In my years of research, two items became extremely clear: Lyme loves sugar Lyme hates oxygen Looking for a hyperbaric chamber that insurance will cover....
When first diagnosed I was following the MCT Ketogenics Diet and then added the Fast Mimmicking Diet into the mix. I can say that any type of bread made my minor symptoms noticeable. During those...
If no one can recommend their particular doctor who is near you, use ILADS to find your own. http://ilads.org/ilads_media/physician-referral/ ...
The only side effects I had were vivid dreams and insomnia, both lasted about 4 days and only after starting the original 1.5mg dosage. I was hoping more people would chime in here....
Thanks for that. Are you still taking LDN and if so, what dosage?...
When diagnosed with MS 5 years ago, I chose not to try any DMD's and went with LDN. When starting on LDN, I did the normal 1.5mg for 3 months and increased to 3mg for 3 months. After being on 3mg at...
It is a shame about alternative diagnoses, like RA, ALS, or Fibro. The patient really has to be their own advocate, took me over a year of fighting. Here's an article from last week close to where...
When I was initially diagnosed with MS first then Lyme, I was put on Zithromax, Rifampin, and Minocycline. It was about a year on all 3 and then I discontinued Z/R. I am staying on Minocycline...
I use to shop at Vitacost and PipingRock for their specific brands because of their prices, but changed over to using Amazon and known brands like NOW or Jarrows; based on the supplement. The fillers...
I have been on Minocycline for 3 years now, 100mg twice a day and experience dizziness sporadically. I am not sure if it's the antibiotic or the disease. You should take a probiotic nightly as well....
Not sure what is causing your acne-like issues, but some things have helped me (or at least I noticed clearer/cleaner skin). After starting a D3 supplement, I noticed less oil and redness on my face....
As for the paperwork; just the normal personal information along with symptoms and history. They will mail to you unless you have access to a fax, then a fax of course. Send it back and they will...
I believe 200g daily is the FDA approved amount and if I remember correctly... they approved 200g in 1994 and in 1995 there was an increase in diabetes. I prefer the MCT keto diet, which is low carbs...
Dr. N is my current LLMD and very patient orientated/focused. Costs are about average for an office visit, I think 120 per visit without insurance, I use my insurance though, $10 co-pay (for now). If...
I hate to sound like a broken record here on the forums, but I like to promote medications that have helped me. That medication would be Low Dose Naltrexone. LDN has been discussed several times on...
While I cannot help you with your marital issues, I can offer some advice on treatment options. I have been on rifampin, zithro, and minocycline for over a year. I have just stopped rifampin on my...
Came across this site when first dx with MS. It's very interesting... http://www.davidwheldon.co.uk/ms-treatment.html Research says that 80-95% of the population has it and leading cause of Asthma...
Red wine has some great health benefits, like Resveratrol. I am not a wine drinker, but I do avoid alcohol for the most part. My wife threw me a surprise a 30th, I went golfing with the brother...
Alpha Lipoic Acid (ALA) I take 600mg daily, sometimes 1200mg. Do some research on your own, but there is great benefits using ALA. One articles I came across showed how a married couple ate poisonous...
well...... i had sensory numbness from the chest down and also in my hands. Kinda felt like a compression suite all the way down to my toes, sometimes it's known as the MS Hug. I had lesions on my...
well...... the average MS med is 52,000 a year versus LDN at 328 a year. Obviously less invasive considering 7 MS drugs are by needle each day. Also, most (I mean all) MS drugs reduce the immune...
I have been on LDN since May 2013. This is the ONLY drug I wanted when I was diagnosed with MS and later found out it is used for Lyme. Both one in the same IMO. I used 1.5 for 3 weeks, then 3 for 3...
I have been on it since May last year. Started at 1.5, tried 3, but 4.5mg works for me. I started taking it when I was dx with MS. I contribute LDN to my brain lesions healing and the gradual fading...
