I did spell incorrectly. Its clostridia. My C.Diff numbers were ok, however my hphpa numbers and another bacteria were high. My llmd says its in the same family as c.diff. and treated with abx...
What is the natural treatment for high chlostridia? We just discovered from an Oat test that my hphpa levels are pretty high. My llmd thinks that plays a part in my slow recovery. She doesn't want to...
Posting for a friend. Her son pulled a tick from his head. After seeing the suffering i have been thru, she talked her dr. into ordering a lyme teat thru our local lab (not igenex) 2 days after bite....
The llmd who prescribed it (for ebv), prescribed 1000mg 3 x day. I have only been taking 2x day and cut to 1 x this wk. i am no linger with that llmd. I also took 1 Licorice Root Plus last sunday to...
My llmd wanted me to stop taking Valtrex over the summer since I had been on it for over a year. Back then I had stopped cold turkey and also started something new at the same time. Dumb move. My...
I have been taking Enhansa for over a year. It is very pricey and doesnt do much for me. Wanting to try a different product. Suggestions?...
Thanks For the info. Leah 2013 what things are you doing to heal your gut? My stomach has always been one of my biggest issues....
Ya. I always take with food....
I do have detox problems and wondered if that could be the cause. My llmd just ordered a provoked heavy metals test which im going to do this wk. i last had one done about 3 yrs ago which showed high...
I did have my vitamin levels checked by my llmd a few months back. I was low in vitamin d, magnesium, zinc, and manganese but my b vitamins were in normal range (b2 and b6 the low end of normal). Im...
B-minus is a b complex without methylated b12 and folinic acid. Based on my COMT mutation, it said i should not take either of those.?...
After doing 23andme, i learned i have COMT mutation and should not take methyl b12 or folic acid. My llmd switched me to hydroxy shots and i found a b-minus vitamin. any b complex i have tried since...
Does anyone have problems with vitamin b making tingling more active? My drs want me to do b12 injections and b complex. Methyl b12 and b complex overstimulated my nerves. I had the same problem with...
Thanks for the info! Where do you go to have the results read?...
I dont know much about it. My last llmd ordered a mthfr test thru my local lab and i was just told a i a mutation. He had me on 5mthf which did nothing for me. My new llmd had me try methylguard...
Has anyone do e 23andme? Was it helpful? There are 2 test options. One $99 and one $199 and not sure which to purchase. I have been batyling for 5 yrs. i will make progress and then when i try...
Thanks! I do get frequent hot flahes but only get air hunger when my stomach is really upset. When my hips flare and become a twisted mess, is when my nerves get worse too....
Also i am extremely sensitive to everything and when i eat/take something my body doesnt like, these are also the first symptoms to flare....
I know nerve pain and tingling is typically a symptom of Bart but can it also be a symptom of babesia? I have been taking HH-2 for a few months now with little progress and barely any herxing. My...
Just wondering what everyones babesia herx symptoms are like. After 5 yrs of going nowhere, my new LLND suspects babesia. I have been taking crypto for a month now and am supposed to add Artimesin....
I dont know that i have alot of guidance for you Jlize as I am still searching for the right treatment for me. I'm an office manager of a therapy dept and am not a big fan of the fibromyalgia...
No i havent checked for mycotoxins. My new llnd put talked about looking into down the road depending on my response to the babs and barb herbals. How do you test for it and whats the treatment?...
The only coinfection my dr ever tried to address was Bart. But he was such an antibiotic guy and i couldnt tolerate any of the antibiotics. When i tried Rifampin, everything fell apart and i was...
Where do you order it from?...
Nerves are definitely a problem for me. I do some glucosamine. What is msm? I also am sugar, dairy, gliten free. What supplements for nerves? Thanks!!...
My worse symptom is miserable tendon/muscle pain in my hips. Left worse than right. I haven't been able to walk more than down the street for the last few years. The more a move, the tighter they get...
The dose is 1.5 mg from a compounding pharmacy. I am supposed to increase to 3 per night if i can tolerate. I am one of those super sensitive people. I have a hard time introducing new things. I can...
I started low dose Naltrexone 2 wks ago. My first wk i did one pill at night. I had some mild stomach upset with it. Within a few days, i actually noticed improvement in my sleep and my hip pain....
Awesome Tillybear. I will have to see if i can get my hands on goatsmilk. Im interested in trying. Will let you know if i find some. Thanks!...
Mpost- what stinks is i live in a rural area and organic and uncommon foods arent easy to find. I get most from Kroger but there arent a ton of options. Where would i find goat milk kefir? I...
Tillybear thanks for the tips. I have multiple allergies so my diet is very strict. Gluten, dairy, and sugar free among many others. I do have sugar cravings and i do eat and apple and a handful of...
Also my heavy metals test came back with high arsenic levels and some lead and cadmium. Gotta wonder if that is what is holding me back as well. I do oral glutathione, topical edta (2x a month), and...
Thanks for the info. My current gut healing regime is: nyststin, aloe vera, elderberry, uva ursi, lactobacillous duo, and saccramyces (however you spell it). When i stopped iv, my doctor added cats...
Ive been battling lyme since 2011 and treating with antibiotics with little success since Sept 2012. In August 2014, i found a llmd who started addressing yeast along with antibiotics and i started...
Thanks for the input. Traveler-i sent you an email....
Bump...
MyLLMD wants me to try hyperbaric for my hip pain. I have lyme and Bart. I read that hyperbaric might not be a good idea for Bartonella. Any feedback?...
Does anyone know if you can take Red root with a picc line? I read somewhere it can cause coagulation. I flush my line with Heparin to avoid clotting....
For the first 2 yrs (which went undiagnosed), my feet were miserable. Couldn't tolerate temps below 70, felt like walking on a pin cushion and marbles, constant burning and tingling. Once diagnosed...
Thanks for the info!! That makes sense. Doesn't Boluke help with circulation? Would something like that help?...
After starting Bactrim for Bart, my nerves and cold feet flared big time. They just dont want to calm down. Its been 4-5 wks. I took others advice and cut back on Abx. Also ordered the neuro-anitox....
Thanks!!...
Thanks for the recommendations. Is the Jernigans ok to take if currently on IV abx? I tried Pinella and seemed to herx worse but wondered if i increased too fast. I increased 1 drop per day up to 10....
My detoxing consists of activated charcoal 2x day, epsom salts bath every other day and infrared sauna the other days, lemon water 2-3 x day, alka seltzer gold, glutathione viia nebulizer 2x wk.,...
I started Bactrim 5 wks ago. 1x a day first wk went well with no herx. 2nd wk did 2x day with extreme flare with nerve pain, tingling, burning, aches in legs and feet. Went back to 1x with slight...
I've been on IV Zithromax and Cefuroxime for 5 months. I just added Bactrim 1 month ago but only once day. Having trouble tolerating 2x day Yet. I seem to have a pattern of a flare every tues thru...
I had someone contact me after they heard I had Lyme disease trying to push me into purchasing a soy based product they sell called Reliv. I just wondered if anyone has tried this product. This...
I currently have a picc line. Taking Zithromax and Cefuroxime and my stomach is miserable! Alot of heartburn in stomach and esophagus and indigestion type pain. Bowels ok. I take Nystatin and alot of...
Does Burbur and Pinella address candida too?...
Yes. Im taking on an empty stomach. Wonder if i should try with food. I do have candida issues. Taking Nystatin and many supplements to address it....