That's good. I hope they work for you, too. I never thought I'd feel normal again. I'm not back to 100%, but I'm better than I ever thought I possibly could be. Best wishes to you!...
Yes, they helped a lot. I started in Sept and started to feel much better in Dec. The only med I had a problem with was Mepron for Babesia. It was nasty and made me really sick. I was/am worried...
Thank you! It did help me, but now I'm paying for it. I know I can take benadryl. I'll do that on days like today when I want to scratch my head off. Looking forward to this being out of my system!...
Thank you both! Hair loss, head itchiness and photosensitivity didn't start until I started my meds.... I'm not 100% sure, but assumed it was from plaquenil. I know doxy causes photosensitivity too....
If you stopped taking Plaquenil, how long did it take for side effects to subside? In particular... head itchiness, hair loss and photosensitivity. I stopped taking it last week and my head is very...
I take 5000 IUs of D3. Mine was 14 in Feb. and is now 64, which according to my lab is too high. It's important to test the D level first so you know how much to take. I buy mine from Whole Foods....
I've been having flu-like symptoms all day. I woke up with a sore throat & runny nose, and late this morning started running a low grade fever 99-100), shoulders & knees are killing me. I don't know...
Thank you for all the replies. I appreciate reading the different opinions. It's making me not feel so alone and confused. The reason I'm hesitant to vaccinate her moving forward, is we also found...
I had my daughter IgeneX tested - WB IGM only. She has band 31++ and band 41 IND. I've seen Dr. H's graphic showing the bands that are highly related to lyme and I know that 31 is one of them....
Best of luck to you! Let us know how you're doing. Everyone has to find what works best for them. There's no one right answer. I hope you find your solution. :)...
Hi Artur29, FT3 mostly regulates metabolism, but if it's low it can cause depression, anxiety, dry/brittle hair and/or nails, and cholesterol issues. You can increase your FT3 naturally by adding...
Your FT3 is on the low side. To be optimal, it'd be in the upper quartile of the range. Have you ever had your thyroid antibodies checked?...
One week on doxy isn't enough to treat lyme, even if you caught it right away. All of your symptoms, the way doctors have treated you and your thyroid antibodies sound like you have an ongoing case...
I'm on both doxy and azythromycin so maybe it's doubly bad for me. I'm very fair skinned and have had melanoma. I took sunscreen with me on our trip. I just wasn't thinking. My hands had to have...
Thank you both! We drove home today and I put on SPF 34 and also made sure my exposed skin wasn't in the sun. It still hurts to wash my hands. I'm afraid to shower today because yesterday I couldn't...
I'm out of town. We were in the sun walking around at a fest (in the north - not southern sun). It wasn't constant sun - just in and out of stores & at a fest. My forehead got a little red, but my...
I go to a functional neurologist and for what I paid (she doesn't accept insurance), I wouldn't do it again. At the time I signed up with her, I didn't know I had lyme. I was having a lot of...
Probably, which is so completely ridiculous. Thank you... My brother has most likely had lyme since the late 90s. He's been to so many different doctors. I didn't know about all this lyme stuff until...
I'm exhausted and need help understanding something, mostly out of curiosity... My brother tested CDC positive via Lab Corp. He said that the LLMD told him this is something he's had for a long time,...
That's great news! I'm glad you found a doctor you like....
Thanks everyone! I talked with my LLMD and he said to get an IgeneX test for her....
There could be some degree of error with any labs, but I think rather than your labs being wrong in August, that something else was going on in your body. It drives me nuts when doctors hear one...
I'm not an expert, but I'd say you do have lyme. The INDs are weak positives. I've also read that some LLMDs will say you have lyme if you only have band 18 positive. There are others who follow Dr....
Bump... My daughter, husband and I just had lyme/cos testing via a zyto machine. The LLND was trained by Dr. K in WA, and I really want to believe she knows how to use/read the machine, but if it's...
Hi TAH! My doc told me 2 brazil nuts per day max, but I don't know if that was for me or a guideline for everyone in general. I ate exactly 2 everyday for 2 months or so. Yes, I meant my FT3 was...
It's good that all your labs were taken around the same time. I think I read somewhere that mornings are the best time though... I can't remember where, but the Stop the Thyroid Madness web site...
