LMC, missed meeting you too! Maybe the next time I come down for a meeting with Dr. E we can get together, before or after....
That's a shame that it couldn't be more publicized. So sorry that I missed it! I didn't want go and leave daughter home alone when she wasn't feeling well. Good thing too as she ended up with some...
Was hoping to go today but daughter woke up with fever even though she's already on antibiotics. Of course no one in the family is around and I don't want to leave her not feeling well. Hope you guys...
Dave, I go to an LLMD in Staten Island. Not a bad drive at all and he is wonderful and very knowledgeable, and a Lyme sufferer himself so he has such a great understanding of what we go through. Also...
As I mentioned, I find the Rifampin is the only one that helps me with Bartonella. Good luck!...
My daughter's arm was too small for even the smallest sleeve we were able to find, so nurse suggested Glad Press and Seal wrap and believe it or not, it worked for her. She wore it in the shower, and...
Hello! I take rifampin for Bartonella. Nothing else seemed to help. I also take the Vit D supplements, and the Magnesium Malate which helps with magnesium deficiency. Did Dr suggest a magnesium...
I will be there too!...
Louise74, I agree with you 110%! It's extremely frustrating....
It's such a vicious cycle....
I also have the Lyme and psoriasis and the only thing that really helped was taking the Vitamin D 5000 once a day and the magnesium malate and doing the sugar free, dairy free and gluten free diet....
I see Dr. E in NJ. She's not a Chinese herbalist, she's an LLMD but her treatment consists of vitamins, herbal supplements, and diet. Only traditional medicine if absolutely necessary. I've done very...
No worries, achievinggrace, I feel the same way. Some of my friends and neighbors are in an uproar about this Powassan Virus because the deer population around here is so bad meanwhile 5 kids in the...
Wow, Girlie, you sound just like me! Doctor just extended the Bartonella treatment for another two months to try to resolve the remaining symptoms. After doing some research, I saw someone post that...
Not sure if anyone saw this article, but just wanted to put it out there. http://www.nj.com/hunterdon-county-democrat/index.ssf/2015/04/deadly_tick-borne_powassan_virus_new_jersey_hunter.html...
I ended up doing IV rocephin for 6 weeks and probably didn't show improvement for about 3 weeks. My daughter did it for the same amount of time yet showed improvement after less than 2 weeks. I guess...
I'm currently on Rifampin for Bartonella. I take 300mg 2x a day and while I was herxing pretty badly in the beginning, it seems to be tapering off. Still having a tremendous amount of foot and shin...
Lovemychildren Mom, Hey there! Emailed you back in December but didn't hear back. I'm assuming you didn't get it, so I will resend with an update!...
Name tags sound like a great idea! I'm in!...
If you do find any in the area, let me know. There used to be one in Staten Island, but I think they disbanded....
Oh I will definitely be there! It would be great to meet up with everyone!...
I would definitely have a test done for Lyme. It can't hurt. I was diagnosed with CFS and treated for 8 months before my doctor tested for Lyme and it turned out I had that too. It's a very different...
It's unfortunate that the school has that kind of attitude about his illness. We are very lucky here. My daughter has been out of school for a year and our district has a wonderful home instruction...
My daughter has had severe eczema with her Lyme and none of the expensive creams or steroid creams the pediatrician gave her helped her. Surprisingly, the only one that helped was the Vaseline...
Definitely get the Igenex test and get to an LLMD as soon as you can. Don't wait. I waited with my daughter and that caused a whole slew of problems. Good luck....
I had the same experience. Stoney Brook came up negative and Igenex was a very strong positive. You can try Stoney Brook, but my LLMD sends to Igenex as well because those are the only results he...
Chapelle, eating is very interesting on the sugar free, gluten free, dairy free diet especially because I have to avoid eggs and various veggies and fruit due to food allergies. There are many sites...
I'm dealing with Bart again, and I always get the subcutaneous nodules along my shins. Recently, I've been getting them in the soles of my feet and the palms of my hands. Very painful especially in...
The PICC really is a very easy procedure. My 13 yo has had two and was able to administer the iv meds all by herself. Wrapping it to shower really was the only complaint she had. We tried a medical...
Sugar is definitely a major culprit of yeast, and an overgrowth of yeast can cause so many problems with your body. My dr put me on a sugar free, dairy free, gluten free diet and I have to say I have...
I had the insomnia too, in the beginning. Then the hot flashes and chills and the orange urine. That's always fun! I've never had an issue with the skin any time I've taken it, but I agree with...
As everyone is mentioning, different things work for different people. I've dealt with it for about 18 years, and what finally worked for me was doing a sugar free, gluten free and dairy free diet. I...
Quick question, are they still doing health related testing? I looked on their website to order the test for my daughter and I and there was a message stating that they only do ancestry related...
Mom of 2, The Lab that handled the IV did blood every week. Not sure of everything they checked aside from wbc, rbc etc but one thing was for Lyme. Again, blood was done through LabCorp so I don't...
My insurance covered for 6 weeks, and would have extended it if her blood work warranted it but it did not. She had to come off and go back on orals for 90 days before they would consider it again....
Hello! My daughter had a Picc line with IV antibiotics this summer and the insurance company covered it with no problem. They even covered the two weeks he added on at the end. I paid a very minimal...
Lovemychildren, I have the same concerns with our doctor as he is 69. I think that's why he is sending me to Dr E so that I have a back up when he retires. Unfortunately Dr. E does not treat underage...
Lovemychildren, my daughter had a lot of Lyme Rage when she first started treatment. It didn't help that she's only 13 so has PMS and regular teenage angst adding to it. I didn't really see an...
Hello there, mauihawaii, Just wanted to say that Dr. V has been my doctor for 17 years and he is wonderful. Very thorough and always up to date on the latest treatments. I agree that his office staff...
CDC positive from Igenex. Sick for 8 months before diagnosed....
Good morning! My daughter recently completed 6 weeks of IV antibiotics. She had a CDC positive test from Igenex, 2.5 months of oral antibiotics with little to no improvement, and we had no problem...
It really is scary when you think about it. My son's friend was being treated for what they thought was a severe gluten allergy, but even with change in diet he wasn't getting better. Mother finally...
Jasmine Grace, it is definitely a good idea for your family to be tested. My husband and brother in law were tested when I found out I had Lyme and both of them ended up having it! I was lucky enough...
It's a very touchy subject. My dd is on medical leave from school while she is being treated for Lyme. The nurse doesn't want her back until she is "cured" because she is afraid she could infect...
I'm sure it's different for everyone, but it took about two months of antibiotics before I saw a slight change in the severity of symptoms. Unfortunately, due to Lyme and some immune system issues,...
It is a long process to treat. My doctor realized I was positive after I was reinfected with Lyme. I'm on my 6th month of antibiotics. Due to allergies, I can only take the doxycycline for the...
I can't tell you how glad I am that I am not the only one that feels so nervous about their own backyard and surroundings. My situation is similar to yours, stacestar. We have a school at the end of...
I know what you mean about being patient. Every time I ask the doctor when this will be over, he says the same thing. Patience. She was symptomatic for 6 months before diagnosis so it will take at...
Hello, stacestar, not sure if this reply will help, but my daughter has been on antibiotics for 5 weeks now and while I do see an improvement in the majority of her symptoms, there are some that...
rms519, There was a definite improvement in her emotional well being after about 3 weeks on antibiotics. I do notice that when she is herxing that the symptoms surface again but disappear when...