hi, all. i took houttuniya for bartonella and my doc just told me i can stop cuz now i have to work on my gut. i have 4 brand new bottles of nutramedix houttunyia ....if anyone wants to buy it...
thank you all sooo much! yes tillybear...22 years of this agony..been through the whole depression/suicidal thing for many many years....but antibiotics have taken the edge off. but believe me...came...
Hi Rikky. Thank you for that insight... I agree....some meds do nothing and then yrs later, seem to do something. I did not know about Cryptolepis, but I ordered something called Enula from...
hi all. i am hitting another rough patch. my brain fog is back with almost full force and i am not doing as well as i was several months ago. back then, i was still mostly housebound but generally...
hello. i am thinking of getting a second hand sauna for detox. does it really help? is it safe? if you do sauna regularly, does your body get so used to it that you have to keep doing it even after...
Hi Traveler. Thanks for sharing that with me. It is very inspirational. I guess one has to adopt a Buddhist approach to deal with something like this!...
Hi Traveler. Thanks for the advice. Due to my night sweats, which sometimes are very bad but sometimes disappear, and my horrendous brain fog, my doc thought i had babesia and recommended the FISH...
thanks a lot!...
thank you!...
can someone tell me whether i can take pinella, parlsey, and burber at the same time? thanks!...
I have been sick 22 years and was diagnosed with Lyme almost 3 years ago. About 10 yrs ago, when my then-doctor was trying to figure out why I was sick, he did a trial of Doxycycline on me, for maybe...
I forgot to mention a few things. I have tested negative for everything (erlichiosis, babesia, etc) but i was told i had "probable bartonella". I thought I would start the Bartonella herbals after a...
thanks happyjo. for years, i could not tolerate any probiotics i took - i tried many brands but would always end up with diarrhea. however, i recently tried Custom Probiotics, which i can tolerate in...
First, I just want to express how grateful I am for all the help. I did speak to my doctor today and he said he would send a new treatment plan. I am also determined to try the herbals again. A lot...
All tests for babesia, at very good labs, were negative, so i do not think i was treated for that. I was negative for lyme in general at all the labs too (even Igenex), except with the new LTT...
Thank you so much for your replies. When I take even 1/4 drop of Samento, I get really sick and sleep literally all day. I am so fogged, that I cannot even keep track of all my different meds, no...
Hi all. I have been ill for 22 yrs and about 3 years ago, was diagnosed with Lyme. I cannot tolerate herbals and have been on various antibiotics for all that time. A few months ago, I was on a...
Yes! I probably mentioned this earlier, but you must get the LTT ELISPOT test from ARMIN LABS in Germany. You can send away for the free kit. I was completely negative for yrs at ALL Labs including...
Traveler is correct. There are many strains they do not test for. My doctor told me this....
hi traveler. that makes sense. xox...
traveler..but what do you make of the doctors who say that with leaky gut, you are just putting more bacteria into your bloodstream?...
Thanks Traveler. I will get it checked out soon:) I'm sorry that happened to you! Sounds awful ox...
Traveler....I have made Kefir but couldnt stomach it. It was a water Kefir I think...I am also not supposed to have yogurt. Apparently, I have some problems with Whey Protein digestion. I still have...
hi Marie! I also get pain during ovulation but this feels different. It isn't an acute pain yet, though. I actually see a doctor who tests for Yersinia. I believe there was no indication of active...
oh no. I just read this: Certain conditions such as appendicitis, intestinal bleeding, and other conditions can be made worse by ingesting baking soda. High blood pressure, heart disease, liver...
Hi, everyone. Just need a little more advice. I started minocycline a couple of weeks ago, low dose. I am about 3 years into Lyme treatment and have been sick 22 years. Yesterday, I started having a...
hi all thanks a lot for your replies. i may have found a way to get lymecycline...i just hope i can tolerate it. traveler...unfortunately, the very powerful probiotics (such as VSL3) give me diarrhea...
Hi everyone. My doctor has prescribed Lymecycline (tetralysal) for me. It is not available here, so he said I could take minocycline instead. I have been sick for a very long time and want to take...
would a trial of antibiotics be in order? perhaps the ELISPOT could be positive after? sorry not sure if this can happen. my doc re-does the ELISPOT later on if its negative at first....
hi traveler. thank you for the message:) I know of the LLND in uxbridge but I thought that since he cannot do antibiotics, I shouldn't go...but now that I know from experience that herbs are very...
Hi Girlie. yes...based on my age, length of illness, and I assume state of health, he said 4 yrs. I know that many (or all?) Lyme patients have low NK cell function...mine was VERY low but I have not...
Hi Girlie. Thank you for telling me that. I needed to hear that today! wow 40 years. My doctor doesn't talk much. He told me I would begin seeing significant improvements at the 4 year mark. I felt...
HI all. can someone tell me how long it takes to get better if you have had this 22 yrs? I got better for a brief period but have relapsed. I want to know....if I stay in treatment, will I notice...
you MUST do the LTT ELISPOT for Borrelia at ARMIN LABS in Germany. email and they will send you a test kit free. you do not need a doctor's signature. INFECTOLAB in Germany also does the same test...
hi girlie. it is a lymphocyte transformation test...it somehow detects whether your lymphocytes are primed to fight borrelia or something....sorry but due to my brain fog, i am unable to understand...
hi sweepea. due to my decades of thinking my illness was viral, i know a thing or two about HHV6. In fact, i have been tested so many times for this at so many labs...my IgG antibodies were a little...
milk thistle..i am not taking that but will order it. bless you guys. i will email thank you:) just having contact helps a lot. xoxox...
i forgot to add, i am also taking zinc carnitine cuz i heard it might help leaky gut. i also usually take 1 tbls of beef gelatin a day for the same reason....
hi girlie. i think he is giving me a lower dose now because in the past, i had diarrhea and various problems on some of the drugs. also, he mentioned that i am a small person (5'1"). i do not think...
ok this is the current protocol: Diet - this is based on a food tolerance test. Clarithromycin 250 mg BID Tetralysal 300 mg twice a day (this medicine was not available in North America so the doctor...
i think i tried to email someone from this forum before..it may have been traveler...but i cannot be sure...i did not receive a reply. xoxo...
hi girlie. there is absolutely no one here who can help. its is a miracle i have found someone to fill my antibiotic prescriptions. the few doctors who were treating lyme here over the years, had...
hi girlie. i have been tested for those co infections and bart IgG antibodies were a little high. i think that is why i am on houttunyia...but i am having no herxing from this at all..i can take all...
hi girlie. this doctor is always optimistic but i am not sure it is true. from one of his videos, i think he said those over 40 who have been sick very long might recover to maybe 50%. he himself is...
hi all. thanks so much for your replies. i am indeed in canada. this all started 22 yrs ago when i contracted mono. my life was ruined that day. i just got sicker and sicker. my mom spent all her...
hello. i have been sick for 22 yrs and in treatment for 3. i am still only marginally better. my brain is extremely foggy all the time. i am starting to wonder if there is any hope. i have not posted...
Thanks, Traveler! The tests showed I should not have whey protein....that is why I am allowed cheese....but giving up tea with milk has been a huge challenge. I do have SIBO. I have tried Xifaxan and...
Hi Traveler. Well, this doctor is integrative and I have tried many things to heal my gut. I have had food tolerance testing, where inflammation is measured in response to foods....I am gluten free,...
Thanks for the quick replies! I also had success with IV rocephin....for the first time in decades, I was starting to use my brain again. I was crying with joy....but it didn't last when I got off...
Thanks, Girlie:) I assume its 30 min before a meal?...