So we had an appointment for my LLMD for early next month, but her nurse just called and said we need to come in FIRST (on Monday) to her blood drawn and sent for the Igenex test. And when I said "if...
Do you guys know anything about the dosage for kids? He gave us 50mg/kg 3x/day for 14 days. My LLMD's nurse hinted that that is not the treatment they give for kids lyme but didn't want to give...
Oh and that dr also told me "we have NO lyme in our area and we dont even have ticks". He needs to talk to our vet, who told me she has seen BOTH in our area. She is much more informed!...
Thank you so much everyone. What amazing support you all are! Thank you for letting me lean on you. We were able to get an appointment with my LLMD but not until early August. We decided, while we...
:sad: My worst nightmare is my kids suffering with this horrible disease. I was only diagnosed 2 weeks ago, so this is still new to me and Im really just coming to terms with it. But what has gotten...
I saw 2 LLMDs and they were COMPLETELY different in their approaches. One was just abx (3 of them) and probiotics. The other, although still a LLMD, took such a holistic approach to my healing. She...
Welcome! First, know that Lyme Disease DOES exisit and your boyfriend clearly has it, as he has tested positive. He knows his body better than anyone, dont let him forget that. I have never even been...
I watched the first one and was so angry and so sad at the same time. None of those people, and none of us, needs to be suffering like this. Its INSANE! Does the 2nd one follow the same people? What...
I contacted ILADS just last week and they had 3 drs for me within a few days. I was able to get an appointment with2 of them that same week, which I was extremely grateful for. The third had an 8-12...
Thank you so much Girlie. Your words helped me get a baby step forward and thats saying a lot for me right now :)...
I am into my treatment, already feeling stronger, but I just cannot shake the intense fear I now feel for my kids. They were invited to a birthday party at a park yesterday and the whole time they...
That's interesting. So if it's bacteria it will look more like stretch marks? My LLMD did tell me not to freak out if I saw red lines or circles/patches pop up on my skin. She explained it as the...
I love all this info you guys! Thanks for doing all the legwork and putting all this great research in one place. It makes it easier for a newbie like me :)...
Thanks everyone. Yoga really has been a blessing for me, both mentally and physically. I was only taking the very easy "restorative" and "yin" classes, but yesterday I wanted to try something just a...
I searched exercise and lyme and read previous threads, but I still have a couple questions. My LLD says NO aerobic exercise while I have lyme...only "muscle toning" exercise. In her new patient...
I'm so nervous about getting my kids or my husband sick so we were asking the LLD how contagious I am. She said it is not passed by saliva, sneezing, etc but it is sexually transmitted and my husband...
We just asked this question at my appointment on Thursday and my LLD said she believes lyme is definitely sexually transmitted (like syphilis, another spirochete bacteria)....
I just saw something on NBC Facebook feed too that talked about Lyme "slowly" spreading south and west from the Northeast. Sitting here with lyme in Southern Calif I can assure them it has already...
That's interesting Girlie. She never mentioned that, and was actually specifically keeping me ON the antibiotics at the testing point so I will have to ask her about that....
I'm totally new to this so the only info I have is what I've recently read and what the LLDs are telling me, so forgive me if I have it completely wrong! Lyme has quite the learning curve! The way...
Hi Sarah! I was only bitten about 10 days ago (well, 10 days ago is when I first noticed the EM rash, not really sure when the bite happened since I never saw the little stinker) so I haven't been...
My LLD mentioned financial help available for the Igenex tests (which are very expensive) so I would definitely ask your Dr or check out all those amazing links Traveler posted. There is definitely...
I was lucky enough to be able to see a 2nd LLD in my area (well, it was another 3 hour drive in the opposite direction but I'm still thankful she squeezed me in). My husband and I clicked with her,...
Yes my LLD said the same thing. He specifically said there are 100 types of I think it was babesia, but the labs usually only test for 1, although he's found a lab that is twice as good and will test...
Thats actually good to hear Rikky. Im glad those abx also work on babesia. My lld isn't testing me for co-infections - he said the tests are worse than the lyme tests and since Im so newly infected...
Im so sorry you have been experiencing all of that! But I'm glad you will be seeing a LLD soon. I hope he/she will be able to help you get on a treatment that works and you find relief from your...
Im watching the first one tonight when the kids go to bed and I saw that there is a second one too so I will just add that to my iTunes list! 😊...
And Traveler...thank you so much for the link to your story! I am SO HAPPY that you are healed and you are able to enjoy your adorable grandsons now! You are such a bright light here and I'm so glad...
I am just newly diagnosed with early lyme and I am planning to treat and treat hard! :) I have symptoms like tiredness, sore joints, stiff neck, etc - nothing severe - but to me those are just the...
Welcome! So sorry to hear about your little man. It is a scary diagnosis, but be thankful that you HAVE a diagnosis! I would really recommend going to a LLD. I have been to 2 "regular" MDs and 1 LLD...
Thanks guys! Yes, I will definitely detox anyway. I mean, with all I'm learning I feel like I should have been doing some of these detox things even BEFORE I got lyme. I was really surprised he kind...
Thanks Girlie. Yes he did say to start them one at a time (the zithro first) for three days and then slowly add in each of the others (at lower doses first and then finally get up to the point of...
Hi all! I am back from my appointment with a LLD. QUITE a different experience from the random urgent care doc reading to me from the Lyme section of the CDC website thats for sure! The treatment...
Thanks Traveler...I'm so lucky to have found you all!...
thanks everyone ❤️. I was able to get an appointment for Tomorrow!! woohoo!! Its about a 3 hour drive away, but at least I'll have a chance to speak with a LLD for the first time! You guys are...
Thank you both! Your kind words really helped talk me down from my panic! Its scary to be sick in the first place, but so much worse when no one will help you. I am going to keep calling some other...
I was diagnosed with lyme only last week (on thursday) after seeing the EM rash on my leg. But it was by my dermatologist (and an urgent care doc) and both admitted they didnt know much about...
Also my rash is starting to fade, it no longer looks like the classic bulls eye, more like a faint reddish-pink blob. I'm hoping that doesn't make it harder to get info from these other drs. I do...
Thank you! Ive changed my email settings and thank you for the links to all the lyme info! I am worried about being on too low a dose of antibiotics as it seems like I should be taking at least TWICE...
Hello all, I was just recently diagnosed with lyme and am feeling a little afraid, confused....and afraid. I noticed a tick on my dog (the first tick I have EVER seen on him in 4 years) and was...