Beewee, I can get you within a few hours if you still need help. I am in NEPA so not too far from ya. Doesn;t look like you have messages enabled so feel free to email me....
I can get you within a few hours. Doesn't look like you have messages enabled. Feel free to message me and I can give you a few names....
My Dr. was in Bloomsburg. If thats closer than some of your other options, give a shout and I can give you contact info....
So glad some of you are also on the up and up!! Happyjoe, Hang in there. I just couldn't keep looking for the next miracle cure. When I found myself checking out with a very harmful chemical because...
First and foremost, thanks to everyone on the forum that provided me with assistance over the years. Of all the sites I belonged to, this one by far offered the most knowledgeable and fact driven...
Right now, it's seizures for me. A few months ago, it would have been a toss up between anxiety/depression and headaches/head pressure....
doxy and the sun are definitely not friends. My LLMD actually switches his entire roster of patients to Mino every summer....
https://qt247.infusionsoft.com/app/linkClick/53065/e7f042e55d92e862/12023629/3feebadbe5be050a :-)...
They are definitely bad this year. Felt well enough to take the dogs for a 10 minute walk down the path at our cabin a few weeks ago and even with the stuff that our vet has them on to keep ticks...
Excellent. I can't wait to see how you get along with it. Anything that can give some relief gets a big thumbs up from me...
"Our CBD Hemp oil is made in Canada & tested regularly too ensure proper & accurate numbers in every dosage" Looks good Girlie! If you ever want to get into the ionfo deeper, look up lyme disease -...
FECO = full extract cannabis oil which uses the full plant and includes THC. You need a licence to get it legally. If you ever do and you want an extremely easy recipe to make it at home from bud,...
I am hoping it doesn't last long Girlie. Just going back into the sleepless nights, anxiety, and panic attack routine for the minimum 4 months it takes to treat babs seems like the equivalent of...
Been a while since I've posted. Hope everyone is staying strong. Sorry for the long post. If your not up for a depressing rant, I would move to the next post. In a dark place. Don't feel like...
I also had to resort to Pharmaceuticals. Tried everything herbal under the sun to no avail. I used Ambien, klonopin, Valium, Trazadone, Estazolam, and triazolam and none worked well. I would still...
Not my story, but I sure hope to post mine sooner rather than later. I've just recently started to be able to listen to music again. Music was a huge part of my life way back before Lyme so as you...
I treated for 8 months the first time. I couldn't shake the nightmares, night sweats, insomnia, and air hunger. These are easily attributed to Babs so it was fairly cut and dry for me. After the 8...
Babs is stored in Blood and everything I have heard states that you need to treat for at least as long as the cells life span is which is about 4 months. I treated for more like a year myself. First...
Appreciate the insight from all of you. Thanks Mister Mike - Immune System Support is one thing that he does include in his "maintenance" herbal treatment. Communication is great with my LLMD,...
My muscle jerking faded with treatment also. I haven't had any dietary changes or environmental changes that I could contribute to it stopping. I quit taking the clonazepam a few months ago, which...
I know you've been at it for a long time too Girlie. Keep fighting the good fight....
heya everyone, Hope your all feeling ok enough to be thankful we made yet another trip around the sun and get to ring in another New Year. I am starting to get the idea from my visits with my LLMD...
Gummo, It's an annoying symptom, but it's not permanent. mine got so bad I had to sleep on the couch for a few months. My wife said it felt like I was jumping hurdles or bouncing on a trampoline in...
I've just recently started pulsing. My schedule is a little different than what you are dealing with. I take 5 days a week, take 2 days off for 3 weeks, then I take one entire week off. I feel worse...
Anxiety, depression, panic attacks and pain are probably my top issues right now. I tried everything herbal under the sun and let mine get so bad I was basically a shut in. Once I finally let my LLMD...
Dana, I used to get the hiccups after eating quite often. Lyme effects so many body functions including how the muscles move food down your throat. I had to take a drink of water after every bite or...
