So sorry you're going through all that, but it does sound very familiar. I've had every one of those (except the tearfulness)...and the main infection I have now is babesia. I also have some...
I'm sorry you're going through this EmilyH. Your son might not be able to understand what you're saying, since neuroLyme can have a devastating effect on the brain. None of these boundary setting...
Assuming LDI works the same way homeopathy does, 17c is a weaker dose than 50c. The link explains how homeopathic potencies work. http://www.1-800homeopathy.com/blog/what-potency-should-you-take And...
My LLND said this is a very low dose. Its just a bit of a shock, having all this joint stuff come roaring back. Its been several months (or maybe longer...not good with time) since my knee was this...
My LLND prescribed LDI (low dose immunotherapy), which is a homeopathic preparation of Lyme, babesia and bartonella bacteria. In my case, its to get my immune system to calm down since its become...
Thanks. So far brain clarity is still a lot better. And mast cell stuff has been calmer too. The bad news is my joint pain issues are worse. Wrist is a problem again. My knee and shoulder haven't...
I've been very happy with my LLND. You do need to either be an established patient or see her in person before she'll do phone consults (not sure if she does Skype). I'm super sensitive, and she's...
1. not sure, Buhner's books usually explain this 2. I use Oregon Wild Harvest Ashwagandha 3. not sure 4. 1st Chinese herbs has Uncaria Rhynchophylla. I prefer NuHerbs, since they test their product...
You can send me an email. I have experience with 3 doctors on the list PeteZa posted. I also know an orthopedic surgeon in CT who's at least familiar with Lyme. He's the one who initially diagnosed...
My understanding (and experience) is that heavy metals can make it more difficult to fight off an infection. I used to have a silver mercury filling in one of my teeth. I felt like Lyme & coinfection...
So, I decided to bite the bullet and take the LDI 4 days ago. I went through this 'cycling' of symptoms. The most/worst ones were babesia related (air hunger, chills, etc), then some bartonella and a...
I totally get it. I'm so used to putting out more than I could, that its now hard for me to rest when I need to. But forcing myself to do nothing really is helping me. I've been doing about 30-70% of...
Its probably the alcohol causing the burning feeling. Add it to some juice, let it sit for ~30 minutes to an hour and then drink. The alcohol should all evaporate. Pomegranite juice is a good one, so...
Just curious if anyone has issues with nausea when taking alchornea. I started on it again recently, and I always get nauseous in the afternoon now (about 5-6 hours after my last dose). Eating and...
I think it might be a case of how long you've had it. For me, it went after my joints first. As time when on, it went for my nervous system too....
I literally started at 1 drop a day of samento, which was difficult for me to handle. So yes, even a small amount of an herb can make a big impact on how you're feeling. I stayed at a dose until the...
What are you doing for detox and lymphatic support? A couple things I'm doing for lymphatic support are red root/red sage tincture (4 full droppers twice a day) and lymph drainage and mucous stim...
I was originally told to take 2 capsules of artemisinin (Allergy Research Group) 2x a day for 3 days, then take 4 days off before repeating. I did a little research and felt more comfortable taking...
I have a funny problem...I'm kinda allergic to some antihistamines. Claritin gives me a rash. Benadryl make my stomach upset and very bloated (the dye free kind). I've heard of rife machines, but...
Houttuynia can be very strong, and you might not be able to tolerate a whole tablespoon. Like all herbs, it should be ramped up gradually. I opted for tincture, since I could start at the smallest...
Thanks cd3764. After a day and a half of 1/2 a dropper alchornea twice a day, things are pretty manageable. Going to finish off today and tomorrow at that dose, and then go to a full dropper on...
I've been trying to get back on alchornea for 4-5 days now. I'm on about 1/2 a dropper. I tried a full dropper last night and herxed a lot. Herxes aren't much fun on 1/2 dropper. Kinda surprised me,...
Do you have allergies? Sometimes I get a chronic sore throat from allergies. I used to have a sore throat most of the time, but now it just pops up if I'm having allergy issues or am getting a cold....
My LLND wants me to start on LDI, more to help get my mast cell issue to calm down than anything else. I have my first dose here, but its just sitting in the fridge. Right now, I'm in the process of...
