This summer, (apparently supposed to be one of the worst summers for ticks in years), my girlfriend asked me to come to Minnesota with her to meet her family. I have been diagnosed with Lyme &...
Constant paresthesia in all of my limbs. I wake up almost every single morning with my arms completely numb. Sometimes I'll be walking and one of my legs or arms goes numb. Hell, I've even had...
Here's an article regarding Cat's Claw vs. Samento. http://www.rain-tree.com/toa-poa-article.htm Cat's claw is a very important herb when treating Lyme (in reference to most herbal protocols). The...
Courtney, thank you so much for responding. I'm terrified and in complete agony right now because it won't go away. Did you really have the same extreme tingling feeling, like impending orgasm or...
Thank you for the response. It is REALLY intense, like exactly how I described it, like impending orgasm and it feel terrible to feel this 24/7, and is super embarrassing. Lyme affects the nerves so...
But that's the thing, it's not priapism, (again, sorry if TMI) but I have no erection at all. It's completely sensory and it is intense, really really difficult to deal with. I really hope someone...
A new symptom appeared over the weekend, I am wanting to know if it's related to my lyme or if it's a different issue altogether. Suddenly one night, I felt (I'm sorry if this is TMI, i'm very...
Thank you Traveler. Yeah no, the panic never helps anything I agree ;) I am supposed to take 500 MG twice a day, I'll skip tonights dose and resume tomorrow. I took quite a few things, wobezym-N,...
I started my first dose of Clindamycin (500mg) as well as some herbs and vitamins today. I took it about 6 hours ago, and I am no having a tightness in my chest and some air hunger. I'm terrified of...
Hey there everyone, I'm a 25 year old male living in Utah, and have had Lyme for ~ 4 years, diagnosed with a positive IGENEX test. I've experienced just about every symptom under the sun, and...
I have anxiety. I have a positive (igenex not cdc) western blot. My anxiety came on very suddenly overnight, derealization and what not. Had me in the ER multiple times. Terrifying. Lyme? I wish I...
Hey, my face feels stiff, sometimes burns, twitches, and it's really hard to even speak. Was it hard for you to speak and did you notice anything with your tongue? Moving my face from a full smile...
Multiple Sclerosis directly translates into multiple scars. It's more of a symptom as they really don't know what causes it. If Lyme causes lesions (scars) in the brain / spine, which it does, then...
I have tinnitus due to noise exposure, not the Lyme, which means mine is not going away. If yours came during the lyme diagnosis I'd say if you treat it it'd have a good chance of leaving. Keep in...
It's progressed to swallowing and somewhat breathing, as well as my leg being sore from walking. I don't know the progression rate of bulbar als but I know it varies. How can I test for MG in that...
I actually had an EMG of the limbs done, of course it came back fine. However, Bulbar ALS will only show up typically on a facial EMG which he didn't preform. It already took me months to get into...
@CYBELL, I was tested for MG via blood and did a full ANA panel, came back negative. So this can't be from lyme if it's not due to CNS issues? That is very scary for me, as with the muscle twitching...
This is still my main symptom. Akin to some other terrible diseases. I've heard people say they have trouble swallowing, speaking, but most of them are referring to a "brain fog" feeling. Mine is...
Can you shed some light on where you got the tinctures? Are they better or more potent than the pills? I took the green dragon botanicals blend for a month and felt nothing, paired with doxy and...
It's been suggested that I have Bart based on the heavily affected face symptoms (hart to speak, swallow, project voice) Does this cause these symptoms, and which medications or herbs aggressively...
Thanks everyone who replied. The last three years of my life have been literal Hell, which is why I guess I was hoping for some kind of quicker recovery. I'm dealing with a few deaths in the family,...
I'd really appreciate some feedback or encouragement, I'm in a very bad place right now. I was diagnosed with lyme and positive on my IGENEX testing, negative cdc (barely). I started taking the...
I've had tinnitus for about two years, a little after my lyme started from a loud concert (or it could be a combination of lyme and the concert). I just recently found out I've got lyme, and I've...
I'll be standing up speaking to someone, and suddenly I'll feel like I can't stand and almost fall, as if I was spun in a chair 30 times. This typically lasts 3-4 seconds and catches me off guard and...
