Have any of you guys had any prostate problems related to your lyme, bart, or babesia? I have had pretty severe pain coming from my perineum area for over a year now (around the time I got Lyme)....
Hi all, I just saw my Lyme doctor today and he decided that I will be starting a new protocol. I have lyme, bart, and babs. I was previously on tetracycline, rifampin, and pulsing tindamax. I will...
Sunday I had a fever of 103 that would not go down. I feared it was the beginning of an allergic reaction to bactrim. I backed off the bactrim and the fever went down within about 24 hours. Still...
Thanks Girlie. The only odd thing is I was fine for the first week taking the bactrim, then stopped for two days, then felt horrible once I restarted it. The Stevens-Johnson syndrome is exactly what...
So I was on doxy, rifampin, and bactrim for about 6 days. I stopped taking all the meds for a couple days because my nausea was unbearable. I restarted on just the rifampin and bactrim because my...
Thanks for the advice. I plan to take a break from abx until I hear back from my LLMD. Hopefully we can sort this out. Also, to answer your quesiton, I always take my abx during a meal. My LLMD...
So a week ago my LLMD switched me from tetracyline, rifampin, and tindamax to doxycyline, rifampin, and bactrim. Ever since then I have been very nauseous (not only after I take the meds, almost all...
B-12 and Folic Acid help a bit. Have you had your hormone levels checked?...
I just started my new protocol of meds about a week ago. I'm now on Doxycycline 200mg x2 daily, Rifampin 300mg x2 daily, and Bactrim 800/160mg x2 daily. With my last protocol (tetracycline, rifampin,...
I just had my first followup with my LLMD. I currently am diagnosed with lyme, bart, and babs. I was previously on tetracycline, rifampin, and pulsing tindamax; as well as B-12, folic acid, and...
I took tetracycline and rifampin at 3:45. At around 4:15, I burped, and a puff of white smoke came out of my nose and burned like hell. I immediately started blowing my nose and spitting up mucus...
Thank you for the replies! Gingeranne, I will definitely look into that shake; thanks!...
Thanks everyone. I'll try to increase detoxing more if I can. There just aren't enough hours in the day! I may pick up so liposomal glutathione as well if I decide I can afford it....
Has anyone else suffered bouts of anxiety and/or depression (or any other emotional complaints) while on Tindamax? I am currently pulsing 3 days on 4 days off. I notice a change in mood just a few...
I also take ReNew Life Ultimate Flora Critical Care 50 Billion, Vegetable Capsules. As PeteZa said, these need to be refrigerated. They're also kinda expensive....
As someone who is currently studying to be a doctor, I can tell you that not all physicians are like yours. Many still take courses; and if not, most keep very current with medical journals. Just...
I didn't have this symptom until Monday. I believe it is a herx from Rifampin...but holy crap, I can hardly put any weight on my foot. Feels like a fracture. I have been drinking tons of water, lemon...
Thank you for the support everyone. Glad to have some peace of mind about it. I'll keep stretching my foot out and detoxing. As much as it hurts, I am glad to be finally noticeably herxing!...
I'm on tetracycline, rifampin, and tindamax. So probably a Bart herx....
How can you tell the difference from Bart foot pain and tendon damage from abx? My right foot has been killing me the past few days. Hurts right near the ball of my foot. Very mild when the foot is...
Thanks for the support. Those are some things I definitely needed to hear!...
I have been on tetracycline since 8/26 and rifampin since 8/28. I also pulse tindamax on weekends (Fri, Sat, Sun). I seem to have "worse pain days" and "normal days." I was also like this before the...
If you're willing to make the trip, there is a great LLMD in Bridgeport, CT who charges a reasonable rate and usually has openings MUCH sooner than two months out. I got my initial visit in under a...
I am on a triple abx protocol (tetracycline, rifampin, tindamax), so I think I am on a pretty good protocol. My herxing has been very mild - so mild I'm not even sure they're herxes. Just feels like...
I'm glad to hear I am not alone in this; but I am very sorry to hear that you are all struggling so much as well. I've been a good Lymie so far and have followed the diet pretty strictly; but as you...
