It has been awhile since I have logged in, I figure I should jump on and give occasional update for Traveler and Girlie. Whoever else these updates may help. I found a new LLMD much closer to me than...
I tried Oil of Oregano back a few occasions but it didn't seem to have much of an affect on me. I tried taking it with water and tried filling gelatin capsules at some point and took them like a...
Some better ones? Would you mind listing a few of the tops you have in mind? I may have to try this little regiment of yours for my aching neck, shoulders, etc. Would be nice to get a break from it...
Yea my Lyme Reflex to Western Blot took about 5 days, it came back negative like always. My western blots come back positive. Dont get attached to Lyme ELISA, she will cheat on you. :P...
jrpsf speaks the truth. I have seen more doctors and specialists than I care to count. I seen 2 infectious disease specialists in the past 6 months and about to go on a 3rd visit. These doctors talk...
A few months back I picked up some liquid "Whole Leaf Olive" by Herb Pharm. Is this the same as the Olive Leaf Extract you are speaking of or is mine slightly different? I only mention it because the...
Was diagnosed with chronic lyme, bartonella, and possible babesia(this one based purely off symptoms, tests were just too damn expensive). I have blue eyes. mixed with a whole lot of blood shot, most...
I also am going to chime in here, so you can gather opinions and make your own call. It wasn't until March 2009 for me when my first "attack" happened. For me it was another night, I worked night...
I am sorry sweetpeaisme, I'm not trying to misdirect people from answering your post. I feel like I may have pulled some of the attention to me. In all honesty, If you feel something may be wrong....
Here are all the labs I could find. The one from 2015 May was done by an Infectious Disease doctor who told me that I have some "mild suppression" of my Thyroid. It needs to be watched. I seen my...
I get "blotchy" red patches around my torso and outside of my arms and sometimes when its bad my face as well. Usually when I have it my body feels really hot, like flushing with heat but I also get...
I am still fighting doctors today for an answer. Normal doctors and specialists cant explain anything I have going on. LLMD diagnosed me in 2009 with Late Lyme Disease. Every CBC I have ever had done...
Well I know MS and Lyme have been said to have links to each other, I have seen articles claiming that MS is in fact Lyme. I am completely fine with Doctors not knowing the answer. But when they lie...
Hey Traveler, I may have mentioned this before. Back in October most likely. Something I found quite interesting that none of my doctors cant seem to explain. So back in October, after having gone...
Yeah, those were the words. "You've definitely had exposure to ticks" but saying no to antibiotics since I already had been on dual abx for 2 months. And I told the doctor about this past October 7...
So I said I would return to update as soon as I found out some news. My ID specialist went over the labs they put in and the labs I brought in from previous Lyme Western Blots, I do not have actual...
Oh, I share that same outrage trust me! When you are looking for answers and start researching actual publications on most of these things you start seeing how horrible a lot of these doctors...
Yeah, my blood work always tends to come out "fine" is what they tell me. My CBCs usually show Low Neutrophils and High Lymphocytes only on occasion are my WBC High. And every now and again my TSH...
Well as I did only test extremely high on only the IGG portions, the ID specialist I just seen did comment on the labs I had done for that Cytomegalovirus. "Every one gets it, by the looks of your...
So I finally got in to see another Infectious Disease doctor. I brought what I thought was the proper folder with my records in it, but when I showed up I had forgotten the important labs for Lyme...
Hi catchscooter, I am unable to call mine "anxiety/panic attacks". Even though I am not having those specific episodes anymore though still do have quite a number of symptoms lingering, some of my...
Hey Alyrose2, I was skimming posts around this topic, this post caught my attention. First let me take you back to 6 years ago when I was a younger Marine. I am 28 right now btw. But back in 2009, I...
Starlette89, dont you worry about what anyone else thinks of you. You stay on the track that YOU feel fits what is going on. Pursue it until you get answers. Dont let friends, family, or doctors...
lymie mom, well that is good you caught it somewhat fast. I remember being bit by a tick around 2005 im sure it wasnt the only time. But majority of my symptoms started happening in 2009, at least...
I am curious which labs you two did for testing for Lyme? And which bands you hit positive on. As of right now I have conflicting labs for Lyme as well as doctors that wont agree. I have been...
Well let us know if you find that report. It would be interesting to compare the size and location of the lesions. I dont know if this is true but I believe I read somewhere that they call it a...
Now that is exactly how I would describe my experience in 2009 with my "anxiety attacks". When they would happen I felt calm in my head and my body felt as if it were functioning off on its own....
I may give the antivirals a shot since it would only be 10 days. I may wait until I speak with the I.D. Specialist depending on how long it takes to schedule that visit. I have tried L-Lysine before...
Well the doctors I seen after that said the antibiotics should not have caused that. But I wasn't convinced, I dont believe in co-incidence. 7 days after taking dual doses of antibiotics my appendix...
Oh I have contacted them before, initially in 2009 when this ordeal came about and I seen my first LLMD and I started getting doctors that wouldn't agree. I emailed IGenex about questions of the lab...
It is not that I haven't seen all of this evidence all over the Net in articles and on forums about the science of Lyme or patients history with Lyme. A lot of the science and other patient's history...
Well, once this doctor read me those NEW labs. He told me all about it and its background. I asked him about the initial symptoms of Cytomegalovirus, he gave me a brief overview of it and of course...
Yes Sarah, I have seen a Lyme Literate doctor in 2009 when my military doctors couldn't figure out what was going on I was having some crazy barrage of symptoms and I pretty much felt like I was...
Hey Traveler, It has been awhile. I just wanted to cover some stuff that has come up since I originally posted this. I now have two primary care doctors, haha. Anyways, just to iterate back over a...
Ahh, yes Bartonella and Babesia were both suspected co-infections as well for me in 2009. But we only tested for Bartonella with a blood smear which came back positive by Fry Laboratory. The babesia...
Did you hit positive on your pre-screening labs or only the Western Blot through Quest? I had done 1 month course of two antibiotics: Minocycline and Flagyl in 2009. Then stopped because we had "too...
It has been awhile since I have logged back on here. For those struggling with finding answers or uncertainty of what the heck is actually going on with you like I have been for the past 5-7 years. I...
Awesome! I signed it. t-minus 18 days left people....
From the reading Ive done previously, I understand that having low values on each specific band for Lyme on my IgM and hitting higher positives on my IgG, this would be more indicative of Late stage...
Thank you for your responses. to achievinggrace's question: Is the doctor willing to treat you given the information they have? The original doctor I seen who diagnosed me, started treating me on a...
This is my first time posting here, I mainly am just looking to see what others are doing and maybe some feedback. I wont go over my extensive history of symptoms, otherwise this will be a wall of...