bluelyme, did see a Dr. K neuro in CT, not sure if that's who your referring to?...
hi, can anyone recommend LLMD in nj or ny. Already seen "the best" but DS not improving. Long story but he's a VERY difficult case. Like current LLMD but thought maybe fresh eyes might help. Maybe...
I know b/c of lab testing....
Hi, I give this to my DS (28) when his ammonia is high...1 tsp 2x day for couple of weeks....works great. I bought Allergy Research Group LOLA. Was suggested I give it 1 week out of the month b/c his...
yes, thank you...
anyone seeing him....would appreciate any info / pricing....please email. thanks frikfrak...
thank you...
Hi, Can anyone tell me where i can purchase Dr. Jernigan's protocol: Lymogen Borrelogen Microbogen Neuro-Antitox II CNS/PNS thank you...
Hi, If you want to can email me and I can tell you alittle about my son, 27....also only mentally affected by lyme. frifrak...
Hi, My son was a patient of Dr. B long ago but we stopped going when nothing was working. I think I will call and see if he will see us again. Luckily we only about 1/2 hr from his office. As for...
thank you, i will have his LLMD test for both....
Hi, Thank you. I have actually talked with RowingMom several times. She was a huge help but again, I thought it was helping but then seemed to stop. I will look into the herbs you mentioned, he was...
Hi, Started giving my DS (27) Albenza and 2 days in he became extremely angry...nothing I was doing, just angry, slamming doors, grabbing things out of my hand.....very scary for me. So I was giving...
Hi, Goshawk....thank you, he is on milk thistle, 2 per day. Girlie....not really, going after yeast and parasites now...gave my son the 2 pills today and his appetite was much better and actually...
Hi, Doc gave me sporanox for my DS (27). Just 4 pills (100mg.) supposed to give 2 pills today and then the other 2 next week to see if any change. Is this enough to see if it works. I really don't...
can you pm me your llmd?...
sorry....Dr. E in jackson, nj...
Anyone seen/seeing this doc? thinking of going but don't have money to waste. any thoughts are greatly appreciated. thanks frikfrak...
any updates....thinking of taking my DS 26 only he's only mentally affected, not sure it will work for him....
Hi, Can anyone suggest an llmd? i live in NJ but will travel to ny or ct or pa. quick recap, been to the "best" already: Dr. F in NJ / Dr. H / Dr. B in NYC / Dr. S (pandas) in CT / Dr. S in NJ. DX...
hi, my DS (26) took the full protocol a couple of times within the last 2 or 3 years and it was the only thing that ever showed any promise. Unfortunately it didn't stick, maybe because didn't do it...
thank you for the great replies. 1000Daisies: Was HBOT expensive? we pretty much exhausted the money. how many/long before you saw improvements? also was your child still on abx? when you say your...
Hi, Have DS (26) on Japanese Knotweed, 1/3 tsp 3x day, Sida Acuta, 1/4 tsp. 3x day, Cryptolepis, up to 5 drops 3x day. Plan on adding in more herbs for babesia and bart (only b/c his symptoms are all...
hi, there are several products....right now giving Cytoflora...supposed to be very potent and has helped autism children speak and since my son doesn't really talk thought it might help. going to get...
Hi, No because I thought he only treated children. My son has actually been sick for 71/2 years, since Dec. 2009. Thanks for replying, still trying to get him well, not giving up. frikfrak...
hi, me again. just wanted to clarify not with Dr. H any longer. Son got no better and couldn't see spending the money anymore. also tried EVERYTHING....abx / parasite protocol (was only treatment...
Hi, Thinking of starting DS 26 on Bioray products. They have products for liver / parasite and gi issues and detox products. I think most people use for autistic children. Ordered and just started...
hi, been to several llmd's and even Dr. S for pandas, was with Dr. H for 3 years and he couldn't get him better. left him and am seeing someone local. Dr. H had him on all kinds of detox at one point...
hasn't really spoke for years, i'd say 6. for detox right now just dry brushing and lemon water. thinking of getting DE but finding it hard to find the time to give him....
my ds (26) is taking 2 pills of Malarone in am and pm, so 4 per day. Suspected babesia because of high Eosinophil Cationic PROT...20 (normal is 2-10). Also on Artemisin SOD, 1 pill 2x day, i'm...
Hi, will someone also send me who Dr. W in Morristown is? thank you...
Hi, Took my son (26) to CHOP few years ago and NO, they didn't believe he has/had lyme even though had blood work to prove it....my son also only mentally affected, suggested seroquol. Won't go back....
hi, my son, 26 is only taking malarone with Artemisin SOD. Do you have to be on another antibiotic? frikfrak...
Hi all, quick question....is it then still ok to take 5-htp (not tryptophan) if you have neuro symptoms BADLY? Serotonin was low on OAT test and they suggested 5-htp could help? Also Quinolinic acid...
thank you all....i actually think I was thinking of another forum, sorry... brain freeze...
Hi, Its been awhile since I've been on here. Can someone please tell me how to retrieve old messages from when I would message someone and they would reply thru PM. thanks frikfrak...
Hi, Anyone with any info, it would be greatly appreciated. Thanks Frikfrak...
Hi, Anyone ever use this kit for yeast? It consists of pills to correct ph in body / probiotic and Pleo Alb drops. thanks for any info frikfrak...
I'll be there...
i'll be there...
Hi, SLML....could you elaborate on the: 1) Take Zeolite - it will bind ammonia. Zeolite Pure. This is a big deal as ammonia will mess up your neurotransmitters......how much per day? 2) Take Lithium...
Hi, Looking for same, could you please PM me as well. thank you...
Hi, I'm also about to start this for my son (22). can you tell me what dosage you started with? My LLMD said 1 tsp. 3x day but I'm sure we should start out with 1 drop a day, yes? Any help/info you...
Hi, Was with him for 1 1/2 years and no better. He is very nice but also very quiet. Very hard to get info out of him with treatment plan and such. Also kept saying how much better I look even though...
Hi Chris, thanks. funny, we also see her but as a primary doc, she's covering for the other doc whose out till end of May...we see someone else for lyme....
hi, your email under your name doesn't work, can you click on mine? thanks...
Hi Chris, My son (22) also has lyme/babesia/RMSF and possibly Bartonella. He did IV doxy for 9 months but unfortunately it didn't work. But I'm going to ask about going back on IV because I do think...
Hello, Shabbychic, can you please email me, I would love to ask about detoxing....
Hello, thank you all and I think your right, we see the doctor soon and i will suggest possibly trying a new strategy. His Mom...
Hello, Believe me, any and all advice is welcomed. My son received multiple oral ABX....minocycline/rifampin/doxycycline/tindamax/flagyl/factive/plaquenil/bactrim DS/cindamycin/im bicillin...