K07. Interesting hypothesis. It's certainly possible. The LLMD thinks the doxy was keeping the Lyme in check until I suffered two serious viral infections within 5 days which knocked my immune system...
It's ossible but unlikely that I contracted Lyme after I stopped the doxy. I don't think I went out there (vacation house) until after hard frosts sometime in November of '14. Having said that I...
One last question. Is it possible to get Lyme while on doxy?...
Thanks, Traveler, another great set of explanations. Sorry to be confusing. The WBC was lower in the month before I re-started doxy but was still within the range. Shortly after re-starting doxy it...
Hi Wise ones, I'm desperately trying to figure out whether I have Lyme or lupus or what. I was diagnosed with POTS in 3/15. Lyme in 6/15, started Lyme treatment with LLMD in 9/15. I started with just...
I suffer adrenal fatigue too and tried everything prescription/herbals and nothing worked. After 15 months nortriptyline and cyproheptadine (antihistamine, for me to increase appetite and sleep)...
Thank you. That's a good explanation Sarah. The specific tests were: SM ANTIBODY 4.1 ref range 0 - 0.9 and SM/RNP AB IGG 1.0 ref range 0 - 0.9. Autoimmune diseases are all over in my family so it's...
I was diagnosed with Lyme and company in July '15, started treatment in September with llmd. I'm taking doxycycline and just started cefuroxine. I took plaquenil for about a month, stopped last week...
I had one ordered for POTS and Lyme and the Dr was supposedly familiar with POTS. She said my symptoms were somatic (psychosomatic). Her recommendation was to see a psychologist. I was beyond...
Yes, I have adrenal fatigue but the medication has set off my GI tract (diarrhea), as has the thyroid med. I'm not 100% on those two being the culprits because I started plaquenil at roughly the same...
Thanks, Trav. My worst symptoms are fatigue, brain fog and insomnia. I try to detox a ton but my symptoms have always flared throughout every day. I honestly don't know what's POTS, what's Lyme or...
Thanks for the feedback. I have read about people diagnosed with MS that have Lyme lesions. I've been treating since September, '15, just doxy while trying to get a handle on neurotransmitters,...
thanks gregkdc. I was afraid of exactly that. My CNS and ANS have been the worse affected. I really, really don't want a lumbar puncture, I know they hurt. Do you know if that is completely necessary...
Hi. I saw a new specialist neurologist for my POTS (diagnosed and appointment made pre -Lyme diagnosis) and he detected ankle Clonus. Recommended scans (MRI or CAT?). Most things I see about this...
Thanks, Girlie. We got seriously side-tracked adding new antibiotics by treating the POTS (resulted in a bad flare), adrenal fatigue, low thyroid (still working on those). I probably had Lyme for...
I've been treating Lyme and company since September, 2015 with doxy, and babs with plaquenil for a month at full strength. I don't think I have had any improvement in the POTS. I'm just wondering how...
Thank you all for the replies. I managed to get in to see a gyn this am. Wondering if plaquenil can cause trouble? I started that around the time all this started. Anybody take metronidazole and...
Raincoat, We sound fairly similar, although I don't know what MDD or chostco... is!...
I know I'm lucky to have little joint pain but I have been disabled by POTS and the fatigue has had me housebound for more than a year. I can't tell you what I would give just to go somewhere other...
Hi. I'm here. I'm sorry you had to find us but you have and it's a very supportive, wise (not me!) group. You are not alone. Family not understanding is very hard. If you haven't read the "new to...
Love it Trav! My husband paid me a very high compliment last week telling me that he was impressed that after 15 months of being seriously ill and housebound that I still have my sense of humor. Of...
Hi, Does anyone have a good natural remedy to get the vagina back in the proper balance of bacteria/yeast/etc? I had bacterial vaginosis last week after starting diflucan for generalized yeast....
Thanks Girlie. I guess it just attacks what it can or is weakest....
very interesting. I was curious about how this actually occurred. F it's partly electromagnetic would some of those therapies (rife or???) work? Please understand I NOTHING about those therapies,...
Hi everyone, I'm not doubting my Lyme diagnosis at all but I have probably had it decades and have never had any painful joints (thankfully!). I have just about all the other, primarily extreme...
Thanks, Trav. I have run the raw 23 and me through genetic genie but don't understand the results. I posted Christmas day or thereabouts and astronaut (I think) replied with a link to MTFHR website...
I so need to do this. The black hole seems too dark at times....
I found that magnesium, except for glycinate blows me up. Everyone says to take it but I can't tolerate high doses s at all. I can't even do Epsom salt foot baths without stomach trouble. I hope you...
Londolozi, Hi. I feel for you. I get very down days too and can't figure out what is causing it, herxing, flare or ?? I've been treating since September and would just like 1 good entire day. I get...
Indeed. Thank you moderators. You have saved me more than once. It's a difficult, lonely fight that is less frightening because of you and your knowledge....
Hi Astroman, Thanks for the info. Unfortunately, there are no physicians in my area. Do you know if any read the results remotely and provide info on supplements? Thanks. LL...
Thank you so very much Astroman. I'm very grateful for the info and links. LL...
Hi, I got my results back from Genetic Genie and could use some help understanding them and what to do. These are only s in red: VDR Taq rs 731236 AA+/+ MTRR A66G rs 1801394GG+/+ Some of the others...
Thanks. I'll start another thread asking for help with the results....
Hi, My llmd told me to run my 23 and me results thru Nutrahacker (I already did Prometheus and Genetic Genie but he wants Nutrahacker) but the website has been down for 2+ days. Does anybody know...
Happy holidays everyone. I'll do what I can to help out. I'm not going anywhere (LOL)!...
Yes, I know Traveler, no medical advice here! Did you have any testing or did you just do the elimination diet? Just want to know what to ask for. Happy holidays to you and thank you for all you do...
Kyo07, Can you please provide more info on the HLA gene? I just got my 23 and me report and would like to know what to check vis-a-vis this and other detox genes. Girlie, many thanks. I'm using clay...
Hi Nicc, Welcome. Sorry you have Lyme but you will be glad to have found us here. It is a very supportive group. If you haven't checked out the New to Lyme thread at the top of the page give it a...
Glad to hear about your progress. May I ask what you eat for protein and just in general? Thanks. LL...
Can anyone explain how citrus pectin works? Is it a binder? Would it replace clay or activated charcoal? Or is it something else entirely?...
Girlie, Thank you for the reply. Good to know the low wbc isn't dangerously low yet. Interesting that it drops with treatment, mine has done the same. RBC is low too but in range....
Thank you, Traveler. I was given the fludricortisone before I even knew I had Lyme by my POTS neurologist. It helps the body retain water to keep the blood pressure up is what I was told. The WBC...
Hi everyone, I have been treating Lyme and company, adrenal fatigue, POTS (since March) since early September. I have been taking 100mg doxy morning, 50mg evening (trying to increase but nausea) and...
Great article, thanks for giving this sh`t some needed public attention. LL...
I second the ginger tea and offer my sympathy. LL...
Agreed. Thanks to all....
Wise words Traveler, thank you. My problem is getting out of the house to do anything destroys me for days. I did go to see a supposed chronic illness counselor on Monday but she actually doesn't...
Oh my, I could have written this post Sayy. I'm in the throws of treatment now and suffer so much of what you say. I had a major rage attack last week after a neuropsychiatrist basically said all my...
hi Violet, Thank you so much for the reply. Yes, I get lots of probiotic, but I can try increasing. Are you better now?...