Sinking fun - fwiw - I had the same exact results from Igenex except that I had 41 and 58+ on IGG and my 41 band was +++ on IGG. I don't know what to think of the results but I started abx therapy...
Thanks all for the great recos. - cd - question for you. I noted you have had pn symptoms when herxing. Have you had any luck treating for those...that is by far my most distressing symptom as it...
Thanks as always Trav! I will look into the charcoal....
Thanks Girlie. Trying trying trying!! :-) Out of curiosity, what do you find the most effective detox method? I have been doing the lemon water and trying my best on the alkalne diet but not easy to...
By way of update for those who have followed, I have officially started my treatment and I am on Day 9 of 200 mg's of Minocycline + Pro-B as well as Samento/Banderol/Magnesium replacement etc. The...
Funny I received my results this week and I had the same confusion. I think the folks here will advise you that 31++ is very lyme specific and on IGM the fact that 41 is IND means you should have at...
So OneTime - the neuro didn't even have some ideas for treatment on your mixed signal issue?...
Yes I am seeing the LLMD next week to discuss although i got an email saying my results were negative. I asked why then the IND on the IGG readout and I haven't received a response yet. Will see....
I am still struggling to figure out why the medical community wouldn't embrace the western blot tests bands on an individual basis. For example, if I picked 5 healthy controls off the street and ran...
I just noticed the note. I am going to have them run the confirmation test as it is totally worth it. Very helpful Girlie. Sorry to be pesky but did they need a separate blood draw and 3 more weeks...
Hmmm - I read the same on the Igenex website. I wonder why the actual report didn't confirm it as a positive reading under the Igenex standards then. Wonder if they have changed something or the...
Thanks TBO. Started with peripheral neuropathy and has progressed to fatigue, migrating pain, migraines, swallowing issues when tired, muscle fatigue and burning etc etc. Been going on 6 months now....
Interesting. Thanks. I would have thought at least Igenex would have then classified it as a positive reading no?...
So after the long wait I received the results of my spinal tap and Igenex results. If folks recall, I have been dealing with some pretty painful peripheral neuropathy and a host of other symptoms....
I get my lp results Friday next week. Will respond when I get them....
Day 4 of samento (cats claw). Def seems to be making me herx. Notably more tired, just feeling really sick and stiff and headaches/nerve pain amplified. Only on 8 drops in morning and 8 at night....
And sorry a thanks to candleinthewind....
Thanks Traveler and Alimom. You know I spent the first 2 months down the idiopathic small fiber neuropathy path which meant no clue what is causing your random all over tingling, burning, shooting...
Joey. I too have the neuropathy and you described it well. Some moments feel like i want to shoot myself. Sickiam can you elaborate a bit on your story? Did you have severe neuropathy that dissipated...
Does anybody else experience constant tinnitus? I cant be in a quiet room anymore due to the lersistent ringing in my left ear. Anybody have success in treating that? Thx...
That is what my LLMD suspects as well....
Not exactly as specific that. My symptoms started as peripheral neuropathy. Sensitive skin, tingling in different places throughout, hot/cold sensations and vibrating in feet and hands. Also got some...
I got bands 41 IGM and 41 and 58+ IGG. I was told I definitely don't have lyme by 3 ID docs. Finally at an LLMD who is redoing panel at Igenex and thinks my clinical presentation says otherwise. Very...
I just read in the stickies from one of the lectures that if you haven't relapsed in 3 years, then you never will. I was surprised to read that. I had lyme in my early 20's that was never came out...
Thank you for this Chappelle. It is nice to see a note that helps people think about how symptoms such as these can be part of this terrible disease. I actually started my symptoms with PN only in...
I had heard 41 was a controversial band for a flagellum but that it could be for any spirochete or bug with a tail? Is that not the case? I have bands 41 & 58 and they were indeterminate....
What does the doctor say?? I am not one so I can't assess but here is what Cajun girl posted in the new to Lymes section that could be helpful. Western Blot Bands description: 9 cross-reactive for...
Neutrophils are a type of WBC the key ones that fight infection. Mine were low but I just came back from hematologist who re-ran and it was normal again. She blamed it on potentially some supplements...
Hi, feel like a serial poster lately. Had a CBC test come back last week with my neutrophils being low (1380) and then tested again this week to see if it was an anomaly and it was at 1350. When I...
I would be curious to hear if anybody had any thoughts around the advanced lyme test. In addition to the Igenex labs, I am being sent across border to take get blood drawn as it apparently seeks to...
Thanks. What the neuro said was for autoimmune/inflammatory (e.g. protein, oligoclonal Ig bands, etc.). So I guess its broader than just lyme and basically it is because I have experienced all these...
Traveler, had a question - i am being told to wait before I start antibiotics for my spinal tap which is still 8 days away because the doc managing my overall care doesn't want to cloud the results...
Thanks Traveler. That is informative. Question for you. I know based on what has been written it can be tricky but how do you distinguish between herx and actual lyme symptoms. Is it very different?...
Thanks - I will keep you all posted. I am having a hard time seeing how the detox will help the extremity of these symptoms. i thought my diet and exercise before this hit were reasonably good but it...
Thank you! I will keep you posted on what they say! Definitely today marks a low point hooefully the low point....
Thx for the quick reply. Today may be the worst day yet but I have some crazy symptoms. Constant tinnitus in my left ear, no energy to talk and have been having trouble finding words, trouble...
Curious how many others here have experienced serious neurological symptoms with their lyme? Am having serious peripheral and autonomic issues that wax and wane throughout the day plus all the...
Thanks for the note. I just wish I had more confidence in the diagnosis to know which way to go. Either path could be the completely right or wrong path....
Has anyone done this and seen any efficacy? This is what the neuros are unanimously recommending for my neuropathy symptoms and since I still don't have a confirmed LD diagnosis, this is the path...
Hi everybody, Thanks for the recommendations. Any other NYC LLMD's folks would recommend? Thx!...
Thx. That almost sounds too easy. I probably need to get to an LLMD fast. My infectious disease doc (who has clinical expertise in LD) said there is no way I have lyme disease. Was pretty emphatic....
What is a blood smear?...
Thanks Lyme Pickle. My symptoms are neurological and muscular (migratory pains in joint, tissues and muscles) along with peripheral neuropathy (recently confirmed through punch biopsy) and dizziness...
Thanks for the responses... The labs were at Stonybrook which I was told was the best out there for Lyme. What do you know about Igenex? I have heard they are more specific and test multiple bands...
Hi Everyone. Could desperately use some advice. In my 20s I got very ill from some mysterious illness which I believed to be lymes. After,6 months of the typical lymesv symptomsb and despite Bing...