Holy (swear word)! Had an initial herx when I started Bicillin, and, now, on my sixth shot (which I got today) my entire body is WIPED - can barely get off the couch. My fever is also staying strong...
superj50 - I'm also on Mepron. Mepron, Flagyl, and Bacillin shots. Feeling so depressed, it scares me. I feel tired and wiped out all the time and just plain hopeless. I get scared that these strong...
Does anyone else get insanely depressed and super paranoid when they herx? Every time I herx I fall into a dark depression and I get so paranoid that I'm on the wrong track and that Lyme and co's are...
Well… It turns out my doubt was part of my herx. Go figure. My herx is fading, and with it…my doubt. Thank you all for the support. Sometimes when I am going through a really terrible herx, I...
I know we are supposed to get worse before we get better, but I mean...sometimes this just seems insane. I"m beyond exhausted - having some of the worst fatigue I've had since this all started. Is it...
I started treatment for Lyme in August. I initially felt better. Then it was up and down a lot, BUT...since January, I feel like the good days are few and far between. LATELY, they are barely there...
achievinggrace - Oh, OK. Cool. Got it. :) Also, for those of you following the thread. I stopped the meds and did a major detox yesterday - pulled out all the guns, and I feel much better today. I'm...
achievinggrace, these aren't veterinary meds. not illegal or off-label....
The die off became too much for me to take, so my LLMD is having me take a momentary break to detox. I'm so curious how others have reacted to this protocol, but there is not a whole lot out there...
Has anyone else done this? If so, what was your experience? The protocol consists of five different parasite meds, Biltricide-Ivermectin-Pyrantel-Albenza-Alinia. I'm two weeks in (currently on the...
I've been treating my Babesia for a few months now and I feel like I have been on and off herxing the entire time. My biggest complaint is the exhaustion. I'm so tired all the time. Other than that,...
rowingmom - thanks! going to check that out...
SLML - gonna check out zeolite for sure! i've never tried that. also looking into Carlsons ACES + Zinc with NuMedica Mineralplex. i have yet to find something that works for energy, and i feel like...
So, most of us are on a million supplements. Let's be honest, it's impossible to know for certain if every single one of them is working (or not working). We have to guess and assume a lot. It's just...
rowingmom, Glad to hear she had some improvement on the Malarone. Now that you mention it, I do think my cognitive issues have been better the last couple days. I've been too distracted by the herxy...
Thanks achievinggrace! Sounds like you can relate. The fact that I wasn't having daily fevers when I was off it, and I am having daily fevers on it, makes me feel like it's a herx of some kind. I...
Can anyone tell me what their experience with Malarone was like? I initially had a strong herx, and now I'm just having lots of fevers and bouts of exhaustion, which has been going on for weeks now....
Wow. I'm having my second babesia herx since focusing my treatment on co-infections, and it is a doozy. I'm having night sweats that leave me so soaking wet I have to change my clothes in the middle...
My treatment has been going amazingly well. So many of my zillions of symptoms have either faded or disappeared completely. It's pretty awesome. I still get mini-herxes every once and awhile, but if...
Hello, I had a couple herxes that were so bad I legitimately "lost my mind." It was terrifying. Throughout the entire thing (the pain, the exhaustion, the fevers, the nausea, dizziness, rashes,...
Healing98 - Yeah, that's what happened to me with my Bactrim herx. I was totally fine for a few days, even thought "maybe I can get through this without an awful herx," THEN BA-BA-BAM. That herx was...
It sounds like most of us had our worst herxes during the first round of treatment. Interesting that some of you had your worst herx from herbals. I've never had a really terrible herx from an...
I order it directly from the website with a physicians code, and it is still $90. Hmmm - maybe I can talk to my LLMD about getting it for me, especially if they can get it for $50. The physicians...
Try Fortify Orange is very expensive, but also incredibly worth it. I think it helped in my healing immensely. Glutathione is so important, and supplements alone don't do the trick when your body is...
During your treatment, what medication/supplement/treatment/detox method/etc. gave you your worst herx to date? For me, it was Bactrim. It kicked the sh*t out of me. I'm curious if anyone's worst...
