Thank you gumby44 for those test suggestions - I wrote them all down on a post it note to bring with me. When I saw this guy last year, I KNEW something was wrong with me - I had lost 50 pounds (not...
Thanks Jen. I'm just glad I have an appointment tomorrow. I'm sure I can't get a colonoscopy until after 4th of July weekend, I wonder if there are any other tests he could do to see how bad it is.....
Thanks Scifigal2k - wouldn't you know... I thought it was getting better - but second movement today - its just as red and bloody again as it was on Monday :( I have an appointment tonight with a...
minor update - more blood today.. just like Monday... so I am sucking up my pride and seeing "Jerk Gastro Doctor" just because he can see me TOMORROW. My mom reminded me that I now have a CDC...
(UPDATED WITH LINKS!) Hello! Just wanted to share something I saw on facebook today - a 30 minute news special will be airing Thursday night 6/29/16 at 10:30pm ET on Fox 5, NY. (Scroll to bottom for...
Thanks, Scifigal2k - I am working on finding a new Gastro!! The one I was recommended doesn't have any openings until August....
Interesting -thanks for the information, JDB15 - I am in the USA, but from all I have learned about PCOS in the last month, I wasnt so trusting of my gyno when she mentioned metformin, which is a...
Dave ::::hugs::: i know it doesn't seem like it now, but you WILL get through this!! Ive been at this a year and hit a wall about 5 months ago - but i keep going, because we have to! I live in NJ as...
im not sure if its a 'roid, there was no blood when I wiped and no discomfort.. now im waiting for the charcoal pills to pass since i cant really tell with those, if there is red blood.. took the...
Thanks for your reply JDB15! I appreciate your suggestion. I actually wanted to ask my doctor if I should see an endocrinologist, especially with the PCOS findings - so I will ask if he can recommend...
Thank you PeteZa - thats probably the perfect way to start the conversation! :) I will call my back-up doctor on thursday if I am unsatisfied with the appointment tomorrow....
Hello! This is my first time posting to this board, I am usually on the Lyme Disease board, but I was wondering if anyone has had experience with RED blood in their stool. I am "sort of" freaking out...
Hi PeteZa, I understand where you are coming from, and you are probably right - but I do need to make the most of my follow up appointment just to I can figure out WHO to see next... do I need to see...
Hi Blueberrymuffin - I actually KNOW that this guy "knows his stuff" its just a matter of getting him to realize that this could potentially be an issue for me, aside from my diet. I do have a "back...
Hey everyone! I need your help! I am starting to get very frustrated fighting for my health, I know I need to address some things about my lab work at my appointment with my functional doc tomorrow,...
Thanks Questing - You are right - its not to be taken lightly, i will certainly get it checked out. I know I had a lot of polyps and inflammation in my sigmoid colon that the gastro dr could not...
Thanks for your reassuring words, Peteza!...
Thanks Denikeef!! I'll post a new thread asking for a gastro in my area :)...
Hi Denikeef - thanks for your reply. I called my LLMD and spoke to the nurse, I am waiting for either her, or my doctor to call me back. I basically said I wasnt sure if its a "problem" or a one time...
This morning I had a "normal" bm, no straining - and there was a lot of bright red blood that was in the toilet... I initially thought I got my period, but it certainly was not coming from there.....
Thanks for your reply silly sheep! Yes you are right it's all bc of the brain fog!! It's a struggle to get through the days, mentally, lately!! I will definitely ask for my dr to check liver & kidney...
Bump! Is alkaseltzer gold still ok to use w CBS mutation? I know I said I wouldn't stress but I'm stressing over everything. I haven't even planned on changing my diet yet and it's SO hard to eat...
Bump! Also - should I have my kidneys & liver looked at via blood work?...
Silly sheep - do you think I should have any specific testing done to determine the underlying problem when I see my LLMD or my functional me doc in 2 weeks? - check ammonia levels? Taurine?...
