I experience the eye contact thing! It causes this unsettled feeling in my eyeballs, not pain, but very unpleasant. It's like I'm straining to keep them in place. I end up putting a hand over my...
Depends on the nature of the pain. A hot bath, but yes I'm with you, I we can't live from the tub! I take a combination of curcumin and boswelia, I also take magnesium, and I use a TENS machine on...
I take long walks and listen to the snapjudgment podcast, I take photos (family shoots, maternity, etc) and spend far too long editing, I love reading anything I can get my hands on and I love...
It sounds like you are experiencing a very specific type of dizziness called Mal de Dembarquement = http://vestibular.org/mal-de-debarquement it translates to 'sickness of disembarkment' and it...
After a year of treatment, my husband and I are thinking of starting a family. We feel that if we wait for me to be 'cured' then we will never have children. Of course we're under the guidance of my...
There is a LLMD in Asheville, she's a PA and if you search online for Lyme disease / Asheville she'll come up. However, I'm sorry to say that I have heard she does not treat children....
Hi Jrpsf- this absolutely went through my head, but the pain actually returned when I was traveling through Nebraska. I've often returned to my parents house in New England to heal as I always feel...
I have treated Babesia for all this time and I believe it under control, perhaps it's the bartonella. I was doing excellent detox, everything- and to be quite honest, I haven't been doing detox for...
Hi, I'd love to encourage you as best that I know how. I understand your pain and your depression as it relates to Lyme. I myself am 31, have had a life of happiness and adventure and warmth and...
Boring eye pain, and a loud beating heart even while at rest and in the middle of the night are two of my most odious!...
Hello! I'd love a little insight, advice or solidarity. I have been seeing slow but steady improvement. I began Abx in January, along with every alternative therapy I could afford, big diet and...
Thank you ALL you really relieved my anxiety regarding this symptom. You really helped me out!...
Bluelyme, thank you!...
Hi all, I'm happy to report that I am making great headway on my recovery. So many things are improving, including overall pain, fatigue, brain fog, etc. Big reduction in symptoms. I've been treating...
There are a number of ways to use magnets to heal, as I've learned. I did a month of every day Pulsed Electro Magnetic Therapy (PEMF) which amounted to a tough month of insane detox. In September, I...
For those who inquired about my Abx schedule, here it is: I began with the Lyme Induction Protocol : Omnicef 300mg Am&Pm, Azithromycin 500mg Am&Pm, Minocin 100mg Am&Pm Take M, W, F and in the second...
Hi everyone! When I first came on this site, I was in complete agony. Newly pregnant after a miscarriage and had been diagnosed with chronic neuro Lyme just a few days before. After one month of...
I'm happy to say that after six months of abx and a babesia protocol, changing my diet, daily salt baths, lots of swimming in fresh water, saunas, daily juicing, green smoothies and PEMF therapy and...
Yes, I experienced these for months! Constant, always somewhere in my body!! I have been on Abx for 6 months and the pulse/twitches are much less frequent....
Just so you know, I am 31 and in the exact same position as you....
I used it. I went to my chiropractor's office to do it. I did an hour a day every week day, weekends off, total of 28 hours. I should have done 30 but I just couldn't handle more! Obviously an hour a...
I have many of those symptoms you mentioned. I doubted for a long time that I really had Lyme, despite positive test results. I have no fatigue and very little joint pain. I have everything else you...
This is exactly what is happening to me!!...
Denikeef - You are so helpful and so uplifting! I also have some crazy air hunger symptoms that come every 4-6 days which are for certain a Babesia herx. Perhaps.....perhaps the Lyme is defeated!!...
I feel this as well. I'm usually such a go-getter. I feel the malaise, fatigue, and lack of motivation and then that leads to guilt and low self esteem. I have to remind myself that my full time job...
Hi everyone. Quick background : I've been treating Lyme (positive ELISA and Western blot) with Abx (Jemseck protocol) since January 25th. About 5.5 months of treatment. I'm currently in round three...
