I do have some buhner herbs and the byron white a-l complex tincture as well as some samento and pinella and have been taking them lately. Also gave a blood pressure med and am on plaquenil from a...
Anyone familiar with CIDP, or chronic inflammatory demyelinating polyneuropathy? I posted on here a while back about it and got some decent responses just thought I’d try to pick some more brains....
Yes, EMGs done three times now he says theres neuropathy but I guess hes not saying its like crazy neuropathy. Very strange since what I’m feeling is rather intense. The dosages for the IVIG were 60...
Hello everyone, been having progressively worse neuropathy from my lyme for about three years. Got to a neurologist at the end of 2019 who diagnosed it as CIDP or chronic inflammatory demyelinating...
Anyone else have any thoughts?...
Thanks for the response, I know it is annoying how ignored lyme still is. Hopefully I can try to get on it because I feel like I really need it.....antibiotics and other natural treatment just won’t...
I was just wondering if anyone has ever had immunologlobin (IG) infusions for their lyme? I have had lyme for about 9 years and have been treated extensively but about a year ago it started to go...
Interesting Girlie about the girl you know diagnosed with ALS after lyme, that is what I'm fearing I have. Been getting severe stiffness in my neck, back and spine and also having trouble breathing,...
Interesting Girlie about that person you know diagnosed with ALS after lyme because that is what I think I have. I've been getting severe stiffness in my neck, back and spine as well as having...
Wow, no improvement at all, so I am very disappointed. Have been taking the pred for just over two weeks so I thought I would see some improvement but no luck. It even seems to be attacking my...
Called the doctor to see if he would prescribe me prednisone since I can't see the neuromuscular doctor until June.......told the receptionist basically, "look, I need this." He actually prescribed...
Should this be myositis caused by lyme, anyone have any thoughts on taking corticosteroids/immunosuppressants to treat it? I know that I've heard it's not wise to take them for lyme/coinfections but...
saraeli, thank you as well for the response. I definitely am feeling pretty strongly that there is a very good chance this is myositis so I'll be sure to discuss that with the neuromuscular...
My lyme doc wants me to see a neuromuscular specialist to do a biopsy on my legs so I am going to set that up, forgot to mention that. I wasn't on anything before the plaquenil and biaxin as I hadn't...
I was wondering if anyone is familiar with lyme causing autoimmune disorders such as MS. I posted on here a while back about how I had started to experience pronounced leg weakness a few months back....
Has anyone ever heard of lyme myositis? I posted here several days ago about leg weakness I have been getting the past few weeks and while perusing the internet I came across it. Supposedly it causes...
I have had lyme and coinfections for about seven and a half years and have been through a lot of treatment. I'm just posting on here because for the past 10 or eleven days I have been having extreme...
Hello everyone, I have not been on here in a while but was just seeing if maybe I could get some advice in regards to disability. I have been sick with lyme and co-infections since May 2011. Without...
Ok, yeah don't mean to put down others who try to mention things that may help us but that sounds like a scam. Also, I have seen a lot about the advanced cell training program, that seems a bit shady...
The first thing to acknowledge is that the tests are not conclusive. Good lyme doctors will diagnose based on symptoms and a history of a tick bite and/or bullseye rash. The tests can be instructive...
I got to another LLMD in January who suspected it and tested me for it. Positive was over 320 on the test and my number was 1127! She prescribed me clindamycin 300 mg 2 per day, twice per day and...