I follow the autoimmune protocol (AIP) diet and am really happy with it. Being GF if you have a thyroid disorder works for most people. The protein in gluten mimics an enzyme in the thyroid. When...
When you had those tests taken, were they taken at the same time of day, and had you taken a thyroid medicine before the lab? If so, what med was taken before the blood draw? TPO and Tg can fluctuate...
Cheetahjade, I've been on Armour for 3 weeks now, so not enough time to tell a big difference, but two things I've noticed is my brain fog has lifted and I've lost weight. I'd previously been on...
I've heard the same thing - that people notice a difference between synthroid and levothyroxine. I was on levothyroxine, but my LLMD switched me to Armour (NDT - there are several different NDTs too)...
Thanks, Kim! I'll look for her posts. I'm taking my brother to my LLMD tomorrow so I can ask him about all this and about switching yeast meds. That's interesting about egg and chicken. I never knew...
Now I look 6 months pregnant again. Astroman, you're right... it had to be the sweet potatoes feeding the yeast. And here I thought I was doing a good thing by eating a healthy starch. I found a 2...
I had lunch about 40 minutes ago... organic ground turkey burgers and cauliflower "rice". Now I'm bloated again, not as bad as last night, but definitely bloated. This didn't used to happen. I've...
Thank you, cd3764! That does make a lot of sense about the sweet potatoes. I'm allergic to shellfish and have a bunch of food intolerances, so it wouldn't be unusual. Thanks for the link!...
Thank you, Girlie. I was wondering about yeast as well, but I was thinking with the diflucan and VSL3 that shouldn't be an issue this soon. Maybe it is though. Then, I just thought this morning that...
I started my lyme treatment 2.5 weeks ago. I'm taking: Doxy - 100 mg in the AM, 200 mg in the PM Azythromycin - 250mg per day Plaquenil - 200 mg 2 x per day VSL3 probiotic - 3 per day Vitamin C - 3...
I don't know what to say and I know you're not looking for people to say anything in particular. Just wanted you to know that I completely understand your feelings, and even though I haven't been...
Hi stephs, I'm sorry for what you're going through. Most people do not do well on synthetic thyroid meds; some do. In a situation like yours where all they do is continue to increase your dosage and...
What were your other lab results? FT3, FT4, TPO and TgAB? It's really hard to see the bigger picture with TSH only. There could be a breakdown somewhere else in the process... i.e., you might have a...
leny3332, I had a 1.83cm nodule. They did a fine needle aspiration to biopsy the nodule and it came back benign. I have to go again next month for another u/s to see if it's grown. Has your wife had...
I smell cigarette smoke or garlic - no reason I should be smelling either of those two. I smelled both before and after meds. It is a very weird symptom!...
I am so sorry for everything you've gone through. It sickens me to think of how you were treated. You'd think in this day and age, patients would be treated better than you were, but sadly we all...
Interesting... ILADs came up with no results for LLMDs in the Chicago area when I emaild. They gave me the name of an LLND in Geneva, but no LLMDs. I did hear about Dr. B from other message boards,...
yra, best of luck at your doctor's appointment today. You may want to talk with him about elevated homocysteine and CRP. When you have a high TSH, you're at risk for those two measures being high as...
Thank you so much for all the information! I'll look at UIC's web site. We live in the Chicago area so that will be a great resource for us....
I'm confused as to why your doc has you on a med for hyperthyroidism. Your lab values show hypothyroidism. Where do you live? I wonder if the ranges are looked at differently outside the U.S. I'm not...
Hi yra, thank you for posting your labs. Your FT3 and FT4 are too low. They should be in the top half (FT4) and top quartile (FT3) of the range in order to be optimal. While they're within range,...
We were in Door County and about 1-2 weeks after we got home I came down with what I thought was strep. I went to urgent care and both the rapid test and full blown test were negative. I got better...
I'll email you. I went to a Nero too. He tested me for everything under the sun via blood tests, CT & multiple MRIs. At my last appt he told me there was nothing else to test me for & sent me away...
Hi sickinup, I'm sorry to hear about your husband. We aren't alloed to post email addresses or doctor's names in the forum, but if you enable your email address in your profile, I can send you the...