I'm sorry I forgot for a second...
Ty all. I have researched quite a bit already. I have to wait. I really have no choice....
I have an appointment with Dr.J in hermitage pa in june but if I could get into one sooner that would be ideal. I also know about dr.s but she does not take insurance At all & I am completely out of...
No I know what twitching is but they are hard forceful & fast in my hands. Sometimes individual fingers with freak out & twitch & I can't do anything with my hands. Like its short circuting....
I have been sick for 9 months. I have almost completely exhausted my resources. I have no choice but to wait until june =, ( now I'm really upset because I really have no choice But to wait. I keep...
Ty girlie. Can everyone please let me know about their twitching vibrating symptoms on my new post Please. Mine in my fingers is starting to scare me today ty....
It's so bizarre. My fingers just make shaking really fast twitching movements like I blew a fuse or there's a live wire in them electrocuting me....
I may try a few days of the pain program just to learn some coping techniques if anything because I'm not doing that very well & I'm alone....
Does anyone find it hard to hold things? My fingers spaz out & twitch/get weak when I try to grip or hold things. It only happened it my right hand for a lon time now it's in my left & it's freaking...
I did a general work up with every department to rule everything else out & possibly one of the doctors would maybe know about lyme. Although they didn't. I have a lyme appointment in june....
I didnt say you were knocking it dear. There is no way I'm going to be able to convince my dad to pay 200 more dollars for the igenex testing until the doctor is the one telling him to do so. The...
I haven't gone through igenex I was mistaken before but I was tested for lyme & Co infections through quest. I have to wait for the llmd appointment in june to do the igenex retesting. my coumadin...
it was a specific pain disease name. Systematic exertion intolerance disease. Although rhemetology did say Fibromyalga. Cardiology said pots or inappropriate sinus tachycardia. Cardiology wants to...
I have 14 days of doxycycline I haven't started but I believe doing it would just make the bacteria more resistant to treatment in the long run....
No other opinion?...
This is the number 4 hospital in the country. I was thinking if I could do the program it would help me cope with the debilitating horrible chronic pain while I was waiting for the llmd appointment....
After almost ten appointments over 3 days at the Cleveland clinic I was diagnosed with a chronic pain disease,pots,low iron,low vitamin d, & after a gastro follow up most likely ibs. every doctor...
Thankyou...
Oh I'm sorry I think I mixed you up with lymie girl...
Last sentence is exactly how I feel. I'm 25 aly...
ry girlie. I sent you a email....
I will ty...
Hello aly. I am going through the same symptoms plus others. Im also being told the young girl routine. I've been to the er more than 10 times this year & had a cardiac work up in august. Everything...
That last post just made me cry. Other people just must be stronger than I am cuz I don't know how much more of this I can take. Ty barry. I need to get better....
Taking baths is frowned upon with coumadin. Have to take showers. Also I don't know how hydrogen peroxide could interact with coumadin. Seems like everything does. that foot bath you just described...
The only detoxing methods that are safe is drinking water, body brushing,& staying away from sugar. Hydrogen peroxide foot baths are debatable....
Hugs traveler...
Ty traveler I know I should detox but there are problems with that too. I was told by a nurse that epsom baths would be bad for me because magnesium effects the coumadin I'm currently taking. I am...
Lymie girl. The syphilis thing is eating away at me. & if I do have it I'm terrified the herx reaction will take my vison. the herx reaction in syphilis can cause a rapid progression of symptoms. Ive...
noone else to live with no. I've tried to have him watch the video he said it's a crazy made up internet video. I've tried to give him prove it's a real disease. Idk anymore....
You guys are incredible. Seriously. Ty Very much for your words....
I'm really sorry. I don't mean to be the crazy sounding emotional one. I've been completely alone for so long. I wish I could have just gotten that second band to show up so I had a clear path. I...
My second regular lab western blot came back all nonreactive except kd23 igm band again. No Coinfections were positive as I said. I'm so sick & confused. I'm just going to curl up & cry for a while....
Thankyou lymieGirl. My Coinfections testing came back negative aside from ebv Which most adults have....
I have lost all of my friends and family members to this disease. I've spent about a year trying to desperately figure out what's wrong with me. My father has become verbally abusive because he...
tertiary syphilis herx reaction could blind you if you already have severe vision problems which I do. I'm so scared. Yes my syphilis tests were negative but late syphilis doesn't show positive on...
I'm going to literally beg the Cleveland doctor for the fta syphilis test plus spinal tap & go through the other various examination/testing. If nothing else shows then it is the lyme. I'm going to...
I lose my health insurance in august & all doctors ive contacted are scheduling as far as 6 months out for new patients. There is one other llmd I know of dr. S in hermitage pa but he doesn't take...
He cheated on me repeatedly with very suspicious people. People who I would highly suggest have at least had venerial disease in their history. many of my symptoms match both symptom lists & continue...
I'm sorry lyme girl. Didn't see your first post at first. I have had visual problems that have progressively worsened since I was 14. I'm 25 now. It started with visual snow/static,then...
Lyme girl I have been exhaustively searching the internet for that answer. I cannot find it anywhere. No reputable n medical site has anything on it....
I had an ex. 2 years ago that cheated on me with a few men & women. I had the regular annual ob exam but didn't know they didn't test for syphilis. tertiary or late syphilis will show negative on a...
Bartonella,babesia,cmv all negative. Inflammatory markers high,vdrl syphilis negative,rpr syphilis negative,dark field microscopy syphilis negative.lyme titer positive,kd23 igm band on first western...
My dad as of now but he just thinks I'm crazy now. Even with positive tests he refuses to believe me. Ty marine I needed that. I'm so scared to do anything to make them all think worse of me than...
Another huge worry I have is my vision issues getting worse. I have a ton of clear squiggly floaters,decreased color vision in my left eye,photo phobia,and dim flickering vision. That is actually my...
Well the only abx I was given is doxycycline 100mg twice daily for 14 days. That's all the doctor will give me & I don't go to the llmd until june....
I hate pain medication but I really wish they would have given me a bottle of dilaudid with the doxycycline for the herx pain I'm going to be in. I'm very scared of the herx. I don't want to go...
I'm starting my antibiotic soon. I was trying to wait until after my cleveland clinic work up this week...
They didn't do the right syphilis test again. I asked for an fta dammit. I came up negative on all the early syphilis tests but I didn't have the right test again. Dammit I told them what to do...
I was sent home. Still having trouble breathing. I explained everything to the emt and doctor. It's official. I definetly have lyme. The Rpr syphilis test came back negative. Two lyme titers were...