There are different 'core protocols' for Lyme, bartonella and babesia, and there is overlap between them. If your LLMD isn't familiar with Buhner, there are herbalists who are. Julie McIntyre is one....
I'm dealing with something similar, but a little different. I also have loss of muscle tone and a lot of weakness. But when I have to do physical work, somehow the strength is there to do that. I get...
I can't comment on Hansa or bone spurs specifically, but I have had a lot of joint/inflammation issues. I was first diagnosed with Lyme because of knee problems. The MRI showed a big tear in my...
Thanks Sundame. Its nice to know there's someone else who's been through something similar. Did taking a year off from life help? I've been at this for so long, that I question if I even have a right...
Thanks everyone. :D I wound up playing a video game today, and it was fun. I feel pretty good in the morning, but things go downhill from there. Kinda follows what my last cortisol report said...
Which herbs are you on? Some are known to cause diarrhea....
Baicalein is a flavonoid found in Chinese skullcap (Scutellaria baicalensis). Monolaurin is a fatty acid found in coconuts....
I'm really not sure how to go about balancing life (i.e. things I need to do) and rest. I'm always tired to some degree. My most recent 4x saliva cortisol show things are improving, but I'm still not...
I'm super sensitive too, and going low and slow really helped me. 1 drop of samento per day made me herx (vertigo or skin crawling/zapping). Use tinctures, since you can dose super low doses (i.e. 1...
The bed frame is a good idea, it just means I'd really need to clean my bedroom. Its an organized mess, and there's no room for a bed frame right now. I have a couple recliners too, but they're...
I sent a tick in too (on one of my mini horses). I guess there is truth to ticks jumping, since she lives in a dry lot (no grass) surrounded by fields. Its been 2 weeks and I haven't heard back yet....
I had gastroparesis from Lyme & bartonella. Still do have some symptoms, but its not an issue much now. Before treatment, I could only have a liquid breakfast and low fiber foods for lunch and...
Babesia really isn't fun at all. My new 'thing' is muscle weakness. My whole body during the day, my lungs at night. Breathing works as long as I'm upright or reclining. Some effort to breathe...
Do you have any dental work (silver fillings, crowns, etc)? Silver mercury fillings can hinder treatment. Things stalled for me, then moved forward after I got all the mercury fillings out of my...
I've struggled with severe neck pain for years due to Lyme aggravated injury. A soft cervical collar helps. Essential oils in a carrier oil or DMSO are also really helpful. Be careful with DMSO,...
Thank Pirouette and cd3764. My sister is in Japan for at least a year, so I'm free! The alpacas all moved to a new home. I'm really glad that happened, since taking care of all that was way too much....
Its been a while, since the past few months were really rough. Things kinda spiraled out of control after a provoked heavy metal urine test. I was able to get the amalgam filling I had has been...
I was functioning pretty normally for the first 18-20 years of my life. Then I had knee problems and had to have surgery. The ortho ordered a Lyme test, and I was very positive for Lyme (more than...
The hot/chills/ air hunger suggests babesia. I've gone from burning up and sweating to huddled under 10 blankets and still shivering. Babesia treatment helps things get better. I'm better than I was,...
Forget I even asked...
I'm going through periods where I'm burning up (like I'm in a furnace) and then I'm freezing. Also having air hunger, so odds are its babesia....
Whole Foods has a couple green powders...not sure if any are mixes. I did see kale powder, but that's all I remember....
Right now I'm taking cilantro tincture and chlorella from Biopure. Also upped my glutathione, vitamin c and magnesium. Just temporary until I have a follow up with my LLND....
Thanks! First the disorientation of having to change travel plans last minute, so we weren't driving into that snow storm. Then exposure to some nasty bath water at the backup hotel. Then accidental...
Thanks everyone. Somehow the peppermint tea I just made tasted moldy...so I heaved it. Now have blackberry, nettle and licorice tea to sip. I think you guessed right on the electrolyte thing,...
My LLND had me do a provoked urine test for heavy metals. I had a very unusual reaction....either to the DMSA or EDTA. I had asked before, and she assured me that no one had had a bad reaction to the...