Mostly, I have been eating the following: Gluten free waffles Corn chips with guacamole and/or salsa (lots and lots of this) Gluten free cereal Chicken (all sorts of ways) Salad Brown rice Vegetables...
I wasn't diagnosed until about a month ago (Lyme, Babs, Bart), but judging by my symptoms, my doctors agree that I have probably had this illness for over a year - probably 2 or more. I am a 5'10"...
This happens to me a lot. Before I was diagnosed, I would wake up feeling like I got hit by a bus. I would call out of work and be sure that I would be out for a few days. By the next day (or...
My LLMD told me to never take any of the abx he prescribed without food, regardless of what the bottle says. I always take my Rifampin with food, as well as my tetracycline and tindamax. I know it is...
I am also seeing a LLMD in Bridgeport. Is it Dr. S? I have seen a ton of ID doctors in CT. Not one of them was as knowledgeable as my LLMD in terms of Lyme. I saw 10 doctors of various specialties...
I take a 50 billion capsule every morning....
I have definitely been urinating more frequently. Furthermore, for me, my "male" issues are the most severe symptoms. I have been experiencing pain in my perineum, left testicle, and anus that...
Thanks for the responses everyone. I just got back from the ER. They did a chest xray and an EKG. Both were normal. I was lucky enough to see a DO (osteopathic doctor) in the emergency department who...
I've been detoxing everyday in some form or another. Epsom salt baths every other day and alka seltzer gold/lemon water is everyday. If this is a herx, it is still very mild......
So I have been on Tetracycline 500mg 3x daily since 8/26 and Rifampin 300mg 2x daily since 8/28. Been drinking lemon water, alka seltzer gold, dry skin brushing, and epsom salt baths. Haven't really...
Thanks Lymie Girl. I took Zofran when I was on doxy for another issue last year because I couldn't keep it down. The nausea this time around isn't nearly as bad, but it does warrant some sort of...
Is it okay to drink Alka Seltzer Gold soon after taking abx? I would assume it is fine but I just wanted some input. I am mainly taking it for nausea associated with the abx; the detoxing is just an...
Thanks for sharing. I think I'm going to pick up some myself to have ready for herxing. My LLMD suggested it; my ND said it was hands down the best thing to take for a herx....
Trust me, I understand that some of us have super debilitating symptoms that don't allow us to go out and do things. That still does not mean Lyme defines us; it simply means we have to find our own...
Yea, my ND suggested activated charcoal and liposomal glutathione. As for the GI issues I'm not sure what I'll have yet, I am just starting my abx today. Basically my ND said once I start my abx if I...
Cool. That's an added plus. I mainly bought it to relieve nausea from all the pills. I am normally NOT a pill taker; so going from 0 pills to over 15 a day is really messing with my GI tract....
I would assume mine is related to babesia. But, who knows....
^^ That reminds me. I'm sort of new to this diagnosis, but it seems a lot of people take this illness and develop an identity around it. It's good to find and do things (like concerts for me) that...
Thanks! I am gonna be taking tetracycline, rifampin, and tindamax. Also on probiotics, B-12, methylfolate, and fish oil. Lemon water and epsom salt baths for detoxing. Also just ordered a dry skin...
Get up and move around. Doesn't have to be heavy exercise but even some stretching, yoga, or going for a walk. Too much downtime can be bad, especially for your mind. Music helps me as well....
Thank you! I actually did find an LLMD. I started a new thread on that. I am starting my 2 month abx regimen today :)...
Well, either way, I just ordered some. I am taking my first doses of abx today. My stomach is already upset so I'm not excited....
I went to a concert last night. I wouldn't say it was a full blown herx, but my air hunger got quite intense. I yawned 10+ times in a row and I was not tired. Luckily no other symptoms....
I haven't tried it yet, but a lot of people recommend Alka Seltzer Gold. I just ordered some myself (they don't sell it in stores)....
Thank you for sharing your story. It's always comforting to know that we are not in this alone. Keep up the battle! Hope you find your answers soon....