Having been diagnosed with chronic fatigue syndrome myself, I certainly feel my post has a place here, sir or maam. I figured when I saw I had a reply to this comment that it would be someone such as...
Diagnosed with chronic fatigue syndrome after seeing around 30 doctors. In the beginning I just felt bad..good days and bad days. But mainly bad days. Then insomnia and anxiety set in. This went on...
Good luck cd!...
Thanks for listening to me whine. The heating pad is working. I don't do pain very well obviously :-/...
Thank you!...
I'm in pain! I took the nerve pain pills (oxycarbazepine) prescribed by my llmd. This is like burning internal organ pain on my left side. What can I do????!!!! Hubby is gone to the store to get...
I just have to share!! First, I had my second appointment with my LLMD yesterday. Not only is my Lyme test positive...but it is CDC positive!!! Just got my Biaxin, Plaquenil, and Ceftin filled and...
No...july...don't rethink your diagnosis /treatment because of this post. I've read some with lyme can have unquenchable thirst as well....
For so many years (suffering from lyme and not knowing it) I completely lost my sense of thirst. not thirsty, ever...and have had to force myself to drink anything. I always can tell by the way I...
I enjoyed reading this. Nice to find some silly humor in it all. Think I like it here!...
Bluelyme..I'm interested in hearing more of your "story" with lyme and relationship issues. And I'm sorry for the misery this disease has caused you!! Girlie...I haven't asked my dr about the...
Thank you girlie for responding. I just needed to vent obviously. And obviously lyme further complicates situations that would be stressful for anyone to deal with. Btw...I have been having those...
I guess I just need to vent. I have emotional problems due to lyme...LYME RAGE. The thing is hubby gives me plenty of reason to be stressed..Lyme or no lyme! let me elaborate. First off...I have...
Yes..I think definitely connected to lyme. I have these nightmares where something evil is in my bedroom. I'm conscious enough to try to wake myself up and move and then I "wake up" or think I do but...
I'm normally on the Lyme forum but your post caught my attention. Sounds like chronic Lyme symptoms. Seriously. It's an elusive disease that is difficult to diagnose. There's a plethora of info on...
I haven't posted in a while...BUT....This week I got a call from my LLMD's office...My blood test confirmed Lyme....So glad to have something in black and white....Even though my LLMD was going to...
Magnesium butter..interesting..I hadn't heard of it before!...
I posted about this on a different thread....I was corrected. What I am taking is oxycarbamine (triliptal). My llmd was talking about tindamax.....so I got confused. Didn't mean to spread...
My llmd has me on magnesium malate. Just took it for the first time last night. My supplements just came in the mail yesterday. Hopefully it will help. I get this really sick feeling in my leg and...
Welcome! I am pretty new here myself. It's nice to have a place like this to come to....we understand! Good luck in your search for an llmd. I just get so outraged the more i think about mainstream...
I must be totally mistaken about the name of whatever med I'm on for nerve pain. It's oxycarb______something. (generic ). I would get the bottle but i don't wanna wake the hubby up. Sorry for the...
I'm concerned that he says antibiotics don't work? I try not to worry but I can't help it. I'm worried I won't get better....
I was just asking about restless leg syndrome. I'm feeling some pain with it. It's the first time I've had this problem (rls w/nerve pain) and I'm nearly in tears. My llmd prescribed tindamax for...
Interesting...my llmd diagnosed me with bart. Although he didn't order the test for bart. I think i just had so many bartonella symptoms that he didn't feel it was necessary. I said in another thread...
I'm having a terrible episode of restless leg syndrome tonight :sad: Does anyone else have this symptom? It's in the same foot and leg I have the most nerve damage in so it's gotta be related....
Beeperoni....I'm so sorry to hear you are going through it. Your story resonates with me. I have been sick for 10 years...my llmd thinks it was my pregnancy that brought out my lyme symptoms and now...
Welcome. Glad you are getting treated :-) I'm new to lyme too...
You are so lucky to have dodged the fatigue! Jealous of you for that. It was so nice spending time with the llmd. He made all the other doctors look even more pathetic than they already did. It's...
Girlie...maybe the correct term for "nerve damage" is sensory loss. He put a vibrating thing on my foot and I had to tell him when I stopped feeling it. I stopped feeling it before it stopped...
My appointment with the llmd went well today. He doesn't bother with the blood test. He says even the igenix test is not 100 percent. So it's a purely clinical diagnosis of lyme, bartonella and...
Girlie..I think I have had those kinds of shivers before but I don't get them frequently. I started out with 10 mg propranolol. Now I am prescribed 20 mg but I will often break them in half. For...
About the shivers...i was having those real bad a few weeks ago, having major cold sweats and my temp would go from low to high just off and on throughout the day. Since i started taking better care...
Yes, girlie! Propranolol can really help. I started taking it in 2009 for performance anxiety and as you know it works by counteracting fight or flight response. It doesn't help so much with mental...
That's awesome to hear that you have seen so much improvement in your symptoms. I do hate to hear that you still experience the heightened fight or flight response issues. For me, that is one of my...
So...I have read through the detox forum and also read stuff on diet. Wow! You really have to be pretty hardcore about lifestyle changes. It will be a challenge but it's one I'm ready for. Being sick...
Thank you all for responding! It feels so nice just to be able to talk about it openly without being shunned, blamed or accused! My main symptoms are neurological in nature. Started with the fatigue....
Hello all. I'm new to the forum and thought I would introduce myself. I have my first appointment with a LLMD in 2 weeks. Not technically diagnosed yet but just KNOW that lyme has got to be the...