Thanks Silly Sheep- today is the day I go grocery shopping & cook for myself for the entire week... I don't have it in me YET to make huge changes in my diet. I think I really need help from a...
Bump!...
Silly sheep - thank you so much for the great explanation! You made this imformation easy to read and understand - i printed out your posts & even had my husband read them (bc trying to verbally...
Silly Sheep - thank you - I just re-read your post a few times (ok, i pasted it into word, edited out the stuff that wasnt relevant - THEN read it! haha! I have to work with the brain fog!) im...
Thanks so much everyone for your feedback & offers to help me! This stuff is just way over my head (at least in this brain fog state!) I will gladly share my promethease results & full genetic genie...
Thanks Multifactedme! I will look into that one- Ive heard of that - I know there are a million different "apps" for the interpretations - its just so hard to blindly know which is best!! Edit: I...
Thanks so much Traveler! I actually used genetic genie to get the results that I posted on my initial thread! They offered some explanations on the methylation analysis, but pretty over my head - no...
Hi Traveler - I appreciate you going above and beyond, as always!! I don't mind waiting a few days for a response from someone who can provide insight! If you wouldn't mind sharing the links with me,...
Thank you Traveler and Peteza!! Can you tell I keep hitting refresh button to see if anyone has replied? HAH! i am a LITTLE OCD about this today!! I am feeling frantic as I see my LLMD in 2 weeks (on...
Hi everyone, Its been a while since i've been on, I hope everyone is feeling well. I've been having a rough number of months seems like a herx since February at this point... pulled off of abx in...
Was on vacation last 6 days. Yesterday was our first full day home. I was supposed to focus on eating well & drinking enough fluids. After spending 2 hours cooking lunch I then napped from 4pm- 1am.....
Thank you Traveler for all of your dedication and knowledge! Your posts always help me get through the hard times!! best of luck in your new "chapter"!...
Hi CD thanks for the link to that thread - it was a great thread to start! I appreciate everyone's suggestions! (can we put a link to that thread in the "New to Lyme" thread? its really helpful!!)...
My A-Bart came in the mail yesterday - I am a complete wreck, I have NO IDEA how to rearrange my pill / detox schedule to fit this in... HELP!!! I took charcoal at 5:50am (bc I forgot last night) and...
Saw my llmd yesterday. He thinks that I'm dealing with toxin overload and can't handle the ABX. I must have a mutation and have clogged detox pathways. Thinks my freak rashes are bartonella screaming...
Update! Saw LLMD yesterday - after explaining the rash & showing him pictures he has determined that I am dealing with a toxin overload right now - my detox pathways are blocked. He thinks it's...
thanks dacarte3, very helpful! Peteza - I think the hubby has got "that" area covered as well. ha!...
Thanks all for the great tips - needhelp - you hit the nail on the head - i NEED to learn how to let go. you are right!! its just sort of scary to do. Its hard for me when I have the allergies that I...
I was itchy all of the time! It flared up occasionally now. Well said Peteza! Learning how to not stress over every symptom is very challenging!...
Hi Guys! I need your help. Help me figure out how to plan a "minimal stress" road trip vacation. My hubby and I are planning a road trip to the Smokey Mountains in Tennessee, maybe a few random stop...
Good point Planny!! cD - forgot to mention I do alkaseltezer gold with tri fortify orange almost every day & 250 mg milk thistle with meals (3x a day) I feel like there is more detoxing I could do...
Thanks CD I'll have to research those as I am not familiar with them. I'll mention them to my llmd since the nerve stuff has made me miserable! The newest things I've added have been curcumin with...
Thanks for your reply Peteza! That's exactly where my rash is! Im completely baffled since the first appearance of this rash it has flared up twice more - about 7 day cycles. Goes away in a few...
My dr started me on it to treat systemic yeast, and I've been on it ever since - I've also started ABX and it helps keep the yeast at bay. Not sure if it does anything in terms of lyme. Oregano oil...