I started LDN primarily for Hashimoto's but I do also have chronic Lyme. It's been great for me - the effects are subtle and I take it with D,L phenylalanine in order to maximize endorphin...
thanks for the reply - my doctor did say they wanted to check my parathyroid hormones. i have had horrible headaches and bone pain for a while now but always attributed it to the Lyme...
Hello all - Has anyone being treated for lyme run into elevated calcium levels? The last two times Ive had them tested since beginning treatment (July 2015 and March 2016), they have been elevated...
Hi everyone - I am wonder if anyone has had an experience like this. I am a 26 y/o female who began treating my hypothyroidism (caused by Hashimoto's) with Armour thyroid 2gr 1x/day in January 2015....
PeteZa - when you say brain zap, was it a painful feeling?...
Hi everyone - I have been on Omnicef 600mg/day for neuro lyme for about 6 weeks now. About two weeks ago, a weird symptom started and I am wondering if anyone else has experienced this. I get this...
No, very close actually...
Thank you for sharing your story!!! It's wonderful to read a positive message of success...
Thank you for your reply, Lisa. It's been very difficult finding a Dr that can help. I feel duped because I went through a horrible spinal tap (which was positive) and still got only 4 weeks...
Hello everyone, Has anyone seen Dr. C in Stamford CT? If so, I would really very much appreciate opinions/information. I am having a very very hard time finding the 'right' doctor, and I am afraid my...
Oh I'm sorry, I thought it was enabled. It's fixed now :)...
Hello, I am wondering if anyone has seen a Dr S in this area. If so, what were your opinions, what should I expect? Feel free to PM/email thank you...
Hi everyone, I recently got some blood results back (my dr did a co infection panel), and my IgG antibodies for Rickettsia typhi came back elevated. Has anyone has this experience? From what I can...
Thank you all so much for your replies - I will definitely try the ginger tea. Last night again was rough, even with food it feels like I am burning a hole in my stomach. I am only at 200mg a day now...
Thanks for the reply. I had a meal when I took it tonight, and now I'm sitting here on the brink of getting sick. Did you eventually 'get used to' hte medicine? or do you find yourself taking the...
I have just started oral doxycycline, and the instructions said to take it on an empty stomach. I did that, and it made me vomit profusely. For those have take oral doxy....have you been able to...
Thank you for your replies. Girlie, he said that since I have an allergy to Penicillin and Amoxicillin, he is not comfortable treating me with Rocephin in that dosage because the two classes tend to...
Hi All, My Dr told me yesterday that they wanted to start me on IV Doxycycline with a midline catheter. He generally uses Rocephin, but I am allergic to Penicillin and Amoxicillin. My question is...
Traveler, Thank you very much for those links....they are very helpful. I never knew such programs even existed. Tulip, That is good to know - a big concern of mine is that the abx/picc placement...
Thank you for your replies. I was under the impression that a positive spinal tap would help in term of insurance payments for getting IV treat...I guess that only applies to 'CDC positive' though? I...
Hello, I recently had a spinal tap done and got my results back. The western blot showed 3 positive bands in the spinal fluid, 1 specific to Lyme (23). My Dr said that the CDC wants to see 4 bands...
I am so sorry you had such a horrible experience :( That sounds absolutely terrible I agree - it is ridiculous the amount of hoops one must jump through. I had doctors outright refuse to test me and...
Hello all - Does anyone have any tips for a spinal tap? I am having one tomorrow and I am very nervous. I did some research and see that I have to lay flat for at least a day - but for those who have...
Hi everyone, I've been kind of confused lately about the results of my WB. My doctor thinks that because of neuro symptoms I have had for many years, that my Lyme infection has been untreated for a...
Thank you, emailed...
Hello, I am looking for a LLMD in the Westchester/NYC area. I am willing to travel a bit. Thanks to anyone who can help :)...
Traveler, I am in Westchester/NYC area. Thank you very much for your recommendations...I will definitely go through them later on when I get home from work...
Oh wow - that is a lot :/ I would really appreciate those names. Thank you so much for your help!...
deleted**************************...
deleted***************************************************...