Also, keep in mind that doxy basically puts lyme into a "defensive mode" (cyst form) which would explain why its not working for you. You need something to break open these cysts or another...
Here's a short list of some important ones I put together. Reference this site for more info http://buhnerhealinglyme.com/the-protocols/ 4 or 5 of these come in one pill from...
About a year and a half ago I got chronic noise induced tinnitus after a loud concert. I don't attribute this to lyme, because of the concert. It took me this long to habituate to the loud screech in...
Good luck to you and your son! I recently did the same thing and got my results back Igenex Positive. There are so many very helpful people here if you have any questions, which can also help you...
Nope! In fact it's recommended that the Lyme samples are sent at room temperature. If you take it to fed-ex yourself, it will typically go out the same night and is placed in a special *bio hazard*...
Igenex gives free two day shipping with their packages. You can get the blood drawn and let them know you'll be taking it to a local fedex office yourself as an alternative option. This is what I...
Most of the above are the Dragon Botanicals brand. I'm going to start the Buhner herbs first, add the antibiotics, and then add the banderol and GSE the next week. I thought this would be a good...
I've spent days reading and researching experiences and scientific studies, and decided I'm going to be taking the following per day for a month and see how I feel / Adjust dosage. I've included some...
The only LLMD's in my entire state are naturopathic. I'm not even sure that the next one will know anything about antibiotics either, but there arent many directions I can head. Maybe just start the...
Thank you both. He suggested doxy for 30 days, but I've heard I have to pair it with something else as well. I read the paper traveler posted, and I am still very confused. If I were taking Doxy,...
My LLMD is fluent in the naturopathic and other ways to treat lyme, but isn't 100% sure on which antibiotics to choose. He refereed me to someone else to get that info, though I thought someone on...
I finally got into a LLMD today. It was interesting, to say the least. He is a naturopathic doctor that also has a regular degree, but one of the only in the state that knows how to treat with Ozone...
Girlie - Pretty much the same symptoms. My entire body, every single muscle is twitching 24/7, and at one point It was an effort to keep my foot on the gas pedal. I also prayed that I had MS at one...
Fantastic information, thank you all so much. My impression was exactly that the test wasn't accurate enough with the info I read, and I want to treat for it either way anyway. I'm planning on going...
IS there a way to naturally treat / check for co-infections? I hear it's really hard to treat the actual lyme infection without first ridding your body of those. I can not afford the $600 CO...
I'm having real trouble finding one. Can anyone help?...
Thanks Traveler, that is very helpful. I'd think with all those indeterminate bands it would HAVE to mean something. I noticed in your sig that you said you used only Herbs? Such as olive leaf...
Thank you Girlie! The post is a little older, I'll find it and give it a bump and visit that website! Traveler, thank you so much! My doctor was in SHOCK. "Uh, this is, very interesting and...
@Girlie I'm trying to find one, but the only one I was able to find in UTAH has terrible reviews. I'm willing to travel a couple hours either way. I posted earlier but no one sent me a private email....
I have tinnitus, persistent and loud, not pulsatile though. However, I've done enough research to fill a library on tinnitus. If you want more information, head over to tinnitustalk.com. They may not...
@Sarahm620: I don't have one, I'm in utah I'll probably post about that next. So IGM isn't necessarily only the first 6 weeks of infection? meaning I could have had it for a while? Thank you for your...
My symptoms: Full body fasciculations Morning pain and achy / flu feeling trouble swallowing trouble breathing trouble talking (slurred speech) Tinnitus Anxiety / panic attacks Random vertigo...
My results came back today. I have to say I'm a little shocked, and really confused? I have felt sick for about two years, so how is it possible that the IGM is positive but the IGG is negative?...
My results come back in a week, this is for a friend. We've both been struggling with an array of awful life changing symptoms and I told him I'd check as our "doctor" has no idea what any of this...
IGM 31 =+ 39 =IND 41 =+ 83-93= IND IGG 31 = + 39 = IND 41 = ++ Can anyone shed some light on these results....
Sorry for all the posts, this symptoms is extremely concerning, and while I know lyme can cause speech issues, I have yet to meet someone that has got lyme in UTAH, or someone that has this bad of...