First MRI: "numerous" lesions Second MRI: 8-10 new lesions Third MRI: 1 new lesion and some lesions healing This all occurred within 1.5 years. I was first dx with MS and a year later I started abx...
Of course there are always exceptions. Gluten does cause inflammation in healthy people, as well as GMO… no matter what Monsanto and the FDA says otherwise. On the other hand, we can counteract...
I was huge in carbs/sugars/gluten pre Lyme. I changed my diet drastically when dx with MS eventually Lyme, but have now added some items back in. I followed/follow MCT Keto Diet. We ate tons of wheat...
I take ALA every day, 1200mg. I have come across several informative articles suggesting taking B12 with ALA. They help one another out, so I take a B Complex vitamin....
I think this would be good for A LOT of folks. Sugar just isn't candy, but bread and fruit. I follow the MCT Ketogenics Diet. My carb (sugar) intake per day is under 20 grams and I try to consumer...
CPN is the very first thing that kept coming back in searches for my MS diagnosis. Check here for more information: http://www.davidwheldon.co.uk/ms-treatment.html They claim it resides in 95% of the...
How exactly do they "treat" fibro? IMHO I think it's a non-existing disease that they classify people with even though there are obvious symptoms of other diseases. Doctors either order the wrong...
Dr. N is a great LLMD, I have been going there just over a year. Next time you speak with him, ask for LDN. It has helped me greatly. Sorry I side tracked your original topic, just wanted to know...
twin: so you have been sick for roughly 6 years and never went to an LLMD? Just trying to figure out your story and help you ;) I believe you said you live near Lancaster in another post, did you go...
I was in the same boat and also refused MS DMDs until I dug deeper into MS. I went the Lyme route even though a dozen doctors said it's MS. I started the MCT Ketogenics Diet, supplementation...
There is some pretty overwhelming evidence of there that this is the case: "The researchers say their most interesting finding is that one of the married couples had identical strains of the...
I agree with LDN, it minimized a lot of my symptoms and took many away....
Not sure what exactly causes this, but I get jerks in my right leg while laying in bed. It's not every night, but often enough. I read where that red onions can contribute to symptoms like this, even...
I think I said this in another post, eat less carbs and more greens. Throw in coconut oil, it makes a great a chicken and also eggs. I replaced all butter with coconut oil and even make my own almond...
Lyme imitated MS for me. How do I know what I have and what to treat? Because Lyme can be tested through blood work whereas MS is just a series of physical tests and an MRI. I choose to treat lyme...
I was told by 3 separate Neuros that MS IS hereditary and skips a generation. I wonder why you were told otherwise. I tend to not believe what doctors say anyway, and this thread is a case in point....
On the books, I have had Lyme for almost 2 years. Off the books, it's suggestive I've had it for 7 years (symptoms and blood tests kind of prove it). I am doing much better now. Since you say you are...
Here are my notes on Glutathione: Glutathione Repair: – synthesized in the body from the amino acids L-cysteine, L-glutamic acid, and glycine – liver glutathione synthesis has been shown to be...
As for EBV/Mono, do some research for Resveratrol. I take 500mg daily. Resveratrol was one of the first items I came across when dx with MS. It inhibits the several of EBV. It has also shown promise...
I had numerous lesions on brain and both spines, and then dx with MS. I decided to take the Lyme treatment route, and now my lesions are disappearing and healing. While I was extremely concerned...
I have been using Resveratrol 500mg daily instead of actual Japanese Knotweed. There are many benefits with Resveratrol, including EBV elimination which has been found to increase the intensity of...
Dr. N near Lancaster? If that is the case, I like this doctor and practice. I have been going there for over a year, every 2 months. One of the few that take insurance. As with any doctor for any...
I started on Rifampin (150mg twice a day) and Zithromax (500mg once a day) for about 3 months. After about 3 months, I began taking Rifampin on/off (2 days on, 1 day off). I requested to be put on...