I know that I have disappeared for a while. The last time I posted I think mostly I was very very depressed trying to deal with all of these medications and supplements and the fact that the majority...
Antonio192X, you are definitely not hijacking anything. It helps to hear everyone's point of view. This is all new to me and even with my sister having gone through everything and this being her...
I do not know what to do. Everything is progressively worse and I feel worse every day. I had my second appointment and we were able to identify a day or two with as a particular herx but every day...
I cannot tell what it is that I am so upset about; I guess just a conglomeration of everything... I am sitting here in this hotel room and I am hating everything. I am hating my job because I am so...
It could have been 1, 2 and you for all I know! Sorry, dorky joke there. Lol. It is definitely on my plan for my appointment next week to find out what all six vials of blood taken were for! I just...
I was thinking along the same lines as Simela1. Being in Louisiana it is not possible for me to be there. If there is any chance that it is recorded even the possibly to purchase a recording...
When they called...I have a gene mutation? Now metanx which my insurance does not pay for. :( I do not understand this either. How will this be benificial? Will this make a difference with what has...
It seems like over the past month I have begun to get progressively worse and worse. This past Monday even I had my worst day ever. Is it simply because I started treatment 3 weeks ago... Maybe it is...
I do have two cats- Fred and Ginger. And they are definitely comforting. Ginger stays at the foot of the bed but Fred is not happy unless he is lying on some part of my rib cage. Even if I roll over...
Thank you so much for all of your replies and for your support. It does help to make it easier. I can't say that I understand it but I go back and I reread what you all have said and it does help....
From my journal: do not know what to feel. 9 minutes There is just too much at once. I suddenly have this daily regimen of pills to swallow, work is passing gossip, my boyfriend of three years up and...
Good evening! I want to find out what everyone is doing for the leg twitches, muscle cramps, and the Restless Leg Syndrome. It is so awful for me when my doctor asked me what were the two worst...
Hey there! I found out when I was twelve that I am allergic to Tetracycline and that eliminates all cyclines for me. If you were able to take it for a while I do wonder why you developed an...
I am still working. I sort of have to so I push through it. Also, because of having spondylolisthesis (part of my spine slipping off) I had gotten used to a certain degree of pain. Following...
I do not think anyone here will feel comfortable saying that you do or do not have Lyme. HOWEVER. It is worth looking in to as chronic Lyme becomes more difficult to detect from what I understand. I...
Would it be correct to say that if you are allergic to cyclines that this route will not be an option for you? I believe it would rule me out even if it proves to be successful and there is not...
So far I have been very blessed to be able to continue working even on the days that have been rough. What might I expect with a herx as far as work and my personal expectations with continuing to do...
I was just formally diagnosed Tuesday and even though the doctor kept giving me fist bumps as he was proud of me for doing research before my first appointment, I still feel ignorant. I just started...
I had my first appointment today and he looked at the first page of results and said, "You have Lyme." I thought he was going to fall out of his chair when he saw my cd57 at 25. He was so so kind....
I have been trying to figure out the best way to post all of the things that I have been writing in my journal. I have also decided that for the most part I have been in denial and that I have been...
My hair seems to be changing a lot. I have always had very fine hair yet thick...lots andlots of it. I still feel I have lots of it but I have noticed over time that first it stopped getting longer....
As the fifth one in my family to test positive, one only a carrier and the other three-all treated at least one year and all no longer on antibiotics and feeling well... I am looking forward to my...
So like...two years ago now I was at a doctor's office and one of the the neurologists love to do is bonk you on the knees with a chunk of hard rubber to see how you react. It is a good thing he was...
My appointment is March 31st. I am so thankful it was able to be scheduled during Spring break as I have no days available to take off. I do have a full list of symptoms but I do not know that I can...
I have been waiting on a list since October but suddenly I am so nervous now that the actual appointment is scheduled... Can any one help with what to expect? Information I need to have records of?...
I did not have a clue what to do wit a paste so this is what I got, some gelcaps....
Here is the Web address: http://coppelabs.com/ I have downloaded the forms and I am trying to remember to call and ask questions. Unfortunately they do work like Igenex in that you pay first and file...
Has anyone had any experience with the new lyme test by Coppe Labs? Can anyone tell us anything about cost? Results? Acceptance? Thank you for any help!...
I am in such a state of "Do I" or "Don't I" that I am getting dizzy. I am also hearing about a PCR test. What do you think? Here are 2 links to help...maybe....
Hi! How are you doing? I have found one LLMD in Louisiana but he is 5 hours away from me and the waiting list is 6 to 9 months long. I have already been blown off by my GP and an ID. If you have...
Hi! I am just wondering how your mom is doing. I have found one in Louisiana but he is 5 hours away from me and the waiting list is 6 to 9 months long. I have already been blown off by my GP and an...
It seems like for the past few years I have been trying to solve so many issues with MRIs, bloodwork, ya'll know the drill. Only one of which we were able to fix was loss of function of and pain...
Thank you so much for all of the information. I have my binder I started to keep everything organized so I will begin printing things out to add to it to help. I received one call Friday from my GP...
I have been looking for answers for three years now from blood tests to an mri of my brain. Symptoms seem to cycle. Tremors are bad for a few days. Then my digestive system gets messed up. A couple...