Thanks everyone! I'm going on day five of feeling better! It's been amazing. I talked to my Mom on the phone yesterday, and she wrote me an email this morning to tell me how different I sounded on...
My LLMD thinks it is very, very possible. I am having my husband tested soon. He has no symptoms, but just to be safe....
IHL, I've been in treatment since August - oral antibiotics, strict diet, and full herbal protocol. It has been grueling - lots of ups and downs. Lots of pain, exhaustion, and a few days where I...
Dizziness and a period of severe vertigo were the symptoms that made me realize I was going through something other than sudden onset migraines, idiopathic hypersomnia, and sinusitis. I got my Lyme...
I'm having my first (almost) symptom free morning since starting treatment! I know I almost certainly still have crashes ahead of me, but this is amazing. This disease is a monster, but it definitely...
Thanks Telegram! This is all super helpful. I've mostly avoided starches until recently, but I didn't realize I should avoid the white starches in particular. Should I avoid rice? Been reading how...
Just curious what Lyme diet has worked best for everyone. There is some contradictory info out there. Wondering if I should be cutting out any of the below, OR if there is stuff that's OK that I...
I talked to my LLMD about my cold feet yesterday, and she went over this week's blood work, and it turns out my iron is super low. I've been so strict about my Lyme Diet, maybe too strict, and we...
Hey Stanislav, IgeneX (in my opinion) does a the best babesia test. It's expensive, but worth it. Do you have an LLMD? If not, that's definitely the first step. Also, there is no surefire test. For...
So, the craziest thing just happened. I came on here because my feet are so cold I can't stand it. I wanted to post about it, and as I started posting, I was like...WAIT...I think I posted this...
Lymebird, You have to get a prescription for it from your LLMD. I'm not sure if they have it in the UK, but they most likely do! It's helped with my detox a ton....
Quite literally! Since I've started Babesia treatment, my feet are FREEZING all the time. I've always sort of "run cold," but my feet (and occasionally hands) have been going through these long...
Thoreau, For my thyroid, my doc recently put me on Nature-Throid. I've only been taking it for a couple weeks, though, and I haven't' noticed anything yet. We only just found out about the Thyroid...
Yeah, Cholestyramine is a powder you drink which binds and removes biotoxins and neurotoxins - basically speeds detox up. It's especially good if you have mold issues, but some LLMDs use it to help...
I had a sleep study and was diagnosed with idiopathic hypersomnia as well (pre-lyme diagnosis). Since I've started my Lyme treatment, my fatigue is still bad, but I do have weeks where it goes away!...
I think I am pretty lucky in that my really bad herxes usually only last about a week, then I am just out of it and tired for another week. I am finally coming out of this one. Still tired and spaced...
Thanks for the reply Jackie Moon! Your herx sounds like it was similar to mine. I found this herx to be VERY different than my initial herx. The night sweats are crazy and the "mush" brain is just...
Since I started treatment for my Lyme about four months ago, it has definitely been a roller coaster. I am certainly having FAR more good days than I used to, though. I finally had my co-infections...
Does anyone else take this for energy/focus? Is it counterintuitive to my healing? I'm really tired of being exhausted all the time, but I don't want to take it if it is going to hinder my healing....
my LLMD thinks that some of my fatigue could be from EBV aggravated by the Lyme and Co. i'm on prescription antivirals and other supplements to treat it. it's day three and i'm not noticing any...
I have tried that, back when it started. Alas, it is not tmj, it's from nerve pain. Some prescription meds for trigeminal neuralgia have worked in the past but they make all my other lyme symptoms...
does anyone's else have the majority of their pain in their face? mine is a deep painful ache on both sides of my face and on the bridge of my nose. i've had it nonstop for almost a year now. it...
so, i went off my antibiotics yesterday because my herx was not going away, but i feel way worse today. does this mean it wasn't a herx?...
I will definitely look into that book. I'm getting really depressed. I'm sitting at work right now with a full on fever, and I can barely have a conversation with anyone because my anxiety is so bad...
Yeah, ugh. That's what worries me about the ear ringing. I read about ototoxicity. I HATE not knowing. This is hell. Going to talk to my LLMD tomorrow. If I survive the night, haha. (kill me)...