THIS. YES. I did no grain / sugar / dairy / gluten ANYTHING for the first 6 months of being sick with Lyme. I got skinny, I looked sick, my skin was yellow. I missed out on social situations, I was...
I have an ayurvedic practitioner as well as an acupunturist. Both tell me to always stay full, prefferably with warm food prepared with warming spices. I have a lot of neurological symptoms. Neuro...
Oh dear. My eyes for a while have been slightly bloodshot with a yellowish band in them. It's not my liver as I've been keeping up with those levels. 2 days ago my acupuncturist recommended lying two...
Traveler - THANK YOU!!...
Hello everyone! I am sick of suffering alone, so I am hosting an event in Asheville, North Carolina for Lyme Patients. The purpose of this benefit is to connect Lyme Patients and their friends and...
Thank you- I will ask my LLMD about IV Glutathione. I take it orally but obviously not enough. Thank you, I truly appreciate the input!...
Hello everyone! My most painful and annoying symptom lately are the Bartonella eye symptoms. My eyes are painful, swollen, bloodshot and there is a yellowish band on my right eye. I wear sunglasses...
I guzzle lemon water, drink an ice cold kombucha, do yoga if I can. I drink powdered collagen, drink a tsp of turmeric, and I take gaba/oxcar combo to help with the nerve pain. I also use a lot of...
Thank you so much for the help, everyone. Makes me feel very connected and hopeful. Thanks!!...
Hi Project, I wish I could give you a good answer, but the truth is, I have been wondering the same thing myself. At the neuropathy center where I get my PEMF treatment, they refer to it as 'cellular...
Carla, I have the band around my belly sensation as well! Sorry you are experiencing that but it helps me to know I'm not alone in that. I also have many of the other sensations you mentioned....
One of my worst symptoms with Lyme is a very strange sensation in my eyeballs. While I have had extreme eye pain, this sensation is not pain. Do you know how restless leg syndrome is really annoying...
I take mepron, 2 tsp twice daily. Ugh, it's intense. I wonder if that's why I am having so much trouble talking to other people. To myself and my husband I'm fine but to other people , like when...
Actually today is my first day on it! Now I'm a bit concerned about my liver......
Hey everyone, I've been trying just about everything since my official diagnosis via ELISA and Western Blot last autumn. I believe I have been infected for about nine years total. Some good news: I...
THANK YOU! I just logged on here to see if I could search for 'toe problems!' I first experienced this a few months back in my pinkie toe: it was red, swollen (but hard to the touch, as if it had...
This bothers me too. I can never get my breath to sync up during yoga 'inhale upward down, now exhale downward dog' etc I'm always just standing there, hand on my chest, trying to get a breath. and...
@Yancync I would love it if you put a link to your page, thank you! @Chapelle I started on Grapefruit Seed Extract, my doctor said to take it on the same days I take Flagyl. I had NOT heard about the...
@Chapelle I certainly do not mind your questions. I see that you are a registered pharmacist and so I assume you know your stuff! I did not pick up Lyme in NC, although of course it is here. I grew...
@Chapelle I'm treating Lyme, Babesia and Bartonella. (Sorry I didn't see your question before!) I'm also beginning Flagyl today....
PeteZa thanks for the suggestion- I'm following them now! I like instagram, it's a very simple form of social media. I hope to one day make From_lyme_to_emerald into a full blown webpage....
I take Azith, Minocycline and Omnicef....high dosages. So far...NOTHING. It's been two weeks (pulsing, on one day, off the next, weekends off) and absolutely nothing has happened. No side effects, no...
Hello everyone! I wanted to share the project I've been working on. When I was first diagnosed, I scoured the internet looking for a safe place, and uplifting place, some source of information and...
UGH thank you for posting, I HATE air hunger. I laughed out loud in yoga when they're all, 'just deepen your breath...' I'm like, I WISH!! It's with me at all times. I constantly have my mouth...