Hi Bleepity, I couldn't do crutches much at all as I had a torn rotator cuff on my left shoulder. I used a walker for the first few days and then went to one crutch and then a cane within a week. I...
Hi Bleepity, Well, the hip I had surgery on is ok, the issue I had initially is resolved. However I was diagnosed 4 months ago with Psoriatic Arthritis, which explains my constant joint issues and...
No, have not had my hands X-Rayed. My next Rheumy appt is not until December. I have had fairly constant but mild pain in both of my thumb joints the past year, but the index finger thing is new in...
It may be hard to find someone. RN's have to work within their license (or risk disciplinary action ranging from a written reprimand from their state Board of Nursing to losing their license...
Thank you Lynn. My orthopedic surgeon ordered them to rule out infection, which he seems to think it did despite the fact that the CRP is off the charts...so I can't figure that one out. My ESR was...
I recently had rotator cuff surgery 4 weeks ago tomorrow but over the weekend I developed a low grade fever and worsening shoulder pain. The doc ordered a CBC, ESR and the CRP-HS. My ESR was 18, CRP...
Hi Hoping, I just want to share with you that Lyme attacked my joints as well, specifically my right hip and left shoulder. I ended up having surgery in June for a torn/frayed labrum in my right hip...
Hi Mongien, welcome to the Lyme forum and sorry that you have Lyme. There are many on here more literate than I am about this disease but you have found a place that is welcoming and will try to help...
A great drink for first thing in the morning is take a mug of water (approx 8-10 0z) and juice of 1/2 avg size lemon, 1-3 tsp Bragg ACV, a pinch to a 1/8 tsp of cinnamon, and a pinch of cayenne...
I can relate to +Lyme in so many ways. At 46 my body is failing me both physically and mentally. It has been a financial drain as we lost 70% of our income when I went on LTD through work last...
Thanks Traveler, and everybody for being so kind and helpful. It is not psoriasis, as within 24 hrs of taking the anti fungal the dry blisters stopped forming and even started healing. 10 days later...
Yes, I take my thyroid meds first thing in the morning on an empty stomach. I purposely avoided taking them the day of my MD appt as I didn't want the results skewed. I really am at the point where I...
No, I am definitely NOT hyper. I have gained about 40 pounds in the past year since becoming sick last September. The CD57 test really confuses me and I can't really find much info anywhere on it....
So I got my lab results back today from last week. My western blot is still negative/non-reactive in all bands (Quest labs). My TSH is 0.03 (ref 0.40-4.50 mIU/L) LOW Free T4 1.3 (ref 0.8-1.8ng/ml)...
I have been on antibiotics almost 10 months now and really have had no adverse effects from them other than frequent herxing. I have had to take fluconazole for 5 days a few times since starting the...
The reason I am getting retested is that is SOME articles I have read it is stated that Lyme can show up after being on antibiotics long-term. I figure I don't have anything to lose (except getting...
Piroette thanks for posting this. The deeper I dig as well I find that there is a massive and overt effort to undermine those who understand these pathogens while propagating their own agenda that...
Antonio...did you ever find an LLMD? The one we had discussed last fall is accepting new patients again but it takes 2-3 months to get in. Just thought I would let you know in case you have not found...
I am getting retested after being on antibiotics for the past 9 months. I have results of all Lyme tests and all were negative. No reactive bands of my first Western Blot last November. So I am so...
I typed in the query "Why are there no accurate tests for Lyme" and came upon this article. I think the author did a good job in explaining why current tests, ELISA, Western Blot, Culture and PCR are...
As far as I know the QT was normal......
Thanks PeteZa and JDB. I was started on motherwort when I first saw my LLMD in November, but I take a capsule from Soloray labs twice daily. The last time I had a fever was in November. I do have...
I just want to add that the above is not an exhaustive list of all my symptoms. I am just so baffled by the cardiac stuff and how nobody seems concerned about it. I have been taking antibiotics and...
Hi Dr. J, I am not trying to be antagonistic at all but hope that with your medical background you could help me understand a constant symptom. I awoke with a deer tick nymph attached to my ear in...
Jingels, I am curious what State you are in? Someone (I think Traveler) posted on here yesterday about how the Minnesota Dept. of Health was suppressing its' positive Lyme cases. I know I am NOT one...
It is ironic to read this thread this evening as I have been increasingly become more fed up with the whole '"Lyme system" and how it fails the patients. I was actually contemplating contacting my...
I take one capsule daily, 400mg it is made by DaVinci. My LLMD is using it as a cyst buster....
Thanks everyone for your support. I didn't go into a ton of detail in my application as I thought my records could do speak for themselves. Yes, I will appeal as one of the main criteria is that you...
I have been on oral certain BID amid azithromycin M. W. F since November 1 and I would say I am about 50% better though the spirochete damage in my joints has required a rip hip labral repair, and...
My LLMD had me add GES extract about 2 months ago, haven't really noticed anything from it....
I competed and sent my app for SSDI about a 6 weeks ago and received my denial letter two days ago, not that I was surprised. Since applying I have had the labrum in my left hip repaired and the...
I was clinically diagnosed with Lyme in Nov 2015, in December I woke up with severe Right hip and left shoulder pain (both totally new to me). After going through PT (I called and asked for a...
Thank you Traveler =)...
Collagen support like glucosamine and chondroitin?...
I am on plaquinil 200mg 2x daily since the beginning of January. I will talk to my Lymie about it, I need to call him today. Thanks!...
Where do I find out about the protocols? Do I need to buy a book or are they online somewhere? Thanks...
I have been dx with Lyme and Babesia, though I have some symptoms of Bart as well. Overall I have improved about 50% in the past 7 months but I am now facing hip arthroscopy next month due to my hip...
Hang in there...not sure what is going on but wanted you to know you are not alone!...
Hi Antonio, I don't recall seeing a commercial for them but it could be. The container is pretty thick and keeps the tea hot (if the lid is closed) for quite a while. It was a 'splurge' impulse buy...
So Lymie Jo, you take only 1 flagyl tab every three weeks? I could maybe manage that.......
I don't have any 'regular' labs other than my thyroid and none of my docs seem concerned???? I don't think I am going to restart the flagyl, it made me AS sick as I was at onset of disease PLUS I had...
My LLMD had me drop ceftin and start Flagyl (to go after the 'cyst' form of the bacteria) when I saw him on May 5th. I started the flagyl that night and by Saturday I was feeling generally ill and...
I use a tea steeper that I bought from Teavana, it is a little pricey but it is plastic and nylon mesh. Can't recall if the plastic is BPA free, but I THINK so. Works great and cleanup is easy. It...
My LLMD prescribes the antibiotics and so far no problems....
My LLMD is out of network so I pay out of pocket to see him (usually $250 per 1 hr visit) but my insurance has paid for all of my antibiotics over the last 7 months. If my LLMD wants labs, I then...
Hi Gfields, I thought I would share that I too have had pretty severe R hip and L shoulder pain since becoming sick with Lyme/co-infections. I thought it was just achiness/pain and went to PT which...
So frustrating! I have been on Curcumin (Terry Naturally 1500mg daily), motherwort, fish oil (with high EPA, DHEA), vitamin D, probiotics and an excellent multivitamin since last November. After...
I missed my last appt the end of March with my LLMD as I had the flu so I don't see him until May 5th. We haven't changed anything at all other than stopping atbx a few times due to herxing and...
my six month followup with the eye doctor is in 2 months. I don't think I am seeing changes warranting an earlier visit. The fish oil he prescribed (High DHEA and High EPA) seem to be helping as my...