok. Maybe I'm just being impatient. Maybe I'm expecting too much as 6 weeks. I don't have pain. Only neuro.....anxiety attacks, insomnia, fatigue, brain fog, severe leg and body weakness. Maybe it...
I'm curious....... .....do you herx? .....does detox help? .....do you then have improvement? Is it strange that I never herx and never have improvements?...
I do take IV flagyl with the rocephin. I also do serraptase for biofilm. I have not herxed on any meds or herbs. Is that normal? Do most of you herx? I just feel worse on my meds. Not a herx, just...
After 6 weeks of IV rocephin and no herx or no improvement, I have to wonder.......is Lyme really my problem? I didn't react to herbs or orals either. Nothing. How is that possible if I really have...
Thank you! I really may try this. I will read up on it first. I haven't had any luck with antibiotics. Even the IV's haven't helped....
How do you find the BVT groups on FB??...
Myeezy...... I live in Saratoga also! We should get in touch! Feel free to email me. I'd like to know if the BVT works for Neurolyme? My symptoms are all neuro......brain fog, anxiety/panic,...
Do you actually use live bees??? That seems so creepy. I'm so phobic of bees.....lol Can you get the bee venom in injection form? I'd "bee" willing to take bee shots. Ha! That's so great that you...
How long were you on IV's before noticing improvements? Did you try orals first and not improve at all? How do you feel now?...
My husband is going to the ILads conference in Florida this October with my LLMD!! We are especially excited about one of the presenters doing a gig about pediatric Lyme and stomach issues!! Since my...
Thank you for all the thoughtful responses! I'm guessing that it is a herx. I think I will email my LLMD with the update. She said at my last appt that not everyone responds to herbs or orals. Some...
I began treatment for Lyme last September. So, almost a year ago. I am currently 0% better. I have tried..... 9 months of heavy duty orals........ 0% improvement and 0 herx (except anxiety with...
The reason why I like it is because it helps me when I have doubt about the Lyme diagnosis. After I read the article, I'm like, "Yup....that's me! It definitely is Lyme!"...
Thanks for the hyper link. I'm not very computer savvy. Xoxoxo...
I found this to be very informative! ... http://www.healinggrapevine.com/health-hazards/lyme/lyme-disease-aka-the-impostor.html ...
My anxiety from the rifampin hit at about day 4. It was a long, terrible day. But it blew over by the next day. I, too, am confused as to whether it was a herx or just a side effect. But, either way,...
http://www.anapsid.org/lyme/lymeseroneg.html http://www.anapsid.org/lyme/lymeseroneg.html ...
I am sensitive to meds. The rifampin gave me terrible anxiety herxes. So I had to gradually titrate up. Week 1: 150 once a day for the 5 days Week 2: 150 AM (every day) and 150 PM (every other day)...
Can you ask your doctor for a script for 150 mg strength? If not, maybe purchase the gelatin capsules and empty 1/2 into the capsule....
My doctor has me take 5 days on and 2 days off. I started with 150 mgs. I'm now up to 450 mgs....
This study about Lyme and IV meds says that most people don't feel improvements until after 3 months. So, don't panic if you aren't feeling better. I just finished 1 month of rocephin and feel 0%...
My 11 yr old was just diagnosed with Lyme after years of nausea, headaches, and stiff neck and endless doctor visits. It took us 2 months to get in with the LLMD. See if your pcp will order the...
Leg weakness Anxiety/panic attacks Poor memory/cognitive dysfunction Hair loss Vision problems Insomnia...
Funny.....my daughter's upset stomaches are always worse around full moons. Her nausea really acts up. This has been happening for years. We just learned that she has Lyme!! Finally, an explanation!...
My LLMD really wants me on IV doxy. I have declined and insisted on IV rocephin because when I took oral doxy, it really messed with my head. It triggered severe anxiety and depression. My LLMD said...
Yeah, I did the search function for this site and did learn a a little. But I wanted more info. Thanks for the great links and suggestions. Xoxoxo...
Since both my daughter and I have Lyme, I am interested in rifing. Any links that I can go to learn more? How do I find someone in my town where I can try it out before purchasing one? Anything else...
Hotze told me that Lyme blocks thyroid hormone receptor sites. I was told by them that no amount of thyroid hormone would be of benefit until the Lyme was cleared. In my case, it was true. I am...
I finished my first week of 2 grams of IV rocephin 5 days on 2 days off. No major herx. Just a little more tired and weak, but nothing too bad. This week I add.....IV flagyl 2 times a week and oral...
Found it....... She lives in Salt Lake City.... http://willtherebecake.org/about-me-2/ ....
Does anyone know which medical codes are more likely to allow for PICC approval? My insurance denied my PICC because my test was CDC negative for Lyme. I did file an appeal, and it was still denied....
The woman in this video is from Utah and she has bad Lyme. She also has a good blog but I don't have the link. Sorry. https://m.youtube.com/watch?v=bNOW0a9tp_0...
Thanks, IHL. Meg is taking her cefdinir. It does make her nausea even worse. I cut back her dose a little to give her time to adjust. She's only been on it a few days. I went off all orals and herbs...
My husband just rx'd her cefdinir until she can get into LLMD. I may add some Jap knotweed next week. I'll have to get my Buhner book out and look up kid dose. Poor kid's been sick for 3 yrs and no...
My LLMD also treats peds. Can't get her in til the end of August....
Thanks guys. This really sucks...
IGenex pos, CDC neg. tummy aches, headaches, stiff neck. Sick for 3 yrs. worse over time. Do I insist on IV abx?...
About 3 yrs....
Thanks. Mi already appealed and they still denied it. Said that I was CDC negative and therefore IV is considered experimental. How many on here pay for their own PICC?...
LLMD hasn't seen new IGenex yet. She feels that I need IV's. I'm still the same. I've had no improvements. I see that there are many new people on this forum. Yikes.!...
My 11 yr old has been complaining of stomach aches, headaches, and recently a stiff neck. The doctors could never find anything. I had my husband run an IGenex test. It showed.... 23-35 IND 31+ 34+...