There are a some learning here in my area. It's unfortunate that it takes a diseaese reaching epidemic levels before they are willing to step back into learning role and actually pay attention to new...
Babesia was a major symptom and concern for me. I used to have a recording studio and recording business that has kinda been sitting gathering dust for the last 4 years. Told myself that if I didn't...
I've seen similar type treatments before and frankly, I don't understand how filtering your blood or using specific light bands inserted into veins can rid you of a parasite that lives inside tendons...
Thanks for all the responses. Great post Kott, thank you. I do agree about spending a fortune on a center or doctor for treatment. Luckily I have a very affordable LLMD that has worked through Lyme...
Thanks to both of you for the response, much appreciated. CD, yes, I have been on other ABX. We've cycled in Mino, Biaxin, Clindamycin, and there was one other, but I'll be darned if I can remember...
Hey everyone, Just looking for some experience with the medication I'm adding in this next step of treatment. I went into my last LLMD appointment frustrated and anxious and was going to ask about...
Amitriptyline and just about every other sleeping pill I tried after exausting herbals either didnt work or gave me that hangover feeling that I couldn't stand. I finally was prescribed Doxepin. I...
It's highly dependent on what type of insurance you have and what they will cover. Mine runs $400 a bottle for the generic and I take two bottles a month. This is what my maximum payment can be per...
I went to see a lyme literate psychologist when my depression, panic attacks, and social anxiety took over my life and pretty much kept me house bound. This Dr. was actually the president of Ilad's...
I used to have something very similar. My llmd just called a flushing red rash with marbled like pattern. I had it on my arms, feet and face and said he sees it quite often. Mine extend about 1/2 way...
I typically get a call back within an hour or two, even after hours, never a charge for call ins. I really love my LLMD. If not for him, I would have completely given up on the medical field all...
I've been on and off Plaquenil several times now over the past few years with different protocol changes from my LLMD. He seems to switch between mepron and plaquinil. I was actually put on this...
Hey Smartone, If you ever need another lymie to talk to, please feel free email me (click my name and it will have an option to email me). I would be more than happy to chat on the phone or email or...
do you get red bumps around the hair follicles or is it just itchy. IKf you get red spots, folliculitis may be the culprit....
Hang in there smartone, I'm taking more of a traditional route with my treatment. What are you currently using for treatment. especially Babesia. This was the culprit for my insomnia and I know...
Hey Steve-O, I'm in NEPA myself. I'll fire off an email and let you know about the one I use and another that's a little closer to central PA. there are a few others here from north east PA that may...
Jackie, Sleep was a huge issue for me due to Babesia. After 8 months on Mepron I had beaten it down enough that Doxepin would put me out for a full 7 to 8 hours. It was like I took a trip to heaven...
My LLMD insists we get the live, refrigerated version. Thats all I have really ever tried so I couldn't really put my two cents in on the non-refrigerated kind....
I just started Mepron again a few weeks ago. It's costing me $400 a bottle for the generic this go around and I use 2 bottles a month. Really hoping I don't need to be on it for 8 months again....
My LLMD uses Lyrica as one of the tools in his toolbox. I tried it for a while, but could not afford it. My LLMD has had a terrible time with insurance companies so he no longer does...
I would have to agree with Girlie here Sarah. Especially with your insurance paying for it, stick it out for a few more months so you at least cover the full life span of a blood cell. What Babs...
My first go around treating Babs with Mepron was for 9 months. I thought for sure I had it beat. A few weeks ago, my sleep turned to crap again, the dreams starting creeping in, Myclonic jerks went...
My latest got me in big trouble. My wife, bless her soul keeps me in line with my diet. Been having a ton of trouble sleeping again lately so of course a midnight snack was needed. With no wife to...
Petza, Those symptoms are very indicative to Babesia. I would certainly bring it up if to your LLMD (of whatever doctor is treating you). You ever have air hunger? Mine came in the form of yawning...